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chrissy

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chrissy Collaborator

i know oats there is a bit of a controversy over oats. look at this site and tell me what you think.

Open Original Shared Link

christine

can someone tell me how to post a link so that it works??

what do you know, my link worked!!


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jenvan Collaborator

The problem is that even if the oats are gluten-free, how can you tell whether you are one of those who has a similar reaction to pure oats as to gluten, or not. This type of reaction has been witnessed in trials and research. To truly try oats safely, in my opinion, you would need to have follow-up testing done--bloodwork, biopsy etc.

PreOptMegs Explorer

It has taken me so long to get "healthy" that I just can't get myself to try oats in case I have more crappy reactions...

Guest nini
It has taken me so long to get "healthy" that I just can't get myself to try oats in case I have more crappy reactions...

I'm with you... I've worked so hard to get healthy(er) that I wouldn't want to risk being one of those who reacts to oats...

chrissy Collaborator

i love the idea of being able to use oats-----but i don't know how we would tell since two of my girls didn't have normal symptoms, and i am only recently realizing that kassie's symptoms have been caused by celiac.

christine

mamaw Community Regular

From what I understand this place only has oats growing and no cross contamidation. There also is another company in canada that is producing oats. I did receive a sample of the Canada oats at the Columbus conference and I loved them. Both company's went through strict guidelines so I'm told....

four of us ate the oats two full blown celiac's and two with intolerances to wheat & gluten ... Glad to say none of us got sick from eating the free samples....... I'm sold and I miss using oats so I'm ordering. They say to take it very slow when adding oats back into your diet.... Of course with anything some people will have a reaction when others don't......I haven't tried their brand of oats .

mamaw

Carriefaith Enthusiast
To truly try oats safely, in my opinion, you would need to have follow-up testing done--bloodwork, biopsy etc.
I agree.

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Becky6 Enthusiast

I am feeling so good now that I don't want to risk that just for oats!

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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