Casein (dairy) protein

[Little Dark One]

Hello

I have been gluten-free for 6 years now, recently I have been getting the same symptoms as I did before with gluten before going gluten-free, I have a strong suspicion it is connected to Casein (the protein found in dairy) and I’m about to go dairy free for a couple of months to try and determine if this is the case.

Is this the case for anyone else please? I know I cannot eat Oats as I do get the same reaction to them.

Many thanks

Kieran

[cyclinglady]

While you might have developed a casein allergy,  your current symptoms might not even be related to celiac disease.  When was your last celiac disease follow-up visit with your doctor?   Have you had repeat celiac disease blood testing?  Another endoscopy?  

I thought I was getting gluten exposures.  Turns out mysmall intestine had healed (repeat endoscopy) but gastric biopsies revealed autoimmune gastritis.  Talk to your GI.  I learned not everything is due to celiac disease.  

[Ennis-TX]

Celiacs are prone to get new food intolerance, sensitivities, or allergies among other issues. It is also not uncommon to get other AI diseases or certain issues.
We are not doctors but if you give some symptoms perhaps someone can give you some ideas you can consider and go from there with talking with your doctor, nutritionist or trying elimination diet with a food diary to see if food related.

[GFinDC]

Hi Kieran,

Yes, I avoid dairy because it causes me GI symptoms.  We can develop reactions to many different foods.  You can try going off dairy for a couple weeks and then test it again.  Some people can eat sheep or goat dairy but not cow dairy.  It takes some experimenting to see how your body reacts.

Edited December 27, 2019 by GFinDC

[GlennJ]

On 12/27/2019 at 1:53 AM, Little Dark One said:

Hello

I have been gluten-free for 6 years now, recently I have been getting the same symptoms as I did before with gluten before going gluten-free, I have a strong suspicion it is connected to Casein (the protein found in dairy) and I’m about to go dairy free for a couple of months to try and determine if this is the case.

Is this the case for anyone else please? I know I cannot eat Oats as I do get the same reaction to them.

Many thanks

Kieran

Yes! Actually I’ve quit anything made with cow’s milk for about 6 months and see great improvement. I’ve even tried gluten again, here and there and there’s hardly a reaction. So I would say in my case that the dairy is by far worse for me than gluten.  I still have cheese made from sheep or buffalo on salads, etc and everything with no reaction.  Good luck! 

[Awol cast iron stomach]

I use almond or coconut with minimal additives or homemade. After diagnosis I would get bad joint and muscle pain/ inflammation likely tied to my mast cells reacting if I had cow milk or cow milk based products.

My husband and son also have cow milk issues and they can do sheep or goat cheese.

Good luck I hope you find comfort soon 

 

[Rleestewart]

On 12/27/2019 at 12:53 AM, Little Dark One said:

Hello

I have been gluten-free for 6 years now, recently I have been getting the same symptoms as I did before with gluten before going gluten-free, I have a strong suspicion it is connected to Casein (the protein found in dairy) and I’m about to go dairy free for a couple of months to try and determine if this is the case.

Is this the case for anyone else please? I know I cannot eat Oats as I do get the same reaction to them.

Many thanks

Kieran

I am not celiac but have a wheat allergy only detected by oral challenge (not blood or scratch test). You do not mention why you are gluten free, but I had a similar decline in symptoms about 4 years ago and only just now found that corn is my worst allergy by far. For my initial years of gluten- free I was also not getting much corn. But then corn started creeping into more and more products labeled gluten-free. Anyhow, in case it is helpful for you in your journey, you might look into corn allergy. It’s far more complicated than just avoiding “corn” and in fact it’s very hard to find a wheat product that doesn’t contain corn...even if I could tolerate wheat. I suspect many medical test negative “gluten-sensitive” might actually benefit from taking a look as well. Along my journey there were times it seemed I was allergic to any food but watermelon. Now, if I can source it free of corn-contamination, I can eat it. But I can barely shop at grocery stores. Anyway, this is a celiac group not a corn-group so I’ll try not to go off topic too far. Your post hit close to home. Good luck. 

[Wheatwacked]

My dairy intolerance was getting worse until I started eating fermented pickles and sauerkraut and olives instead of vinegar based. The science: salt fermenting promotes lactobacillus that supplements your body's production of lactase.