Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lists?

happy4dolphins

Recommended Posts

happy4dolphins Enthusiast
happy4dolphins
Posted

Does anyone have a list of celiac "words" to stay away from? I"ve been making a list of them so far, but if someone else had already done it, I'd quit.

Nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

You mean ingredients to avoid? Look here:

https://www.celiac.com/st_prod.html?p_prodi...-09106100712.ea

FairySprinkle Rookie
FairySprinkle
Posted

Hi, I am looking for a list myself also. I just printed out the link with the ingredients. I am not diagnosed, yet, but I want to follow a gluten-free diet. I think I have an intolerance to gluten, but not celiac disease. We have Cream of Wheat, and I used to eat Wheat Germ with Yogurt. Since wheat is mentioned as a gluten, does that mean that for someone like me who notices that gluten food affects me, that wheat will actually do the same thing as gluten? Do you know what I mean?

My case is that I develop horrible, horrible acne or annoying tiny pimples after eating stuff with gluten. I am still keeping a food journal. I don't know if I make sense what I am asking. Is wheat really the same as gluten? Sorry if I sound like an idiot, but I am so new and trying to absorb the gluten-free diet. It's going to be a challenge following a gluten-free diet that I almost think I will have nothing to eat :).

Also is there a small booklet out there that I could carry with me to watch out for gluten ingredients?

cgilsing Enthusiast
cgilsing
Posted

Hi FS and welcome!

Gluten is a protein found in wheat, rye, and barley that is harmful to people with celiac disease. So if you ever see wheat, rye, or barley on an ingredient list then it is NOT gluten free. The problem in identifying non-gluten-free products is that at this point in time companies are not required to list those ingredients by name. A lot of time they will "hide" them in names like modified food starch, natural flavors, or spices. There are a few companies that will always list these ingredients by name (Kraft for instance). If you ever have a question about a particular food, you can call the company and 99% of the time they can clear it up for you. You mentioned that you have a skin reaction to gluten. You should see your doctor, but just so you know there is a name for skin reactions like you are descrbing. Dermatitis Herpetiformis is very common and there is a thread on this board that deals exclusively with it. I hope this helps!

Christine

FairySprinkle Rookie
FairySprinkle
Posted

Hi, thank you for explaining. I think I am going to go to a bookstore and see if I can find a book about gluten. If you recommend one, please let me know.

I learned about DH yesterday, and I read the description plus viewed pictures, but it's nothing like that. Does not look like blisters. It looks like acne, but can grow bigger in diameter, always with embarrassing pus that I get rid of with an extractor. It's so gross. It looks like a disorder. I just started to keep a log and I tried eating crackers (it has wheat and barley malt) for two days after not eating it for a long time for fear I would develop acne as I knew, and sure enough I got bad acne like 5 both mornings, especially near my ear which isn't common. So, I am noticing a pattern, especially with soup..ewww.

I was just thinking yesterday, how there should be a law to ban gluten. Reading about it and my reactions to it doesn't sound safe for ANYONE.

Could I ask you, since this is new to me :D, would I find plenty of food to eat that's gluten in the store or will I have to shop at a health food store for other things? How was your experience? Of course, you can keep the story short if you like. The next time I have to go grocery shopping, I will be reading labels :D . I am only worried I won't find much. Probably spend a little more time, but I don't care.

It's funny because everytime I see something that may contain gluten, I get this reaction inside and vision of acne erupting. I thought about this with the Cream of Wheat until now I am certain that it is best to avoid it. It's like your body has an instinct to food that won't do you good.

cgilsing Enthusiast
cgilsing
Posted

Hi FS!

I myself haven't read it :ph34r: , but eveybody says that dangerous grains is the best book out there! Apparently it really explains a lot about how glutn affects your body.

If you petition to outlaw gluten I will support you 100%! :lol: In the meantime though, you can still enjoy food on a gluten-free diet :) I remember the night I was diagnosed.....I really thought my life was over! I sat on the floor in front of my cabinet and cried! I didn't have a single thing I could cook for dinner! My husband took pity on me and grilled me a piece of corn on the cob for dinner :lol: It took a long time for me to really get used to what I CAN eat, but eventually I figured it out. You don't have to shop at the health food store. I live in a rural town and we don't have health food stores and I make it! Some things are nice to get from them if you can. Treats like cookies, biscotti, and crackers are always good finds. I also order my pasta and hamburger buns online (Tinkyada pasta is the BEST and Kinnickinnick makes really good hamburger buns!), but other than that I cook with ingredients that I buy at the grocery store. Fresh fruits and veggies are always gluten-free. Kraft products always list wheat, rye, or barley in their ingredients and then just call if you have questions about anything else. After a while you know what you can and can't have for the most part. It is hardest in the beginning.....as time goes on it just becomes routine! Good luck!

FairySprinkle Rookie
FairySprinkle
Posted

That was funny about the corn on the cob. I just read that Quaker Oats isn't exaclty gluten-free, so I am like...maybe I can have a boiled eggs? Mixed fruits. Fruits heals my skin and glows. My acne is not that bad with oats as with other things though, so I'll figure it out--but I know something's not right with gluten or wheat, etc. Thanks to Heaven I can buy at the grocery store *exhales.* I wouldn't mind buying bread or some special things online if I have to. Well, thank you, and thank you for the book--it sounds so interesting by the topic alone lol. Sounds like the book I would read. I ask the Lord to guide me and others into banning gluten. Who knows? Prayers can set off a reaction for this to happen. Well, thank you for your kind posts. God Bless you. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.