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teacher1578

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teacher1578 Apprentice

Hi. This question falls under the category of pregnancy and sex. I was Dx approx. 3 months ago. Does anyone know, believe, feel that sex drive and desire is related to celiac disease? Any advice is greatly appreciated....


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Guest nini
Hi. This question falls under the category of pregnancy and sex. I was Dx approx. 3 months ago. Does anyone know, believe, feel that sex drive and desire is related to celiac disease? Any advice is greatly appreciated....

I think there is def. a link, especially if you are not feeling good, you are not going to feel good about yourself and not have much of a drive. I think you will find that the longer you are gluten-free, the better you will feel about yourself and your drive will return.

mommida Enthusiast

Yes. I definately noticed after diagnoses when I was feeling better and drinking smart water. A definate increase in drive when some of the vitamin defiencies were resolved.

WGibs Apprentice

I certainly hope that the gluten-free diet will bring back my sex drive! Three days after I started the diet, I had a strong, burning urge, like I haven't felt in two years. My BF could totally tell the difference when we had sex, even though I hadn't told him beforehand that I was feeling something different. I haven't gotten another one of those, but I'm hopeful!

I did read somewhere that one of the symptoms is lower testosterone levels, which cause impotence in men and loss of libido in women.

In addition, I definitely think that there's a non-chemical side to this too. When I'm having constant D, I just don't feel very sexy.

experiencedit Newbie

Hey there your not alone no desire to have sex is what made me go to the doctors in the first place 2002

It will get better :D:D

  • 4 weeks later...
Candy Contributor

I never had a sex drive problem. I certainly couldn't blame Celiac for my perfect sex drive in my younger years-though it wanes as you age,at least to me it does.I only have all of the other miserable celiac symptoms.

minibabe Contributor

I feel that my sex drive def. was lacking and then after I was DX it did not get any better because I was feeling depressed. It has since gotten better, but when you get reactions to something and you are all bloated......the feeling goes away because yes, WGibs I totally understand that you dont feel very sexy.

Amanda NY


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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