Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Following Diet, Still Having Stomach Pain


ebrbetty

Recommended Posts

ebrbetty Rising Star

hi everyone, I've Been gluten-free for about 3 weeks now, I do have some days where I feel better, less bloating, stomach noise, pain but have many days where I'm still having all the symptoms I've had for the last year. the other night I was up all night in with terrible stomach pain, I know I ate gluten-free..my question is: Could my stomach be so "messed up" inside that even good food can hurt it until it heals? also, do we become more sensitive to other foods as time goes on? last night I made gluten-free teriyaki chicken and rice, it was yummy, but today my belly hurts and I'm bloated.

I'm driving myself batty thinking something else must be seriously wrong because I'm still having pains and now even good foods hurt

thanks for the help

Betty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AkuNeko Newbie

When I was diagnosed, my doctor did tell me that it will take several weeks for the pain to go away because there was damage that my body that needed to heal. So maybe you are still in the healing period. In my experience the pain did lessen over time though and it was completely gone within a month.

However, it is possible that you are allergic to something else as well. Some Celiacs I know do have other food sensitivity as well. One is even sensitive to rice and apple, on top of being a celiac. Maybe you need to check back with your doctor?

happygirl Collaborator

It takes many people MONTHS just to feel remotely decent and many people take a lot longer. It took me a few months to feel better. I would get sick (after diagnosis, but before I was completely healed) after eating seemingly 'normal' and SAFE foods. Your body is probably still damaged and is just having trouble with everything. Once you are 100% gluten free for a longer amount of time, you will probably start to feel more normal. However, any small amounts of gluten cause huge problems!

Also, some people have trouble digesting dairy until they are 100% healed.

Lisa Mentor

Betty:

I have been gluten free for about 5 months now. (as best that I can). It has taken me this long to heal enough to figure out what it feels to be "glutened". It will take some time to feel better. You probably have several months ahead of you. This is the time to be very diligent about what you eat and lotions, soap, lipsticks, and shampoos, etc...

I still have a long way to go. I cook for my family often and I don't have any problems. Going out is always a problem and very frustrating. Dining out used to be a treat, not now. It is very frustrating to me to order something bland and boring and paying money for it. :blink::blink:

It takes time, but it will happen. Hope that you will start feeling better soon.

Lisa B

jerseyangel Proficient

Sorry you are still feeling so bad! I had stomach pain usually while or just after eating the first 2-3 months gluten-free. I chalked it up to my intestines healing after having been damaged by gluten for so long. Was there soy in your chicken dish? It could be that soy or something else is causing it--but after only 3 weeks, if you're sure you're not getting any hidden gluten, I would say to be patient a little longer. I really didn't begin to feel better until the 4th. month and there were many times in those first weeks that I questioned whether I was healing or not or just what was going on. It will get better--keep being a "gluten detective" and be good to yourself--rest when you can, drink plenty of pure water, maybe take some vitamins. :)

honedo Newbie
hi everyone, I've Been gluten-free for about 3 weeks now, I do have some days where I feel better, less bloating, stomach noise, pain but have many days where I'm still having all the symptoms I've had for the last year. the other night I was up all night in with terrible stomach pain, I know I ate gluten-free..my question is: Could my stomach be so "messed up" inside that even good food can hurt it until it heals? also, do we become more sensitive to other foods as time goes on? last night I made gluten-free teriyaki chicken and rice, it was yummy, but today my belly hurts and I'm bloated.

I'm driving myself batty thinking something else must be seriously wrong because I'm still having pains and now even good foods hurt

thanks for the help

Betty

Hi Betty,

I feel the same way. I've only been gluten-free for 6 days. The first fews days, I was happy I didn't feel bloated but now I'm horribly bloated and keep thinking something else is wrong. I just wanted to thank you for your post because I've seen the replies and it seems we just need to be patient and time will heal. I think also in my case this whole thing is stessing me out and that is causing me back pain and stomach pain. I'm going to get a yoga tape and maybe treat myself to message this weekend to help relax.

Kirsten :)

Lisa Mentor

Kirsten:

Just wanted to let you know that I used to have terrible lower back pain and it felt warm to the touch as if it was inflamed. My back went out twice and spent a week not able to move without great pain. I couldn't bend over to put the dishes in the dishwasher.

BUT.....six months or so, my back only bothers me when I feel that I have been glutened. So, being gluten free, my bet is that you back problems will clear us as well.

Hope this will be helpful.

Lisa B.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ebrbetty Rising Star

I want to thank each and everyone of you for taking the time to respond, I've been getting so stressed that I'm still having belly pain. I read so much about celiac disease and I'll say things about feeling better right away..that was freaking me out..glad to hear it DOES take time.

I mostly eat chicken and some fish for dinner [running out of ways to cook chicken] last monday night I has a 93% lean hamburger with about 1 TBS of kraft shredded cheese [o lactose] and about 8 oven fries, later I was in so much pain I thought I would die,the stomach pain lasted about 9 hours..I'm starting to think I can't eat red meat, whats up with that?

I'd like to get tested for lactose/egg/soy intolerance..does anyone know if this can be down with blood tests?

Kirsten, glad this post helped you too..this can be very stressful, I find myself having panic attacks, everytime my stomach starts acting up.

thanks again to each of you..I really appreciate the support

Betty

Lisa Mentor

Do you both have the Delfi Produce list of gluten free products, if not someone could sent it to you. I can't but others can.

For breakfast I eat left-overs or Amy's gluten free frozen meals (I don't like breakfast good)

For lunch, I eat fruit, a handful of peanuts or almonds, and a large V-8. or left overs

Dinner options are endless. Tonight we are having black beans and rice flavored with Herb-ox Chic. Boul.

and chicken wings with Emerel's Original and McCormicks Mesquit (Mrs. Dash) seasoning, cooked in the over with a little corn oil, until crispy. They smell soooo good cooking.

Check the threads with cooking recipies. They are so easy and so great.

I have lost my desire for red meat. Maybe it's too hard to digest. I'll probably end-up being a veg. in the long run. I even like tofu, before I wouldn't clean my bathroom with it. :blink:

Strangely enough, I am a firm believer that you body tells you what it need. (Thank God, I always hated beer, pasta, bread.......I am one of the lucky ones :) )

Hope this helps. We all have been where you are and not so long ago. Ya gotta be a quick learn.

Lisa B.

ebrbetty Rising Star

thanks again lisa..you've been so kind.

is the Emerel's Original spicy?

the beans and rice sound good, do you make it or is it a package? I'm trying to stay away from dairy too, ppl keep telling me most celiacs shouldn't have dairy..I think it may bother me

honedo Newbie

Hi Lisa,

It seems so strange that these pains came on the same time the Dr. started ordering tests. Maybe my body is just screaming "no more gluton" after not knowing what was wrong for so long.

Where should I ask for the Delfi Produce list?

Thanks to all on this site. Just reading all the posts has really helped. The internet can be a wonderful thing. I can't imagine how alone people were before it.

Kirsten

Lisa Mentor

Betty:

When I now cook rice, I like to use brown rice because it add the fiber that I don't get from bread and I believe that it is much healthier. Cook the rice with Herb-ox chic. boul. which substitutes for salt put the drained black beans in a bowl, add a can of corn, add cooked rice and zap it in the micro, toss with real butter and it's a meal with a salad if you choose.

Emeril's is as spicy as the amount you use - a little is flavor, the more the flavor stronger.

Also, E-Z Marimade in the zip lock pre-prep merimade is wonderful with chicken. But I usually make my own.

Merinade:

Newmans Own - Oil and Vinegar (or add your own 2-1 oil/vinegar)

La Choy Soy Sauce (is gluten free)

Honey

Ginger

Lawyer's Garlic Salt (have not check it out, but I have had no problems)

Taste to your preference

Mix it it a zip lock bag and merimade pork, chicken, beef over night.

Grill or broil.

ebrbetty Rising Star

thanks lisa. have you tried San-J tamari sause? its great mixed with rice. I sauted onion and garlic added it to the rice threw in peas,carrots broccoli and some of the sause..yum

marciab Enthusiast

Betty,

I'm new here too, but not so new to the diet. I had to eliminate quite a few things before my stomach stopped hurting all the time. My doctor told me to go back to a diet that I knew I could tolerate everytime I ate something that doesn't agree with me. It seems to be working. Good luck and try to be patient...

marcia

ebrbetty Rising Star

thanks marcia, I'm going dairy free too, thats really hard because most of the gluten-free food as dairy in it. I walk in and out of the kitchen looking for something to eat..nothing :blink: dinners not bad, its trying to find a lunch that won't hurt too much

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.