Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results Of Late Or No Treatment

Jala

By Jala
in Related Issues & Disorders

Recommended Posts

Jala Newbie
Jala
Posted

I am 38 and just found out I have a wheat intolerance. I have not been tested for Celiac. I can see the progression of my symptoms from aversion to food, to buckling over cramping, to facial and eye swelling, to year long rounds of diarrhea, to brain fog, to chronic fatigue and more. All my symptoms immediately alleviated when I stopped eating gluten. I no longer have to read the same piece of paper 5 times, and my severe IBS is gone. I feel like a million bucks.

I know this is a hereditary disease and my father died of multiple sclerosis by age 43. I have also read about the links between celiac and MS. Does anyone know what happens if you are not treated? In particular, has anyone actually experienced or seen a link to MS?

FYI, my 11 year old nephew has already been in the emergency room twice for severe abdominal cramping and no detectable cause.

Thanks, Jala.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

I don't know about the link to MS, but the untreated celiac dies an early, painful death.

Guest jhmom
Guest jhmom
Posted

Hi Jala, first I would like to say, I am glad you are feeling better after going Wheat Free. I also sorry to hear of your loss, 43 is very young to pass away.

I found these and wanted to share them with you...

MS and Celiac Disease

Here is also another link Diseases that may be linked to Celiac

You take care of yourself and hang in there! God Bless you and your family.

Karina Explorer
Karina
Posted

Interesting. Last year I had an MRI of the brain to check for MS as I had many MS symtoms. It was negative. I hadn't a clue as to what celiac disease was or what it involved and now I am diagnosed. I have had symtpoms a long time--probably all my life really. I hope I don't have something new to worry about now. I am gluten-free now, but only for two days so far. I know the more I learn about this disease the more motivated I am to do what I need to do. My advice is to find out for sure if you have it, or just go all the way gluten-free since you know you can't have wheat now anyway. Sorry I just checked and you are gluten-free--good :lol:

I am learning not to get carried away with all the possibilities of this disease because if I did I would be scared all the time...we have to live our lives and take care of our bodies. I am so sorry about your father, and that you have to deal with that in your family medical history, but worry can be damaging too......

Jala Newbie
Jala
Posted
  • Author

Many thanks for the input. I worry about those who don't find out in time. Hope others can benefit from your info as well. Jala.

LUAP Newbie
LUAP
Posted

THANK YOU STACIE FOR THE LINKS, IT ANSWERS SOME OF MY QUESTIONS ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748
    Mhp
    Newest Member
    Mhp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Help I’m cross contaminating myself,

      By Wheatwacked · Posted

      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Bitters for digestion?

      By Wheatwacked · Posted

      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.