Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Sick But Still Hungry


gointribal

Recommended Posts

gointribal Enthusiast

I am new to Celiac so I have weird things happening, but I was wondering if any one else was too?! If I eat gluten I feel wicked sick, get gas, bloated, my vision is blured, I feel like I am going to throw up but I still am hungry! I don't know what it is or if its just me, but does anyone else have this too?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MACE Rookie

I GET ALOT OF WHAT YOU ARE SAYING, BUT FOR ME I THINK IF I GET SOME GLUTEN IT SETS OFF SOME KIND OF CRAVING WHERE I WANT MORE AND MORE TO EAT. IF I STAY WITHOUT GLUTEN I DO NOT SEEM TO GET HUNGERY MUCH AT ALL, IN FACT I HAVE TO REMIND MYSELF TO EAT. BEFORE GOING GLETEN FREE I WAS ALWAYS HUNGERY. THEN I WAS EATING ALOT OF PASTA ETC. AND COULD NEVER GET ENOUGH TO EAT. THAT IS ONE OF THE FIRST THINGS I NOTICED WAS THAT I WAS NOT SO HUNGERY AFTER GETTING OFF OF THAT STUFF.

sorry about the caps, forgot i had them on and do not want to retype it all.

jerseyangel Proficient

Yes--it dosen't seem to make any sense, but even if I am sick from a gluten reaction, I still get hungry and also very thirsty. I think it seems strange, because we tend to equate the upset stomach, D and the rest of the symptoms as an illness--as the flu would be. The gluten reaction is, as we know, an autoimmune reaction--not a virus or a bacteria--so maybe that's why it dosen't affect our appetites the way we expect. I don't know--just my thoughts :)

CeliaCruz Rookie

Makes perfect sense to me. When your immune system senses that gluten is in your system, it reacts as if being poisoned and clears everything (even the non-glutenous stuff) out of your digestive system really fast. That's what the diarrhea is. Subsequently, there's no food in your digestive system and so a signal is sent that new food is needed and that's where the hunger pangs and cravings come from. Yeah, you'd think that after this really nasty painful experience you'd hardly want anything else to eat, but actually you need some food in you to replace the stuff you just "lost".

jerseyangel Proficient

Yea--that's why the hunger almost feels urgent--like "I need to eat now", rather than, "mmm, I could eat something....."

elonwy Enthusiast

I get the same thing with Gluten. I want to keep eating even though it feels terrible. ACK! Its aweful. I just gave myself chills thinking about it.

Elonwy

Carriefaith Enthusiast
I am new to Celiac so I have weird things happening, but I was wondering if any one else was too?! If I eat gluten I feel wicked sick, get gas, bloated, my vision is blured, I feel like I am going to throw up but I still am hungry! I don't know what it is or if its just me, but does anyone else have this too?
Yes, I also feel like that after I accidentally eat gluten. I'm feeling that way right now actually, after getting glutened earlier in the week.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliaCruz Rookie
I get the same thing with Gluten. I want to keep eating even though it feels terrible. ACK! Its aweful. I just gave myself chills thinking about it.

Oh yeah! Back when I thought I only had a wheat allergy I'd cheat from time to time. If I was good and abstained from wheat altogether, it wasn't that hard to stay away. But if I ate something with wheat in it, I'd crave more of the same for at least a few days later. It's like what they say happens to a sober alcoholic if he has a single drink -- it's only a matter of time before he goes on a bender!

purpleJennie Newbie

Hello............I'm new to this forum and look forward to learning more about this illness and how everyone's coping.

I've just been diagnosed with gluten intolerance, but don't experience the most common symptoms. I have no stomach/bowel problems. I do have a history of depression, endometriosus, osteoarthritis, etc..... My dilemna is the fact that I don't feel any different when not eating gluten. It's difficult for me to abide by this diet when I don't get any instance "consequences". I hope I'm explaing myself...I'm so confused!! I'm hungry a lot, am sticking to the diet, and have gained 4 lbs.!! What the heck! :o

Any suggestions/thought are appreciated.

Rachel--24 Collaborator

Dunno whats wrong with me but when I'm glutened I'm not hungry at all...I dont want to eat anything for the first couple days and THEN all of a sudden I'm starving and cant get enough. Initially though...those first days.....the thought of eating scares me. :blink:

purpleJennie, welcome to the board!

I don't get much of the classic symptoms either so you're not alone there. How long have you been on the diet? If you've only just started you may notice changes that you didn't realize were related to gluten.

purpleJennie Newbie
Dunno whats wrong with me but when I'm glutened I'm not hungry at all...I dont want to eat anything for the first couple days and THEN all of a sudden I'm starving and cant get enough. Initially though...those first days.....the thought of eating scares me. :blink:

purpleJennie, welcome to the board!

I don't get much of the classic symptoms either so you're not alone there. How long have you been on the diet? If you've only just started you may notice changes that you didn't realize were related to gluten.

Thanks for the reply...............I've been on this diet for about 10 days and because I don't have immediate consequences, i.e., gastric stuff, etc., I'm having a difficult time rationalizing this diet. I went to a gluten free store today and purchased a bunch of stuff. Everything is so darned expensive! Yikes :unsure:

I'm not feeling much different than I did when I was queen of fiber, but I have been sleeping much better..........

I saw on your info that you were diagnosed through Entero Labs.....I was too!!!

frenchiemama Collaborator

I get that too. I will get SOOO hungry, completely famished, and then if I eat anything I feel sick right away. It's very odd.

carriecraig Enthusiast

Before I was diagnosed, I was so hungry all of the time, even though I was eating at least 6 small meals a day. I was eating more then my husband who is almost 2x my weight. When eating gluten, your body isn't absorbing an nutirents, so it craves more food to try and compensate.

When i get glutened now, I am really hungry for about a week after it happens.

rache Apprentice

i was glutened over the weekend and i think ive been more hungry now that i feel sick than when im gluten free! its strange how that works.

  • 3 years later...
sonear Newbie

I have felt the same and wonder if the hunger is due to the nutritional deficiencies that come with celiac. I am totally gluten-free for 6 months but still struggling with regaining my health. Sometimes I feel like I am starving but nothing sounds good. I wander the kitchen in a kind of tortured trance before sending myself off to bed. I guess this is why some celiacs gain weight rather than lose it.

StacyA Enthusiast
Hello............I'm new to this forum and look forward to learning more about this illness and how everyone's coping.

I've just been diagnosed with gluten intolerance, but don't experience the most common symptoms. I have no stomach/bowel problems. I do have a history of depression, endometriosus, osteoarthritis, etc..... My dilemna is the fact that I don't feel any different when not eating gluten. It's difficult for me to abide by this diet when I don't get any instance "consequences". I hope I'm explaing myself...I'm so confused!! I'm hungry a lot, am sticking to the diet, and have gained 4 lbs.!! What the heck! :o

Any suggestions/thought are appreciated.

Keep a journal of what you eat and what your symptoms are (even rating them based on a 1-10 scale), and maybe seeing it on paper will help you not only find a pattern but also discourage 'cheating'.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,581
    • Most Online (within 30 mins)
      7,748

    dogmom1499
    Newest Member
    dogmom1499
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.