Can't figure out what's glutening me

[Strongarm]

Hey friendly folks.

 

I'll start with some stats: I've been diagnosed and gluten free just over two years. Prior to diagnosis these were my symptoms: headaches, nausea, acid heartburn, loose stools, foul smelling gas, feeling emotional and very low, hunger pangs, bloating, brain fog, fatigue and tiredness, anxiety and panic attacked and an insidious blistering rash that mirrored on both hands 

 

After being gluten free, plus figuring out some sensitivities I've been really healthy and not had any symptoms unless I eat a food I am sensitive to. For example I have an intolerance to chocolate, but will sometimes have some as a treat and put up with expected symptoms.

 

For the past few weeks I've been pretty sick - I'm getting glutened symptoms and I can't figure out the root cause. The only things that changed were I added black pepper back into my diet and also changed my olive oil. I also had some haribo but from my research they're supposed to be gluten free. I'd look into it being something else but it just screams gluten to me and the itchy rash is back which only comes during a gluten episode.

 

I'm thinking about clearing house and changing pots, pans, food storage containers and tableware again. I also live alone (well with my dog who eats a raw food diet - no gluten) I just know I've been contaminated somewhere and it's really getting me down, not to mention interfering with my work because I feel so fogged and also upset. I'm making mistaking and If it carries on I fear for my job.

 

Any ideas would be welcome.

 

Take care.

 

S.

[Ennis-TX]

1 hour ago, Strongarm said:

Hey friendly folks.

 

I'll start with some stats: I've been diagnosed and gluten free just over two years. Prior to diagnosis these were my symptoms: headaches, nausea, acid heartburn, loose stools, foul smelling gas, feeling emotional and very low, hunger pangs, bloating, brain fog, fatigue and tiredness, anxiety and panic attacked and an insidious blistering rash that mirrored on both hands 

 

After being gluten free, plus figuring out some sensitivities I've been really healthy and not had any symptoms unless I eat a food I am sensitive to. For example I have an intolerance to chocolate, but will sometimes have some as a treat and put up with expected symptoms.

 

For the past few weeks I've been pretty sick - I'm getting glutened symptoms and I can't figure out the root cause. The only things that changed were I added black pepper back into my diet and also changed my olive oil. I also had some haribo but from my research they're supposed to be gluten free. I'd look into it being something else but it just screams gluten to me and the itchy rash is back which only comes during a gluten episode.

 

I'm thinking about clearing house and changing pots, pans, food storage containers and tableware again. I also live alone (well with my dog who eats a raw food diet - no gluten) I just know I've been contaminated somewhere and it's really getting me down, not to mention interfering with my work because I feel so fogged and also upset. I'm making mistaking and If it carries on I fear for my job.

 

Any ideas would be welcome.

 

Take care.

 

S.

From Haribo website
"Are your products gluten-free?

Our manufacturing facilities use different glucose/dextrose suppliers and some ingredients are derived from wheat, so despite our test of our products having shown no identifiable levels of wheat, we have made a label change to reflect that to ensure consumers’ safety."
https://www.haribo.com/enUS/contact/faq.html

But you might have gotten another intolerance/Sensitivity also.   I have so many it is quite hard to keep up with them many have conditions with how they are cooked.

If you want to play it a bit safer and test out cheaply you can try getting a set of microwave cookware cheap like Nordicware or something similar and only cook your food that way. I will atest to the grill plate with splatter cover (14usd on amazon) being great at cooking bacon, burgers, other meats. and the omelette and egg cookers are in my travel kit.

[Strongarm]

Thanks Ennis for your reply!

 

Damn I never knew that the last time I checked they emailed me saying gluten free.

 

I will order that but can't wait for it to arrive. So, I'm going to buy myself a new bowl, chopping board and lunch box - I will also go back to just eating chicken rice and veg for a while. Right now I am eating pork, chicken, ground beef mince, sweet potatoes, cabbage, leeks, carrots, kale and spinach and some basmati rice. Haven't had a problem with these foods for years. I don't eat any of the top allergen foods.

 

I also spoke to my mum who will sometimes feed my dog when I am working. She told me she'd bought and stored breaded ham in the fridge as it was more convenient for her to feed the dog. I'm thinking that could possibly of cross contaminated some of my food especially the vegetables? So I'm going to clear my fridge out and decontaminate it.

 

 

Once again thank you. It's driving me nuts recently.

[NNowak]

I, too, have the insidious itchy, blistering rash on the backs of my hands!!  Recently I’ve identified nightshades as a trigger for my celiac symptoms, including the rash. Histamines are also an intolerance now. Lectins bother a lot of celiacs, so you may want to look into that. IBS and SIBO commonly affect us, too. 
 

After 25 years of navigating this condition, I can say it’s super easy to get OCD with the thought of gluten contamination. It sounds like you’ve done everything right with regard to your celiac. Perhaps look into other food sensitivities to see if anything might apply. Definitely keep a food and symptom journal so you have clarity with your research. Not everything is because of celiac. 
 

Hope some of this helps. Be well. 

[Posterboy]

On 2/23/2020 at 1:35 PM, Strongarm said:

an insidious blistering rash that mirrored on both hands 

20 hours ago, NNowak said:

I, too, have the insidious itchy, blistering rash on the backs of my hands!!

NNowak and Strongarm,

Here are some Vitamin deficiencies that can trigger Skin Issues....

https://www.ccjm.org/content/83/10/731

I had a Riboflavin deficiency aka Pellagra Sine Pellagra where the corners of my mouth always leaked it is called Angular Cheilitis....

But when you have Pellagra...it is generally photo eruptive IE (sensitive to light or stress)....hence the classic Casal's necklace on the exposed area of the neck as it progresses.

Here is a quote from their (Cleveland Clinic's) discussion about this....and Niacin, Thiamine and Riboflavin (as well as other B-Vitamins) can continue to be low even on a gluten free diet....

"The initial stage of acute pellagra can resemble a sunburn on the face, neck, and dorsal extremities47 that becomes darker with time instead of fading.46 Sharply demarcated hyperpigmented areas on the arms and legs are known as the “glove” and “boot” of pellagra.46 Nearly all patients have involvement of the dorsum of the hand.42" .....Pellagra in Italian where it was first described means "rough skin".

I hope this is helpful but it is not medical advise.

Posterboy,

[Isablah]

Hey I know this is a year later and I hope you've figured out what was causing your issue, but something to consider would be your pepper. I've seen pepper that has anti caking agent in it - which is basically wheat.