Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Sick But Still Hungry


gointribal

Recommended Posts

gointribal Enthusiast

I am new to Celiac so I have weird things happening, but I was wondering if any one else was too?! If I eat gluten I feel wicked sick, get gas, bloated, my vision is blured, I feel like I am going to throw up but I still am hungry! I don't know what it is or if its just me, but does anyone else have this too?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MACE Rookie

I GET ALOT OF WHAT YOU ARE SAYING, BUT FOR ME I THINK IF I GET SOME GLUTEN IT SETS OFF SOME KIND OF CRAVING WHERE I WANT MORE AND MORE TO EAT. IF I STAY WITHOUT GLUTEN I DO NOT SEEM TO GET HUNGERY MUCH AT ALL, IN FACT I HAVE TO REMIND MYSELF TO EAT. BEFORE GOING GLETEN FREE I WAS ALWAYS HUNGERY. THEN I WAS EATING ALOT OF PASTA ETC. AND COULD NEVER GET ENOUGH TO EAT. THAT IS ONE OF THE FIRST THINGS I NOTICED WAS THAT I WAS NOT SO HUNGERY AFTER GETTING OFF OF THAT STUFF.

sorry about the caps, forgot i had them on and do not want to retype it all.

jerseyangel Proficient

Yes--it dosen't seem to make any sense, but even if I am sick from a gluten reaction, I still get hungry and also very thirsty. I think it seems strange, because we tend to equate the upset stomach, D and the rest of the symptoms as an illness--as the flu would be. The gluten reaction is, as we know, an autoimmune reaction--not a virus or a bacteria--so maybe that's why it dosen't affect our appetites the way we expect. I don't know--just my thoughts :)

CeliaCruz Rookie

Makes perfect sense to me. When your immune system senses that gluten is in your system, it reacts as if being poisoned and clears everything (even the non-glutenous stuff) out of your digestive system really fast. That's what the diarrhea is. Subsequently, there's no food in your digestive system and so a signal is sent that new food is needed and that's where the hunger pangs and cravings come from. Yeah, you'd think that after this really nasty painful experience you'd hardly want anything else to eat, but actually you need some food in you to replace the stuff you just "lost".

jerseyangel Proficient

Yea--that's why the hunger almost feels urgent--like "I need to eat now", rather than, "mmm, I could eat something....."

elonwy Enthusiast

I get the same thing with Gluten. I want to keep eating even though it feels terrible. ACK! Its aweful. I just gave myself chills thinking about it.

Elonwy

Carriefaith Enthusiast
I am new to Celiac so I have weird things happening, but I was wondering if any one else was too?! If I eat gluten I feel wicked sick, get gas, bloated, my vision is blured, I feel like I am going to throw up but I still am hungry! I don't know what it is or if its just me, but does anyone else have this too?
Yes, I also feel like that after I accidentally eat gluten. I'm feeling that way right now actually, after getting glutened earlier in the week.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliaCruz Rookie
I get the same thing with Gluten. I want to keep eating even though it feels terrible. ACK! Its aweful. I just gave myself chills thinking about it.

Oh yeah! Back when I thought I only had a wheat allergy I'd cheat from time to time. If I was good and abstained from wheat altogether, it wasn't that hard to stay away. But if I ate something with wheat in it, I'd crave more of the same for at least a few days later. It's like what they say happens to a sober alcoholic if he has a single drink -- it's only a matter of time before he goes on a bender!

purpleJennie Newbie

Hello............I'm new to this forum and look forward to learning more about this illness and how everyone's coping.

I've just been diagnosed with gluten intolerance, but don't experience the most common symptoms. I have no stomach/bowel problems. I do have a history of depression, endometriosus, osteoarthritis, etc..... My dilemna is the fact that I don't feel any different when not eating gluten. It's difficult for me to abide by this diet when I don't get any instance "consequences". I hope I'm explaing myself...I'm so confused!! I'm hungry a lot, am sticking to the diet, and have gained 4 lbs.!! What the heck! :o

Any suggestions/thought are appreciated.

Rachel--24 Collaborator

Dunno whats wrong with me but when I'm glutened I'm not hungry at all...I dont want to eat anything for the first couple days and THEN all of a sudden I'm starving and cant get enough. Initially though...those first days.....the thought of eating scares me. :blink:

purpleJennie, welcome to the board!

I don't get much of the classic symptoms either so you're not alone there. How long have you been on the diet? If you've only just started you may notice changes that you didn't realize were related to gluten.

purpleJennie Newbie
Dunno whats wrong with me but when I'm glutened I'm not hungry at all...I dont want to eat anything for the first couple days and THEN all of a sudden I'm starving and cant get enough. Initially though...those first days.....the thought of eating scares me. :blink:

purpleJennie, welcome to the board!

I don't get much of the classic symptoms either so you're not alone there. How long have you been on the diet? If you've only just started you may notice changes that you didn't realize were related to gluten.

Thanks for the reply...............I've been on this diet for about 10 days and because I don't have immediate consequences, i.e., gastric stuff, etc., I'm having a difficult time rationalizing this diet. I went to a gluten free store today and purchased a bunch of stuff. Everything is so darned expensive! Yikes :unsure:

I'm not feeling much different than I did when I was queen of fiber, but I have been sleeping much better..........

I saw on your info that you were diagnosed through Entero Labs.....I was too!!!

frenchiemama Collaborator

I get that too. I will get SOOO hungry, completely famished, and then if I eat anything I feel sick right away. It's very odd.

carriecraig Enthusiast

Before I was diagnosed, I was so hungry all of the time, even though I was eating at least 6 small meals a day. I was eating more then my husband who is almost 2x my weight. When eating gluten, your body isn't absorbing an nutirents, so it craves more food to try and compensate.

When i get glutened now, I am really hungry for about a week after it happens.

rache Apprentice

i was glutened over the weekend and i think ive been more hungry now that i feel sick than when im gluten free! its strange how that works.

  • 3 years later...
sonear Newbie

I have felt the same and wonder if the hunger is due to the nutritional deficiencies that come with celiac. I am totally gluten-free for 6 months but still struggling with regaining my health. Sometimes I feel like I am starving but nothing sounds good. I wander the kitchen in a kind of tortured trance before sending myself off to bed. I guess this is why some celiacs gain weight rather than lose it.

StacyA Enthusiast
Hello............I'm new to this forum and look forward to learning more about this illness and how everyone's coping.

I've just been diagnosed with gluten intolerance, but don't experience the most common symptoms. I have no stomach/bowel problems. I do have a history of depression, endometriosus, osteoarthritis, etc..... My dilemna is the fact that I don't feel any different when not eating gluten. It's difficult for me to abide by this diet when I don't get any instance "consequences". I hope I'm explaing myself...I'm so confused!! I'm hungry a lot, am sticking to the diet, and have gained 4 lbs.!! What the heck! :o

Any suggestions/thought are appreciated.

Keep a journal of what you eat and what your symptoms are (even rating them based on a 1-10 scale), and maybe seeing it on paper will help you not only find a pattern but also discourage 'cheating'.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    VanessaC
    Newest Member
    VanessaC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.