Lymph Nodes(?)

[CatcherInTheRye]

As long as I can remember I have had an enlarged lymph node on the side of my neck, but in my teenage years I got a few more (one on the back of my head, one directly where my neck meets my head in the front). I suspect they were with me pre-celiac (can't be sure) but they've  kind off always been around. Most Drs seem disinterested in them and say its normal but sometimes I still get anxious about them. Does anyone have anything like this? How common is this? I am wondering if they are somehow tied to celiac. 

[trents]

And you are sure these are swollen lymph nodes and not just some kind of cyst?

https://www.healthline.com/health/sebaceous-cyst

[CatcherInTheRye]

1 minute ago, trents said:

And you are sure these are swollen lymph nodes and not just some kind of cyst?

https://www.healthline.com/health/sebaceous-cyst

Quite possible. Never been confirmed one way or the other and Drs usually don't correct me when I suggest they are lymph nodes

[trents]

They may have chosen to just be polite. I do computer repair and technology support and realize I can't always correct my customer's misconceptions and misnomers. I generally know what they are trying to say even if they don't say it correctly and it's often easier just to fix the issue rather than to educate. Most likely, they won't remember it anyway and some people feel put down when you try to correct them, no matter how graciously you try to do it.

I had a sebaceous cyst removed from the back of my head some years ago because I was constantly injuring it when combing my hair.

There is also something called a lipoma which is a nodule under the skin filled with fatty material. I have a few of those in places that don't bother me.

[Fenrir]

Chances are if you have lumps on your body for years and the Dr. isn't concerned they're probably not lymph nodes. Chronically swollen lymph nodes would be something every Dr. would be concerned with. 

Chances are you just have cysts or lipomas as stated above. 

I had a cyst removed from my head years ago, my mother had several of them. Drs generally wont recommend treatment or think anything of them unless they are unusually large or painful. 

[knitty kitty]

On 2/19/2020 at 9:26 AM, CatcherInTheRye said:

As long as I can remember I have had an enlarged lymph node on the side of my neck, but in my teenage years I got a few more (one on the back of my head, one directly where my neck meets my head in the front). I suspect they were with me pre-celiac (can't be sure) but they've  kind off always been around. Most Drs seem disinterested in them and say its normal but sometimes I still get anxious about them. Does anyone have anything like this? How common is this? I am wondering if they are somehow tied to celiac. 

I've had a swollen gland in my neck similar to what you described.  I found that taking thiamine helps immensely.  

Here's an article that you might find helpful.....

http://wandererandhome.weebly.com/heal-yourself/vitamin-b1-thiamine

I had started taking more thiamine for my Type Two Diabetes, and my neck gland went away.  Later I found that article that explains why.

Hope this helps!

 

[Julia rowlands]

On ‎2‎/‎19‎/‎2020 at 3:26 PM, CatcherInTheRye said:

As long as I can remember I have had an enlarged lymph node on the side of my neck, but in my teenage years I got a few more (one on the back of my head, one directly where my neck meets my head in the front). I suspect they were with me pre-celiac (can't be sure) but they've  kind off always been around. Most Drs seem disinterested in them and say its normal but sometimes I still get anxious about them. Does anyone have anything like this? How common is this? I am wondering if they are somehow tied to celiac. 

I had swollen glands both sides under my jaw, size of golf balls, was eventually diagnosed celiac 3 years ago by scope and bloods, then 2 years later when antibodies reduced from 130 down to 22 proved gluten-free diet works, however repeat bloods first showed cholesterol high, reduce repeat bloods, 2nd bloods showed cholesterol now ok but diabetes high, reduce sugar and repeat, 3rd  bloods showed diabetes now ok but thyroid high, over active, investigative scan showed no nodules on throat but found out graves disease was causing the over active thyroid, lost 2 stone in weight I shld mention prior to diagnosis, consultant said wld take 18 months to control it, currently 12 months in on neomarcazole, graves is also autoimmune not mentioned in most common autoimmune lists, either genetic or extreme stress / trauma, its also a disease originated in Ireland, anyhow to get back to the glands, they are now back to normal .

[trents]

It's good to hear things are more or less under control now. Sounds like quite a medical ordeal you have been through and a long winding rode. Thanks for sharing. So many more medical problems are autoimmune based than most people realize.

[knitty kitty]

Thiamine deficiency is associated with diabetes and hyperthyroidism (as well as hypothyroidism) and high bad cholesterol levels.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3921172/#!po=47.9167

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3376872/#!po=1.02041

https://www.ncbi.nlm.nih.gov/pubmed/?term=Thyrotoxicosis+thiamine

https://jamanetwork.com/journals/jama/article-abstract/265475

Celiac Disease causes malabsorption which results in malnutrition.  It's hard to get well when you can't absorb vitamins and minerals through your injured intestines.  Consider supplementing until you heal. 

Been through all these illnesses with my own thiamine deficiency.  

Hope this helps.....

K

 

[CatcherInTheRye]

Scary stuff. Glad you are feeling better Julia. Thanks for all the replies everyone. I had thyroid tests on an unrelated issue and all seemed well. Might try thiamine but I may just be lumpy I'm afraid.