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4tomorrow

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4tomorrow Apprentice
4tomorrow
Posted

I'm sorry to be asking so much. I'm having trouble with my doctors as far as getting in.

Before you went gluten free did you feel sick all of the time or just when you ate gluten? I never know what is going to bother me. It is to the point where my stomach hurts all of the time. I'm just really depressed right now I would just love to know what is wrong with me.

I'm holding of on the enterolab I think until the 9th when I go to my GI. I want to know what she has to say before I spend the money. If she isn't difinitive I'll probably order the kit.

Just a little info. I had my gallbladder out in 97. I've tried Questran. Bentyl , Nulev, finally found relief with Librax. I had a normal colonoscopy. I've had diarrhea and pain about two inches above my navel for 6 months. It goes from mild to doubling me over to the point where I've had to take Tylenol #3. All of my blood work came back normal. So who knows?

Thanks

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jerseyangel Proficient
jerseyangel
Posted

Hi--feel free to ask all the questions you want :) . It is common to feel sick all or most of the time before a Dx or going gluten-free. Although some Celiacs get no GI symptoms, I do, and before gluten-free, I never knew when I was going to get sick, and I didn't associate it with any particular foods at the time. (I had no idea about gluten--had never heard of Celiac until shortly before my Dx, although I had been sick for many years). Good luck at the dr. and keep us posted!

VydorScope Proficient
VydorScope
Posted
Hi--feel free to ask all the questions you want :) . It is common to feel sick all or most of the time before a Dx or going gluten-free. Although some Celiacs get no GI symptoms, I do, and before gluten-free, I never knew when I was going to get sick, and I didn't associate it with any particular foods at the time. (I had no idea about gluten--had never heard of Celiac until shortly before my Dx, although I had been sick for many years). Good luck at the dr. and keep us posted!

I agree, and you should note that the AVERAGE time to diagnose from onset of symptons, in the US is TEN YEARS. (source Celiac.com). Most ppl feel sick most of that time. Sucks :(

Guest cassidy
Guest cassidy
Posted

I used to feel sick all the time. I was reading this site wondering what it was like to "get glutened' because I never felt good and didn't realize that things could be any different. Now when I get glutened I say "I feel like I used to feel all the time." My stomach/intestines still hurt when I ate safe food in the beginning, but not as bad as when I ate gluten. I'm guessing that everything is so irritated that it takes a while to heal and start to feel much better.

Jen H Contributor
Jen H
Posted

I always felt sick before my diagnosis. I had constant stomach pain and other GI symptoms for about a year before I was diagnosed. It probably took a good 3-4 months before I began feeling better. Each day got a little better and a little easier on the gluten-free diet.

I hope that your doctor's appointment goes well and that you discover the root of your pain soon. This board helped me a lot and most of what I have learned about celiac disease comes from what different members have shared about their experiences. Good luck.

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