Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats Going On?!?

Moongirl

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

I stated to feel great about a month into my gluten-free diet, but 2 weeks ago i started getting there awful pains right between my ribcage down to my belly button, the pain will sometimes radiate to the sides of my ribs....I went to see my Dr and even touching that area between my ribs made it hurt. The pain comes and goes now, but still hanging around. He put my on prilosec, but i dont think thats what it is....

They did a full CAT scan of my abs/pelvic area, upper GI series Xrays, and blood tests for my liver functions...everything so far checks out ok....On top of this i lost another few pounds which i cant afford to lose. The only good thing i noticed is that my fingernails grew fast and long and they are not chipping like before, which means something is absorbing. But whats the deal with all this other stuff?!?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

I have gotten the same type of pains. However, I have in these two months been accidentally glutened. It could be an accidental glutening or it could be the body continuing to cleanse itself. With many years of gluten in our bodies it could take a fair bit of times to cleanse the body.

julie5914 Contributor
julie5914
Posted

I have heard of a lot of people getting better and then worse. I had to cut out dairy - after I ate it, esp. with acidic stuff (anything with both tomatoes and cheese was killer) I would have double over pain. Your description dounds more like an ulcer, but they would have found that in your tests. Did they test for small intestine bacterial overgrowth (h pylori)? Could be that or a problem with a food other than gluten, such as dairy, soy, corn, nightshades, or a number of other suspects.

loraleena Contributor
loraleena
Posted

First if it is heartburn do not take prilosec. Bad stuff. Try deglycerized licorice tablets by Enzamatic therapies. It helped me. Also a teaspoon of applecider vinegar before meals is supposed to help. Usually there is not enough acid rather than too much. Prilosec will only make it worse in the long run. I agree with the above post about ulcer. Gluten intolerance or celiac can set you up for bacterial problems, candida overgrowth and parasites. Good luck.

Moongirl Community Regular
Moongirl
Posted
  • Author
First if it is heartburn do not take prilosec. Bad stuff. Try deglycerized licorice tablets by Enzamatic therapies. It helped me. Also a teaspoon of applecider vinegar before meals is supposed to help. Usually there is not enough acid rather than too much. Prilosec will only make it worse in the long run. I agree with the above post about ulcer. Gluten intolerance or celiac can set you up for bacterial problems, candida overgrowth and parasites. Good luck.

Well they ruled out the ulcer, nothing in any of my test suggests that i have one...My doc suggested that i stay on prilosec....i personally dont want to, im going to see my GI today too see what he thinks....but all my blood work and tests were ok...so im not sure....??

julie5914 Contributor
julie5914
Posted

My doctor told me a good way to test if you have too much or too little acid is to take a tablespoon or two of lemo juice after you get your symptoms. If they get worse, you have too much acid. Better then too little acid. I had too much acid, despite what I have read about some celiacs having too little. The lemon juice gave me a lot more pain and indigestion that what I had before I took it. Now I take a Pepcid AC before acidic meals. Haven't tried Prilosec. I was on Protonix for a while, but insurance gave me trouble, so I gave up.

eeyor-fan Contributor
eeyor-fan
Posted
I stated to feel great about a month into my gluten-free diet, but 2 weeks ago i started getting there awful pains right between my ribcage down to my belly button, the pain will sometimes radiate to the sides of my ribs....I went to see my Dr and even touching that area between my ribs made it hurt. The pain comes and goes now, but still hanging around. He put my on prilosec, but i dont think thats what it is....

They did a full CAT scan of my abs/pelvic area, upper GI series Xrays, and blood tests for my liver functions...everything so far checks out ok....On top of this i lost another few pounds which i cant afford to lose. The only good thing i noticed is that my fingernails grew fast and long and they are not chipping like before, which means something is absorbing. But whats the deal with all this other stuff?!?

Any one who knows me, knows the hell I've been through since the beginning of Dec....Started with a bad cold, then horrable acid reflux (still fighting that), and then what they thought was a rectal prolapse...I was sent to a surgeon but the surgeon doesn't think it was a rectal prolapse but instead some sort of disfunction with the muscles in the intestines. I too have the same pain your describing and been sent for more tests/ rushed to hospital in the last 8 weeks more times than I care to account. I've come to the conclusion that doctors have no clue about anything. I think it has a lot to do with the body going into "shock" because after so many years of eating gluten and then BANG this whole food group is gone ! Anyway, I'm just biding my time because the surgeon is refering me to a colonic specialist for even more tests!

Hugs

Bridget

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Moongirl Community Regular
Moongirl
Posted
  • Author
Any one who knows me, knows the hell I've been through since the beginning of Dec....Started with a bad cold, then horrable acid reflux (still fighting that), and then what they thought was a rectal prolapse...I was sent to a surgeon but the surgeon doesn't think it was a rectal prolapse but instead some sort of disfunction with the muscles in the intestines. I too have the same pain your describing and been sent for more tests/ rushed to hospital in the last 8 weeks more times than I care to account. I've come to the conclusion that doctors have no clue about anything. I think it has a lot to do with the body going into "shock" because after so many years of eating gluten and then BANG this whole food group is gone ! Anyway, I'm just biding my time because the surgeon is refering me to a colonic specialist for even more tests!

Hugs

Bridget

OMG that sounds awful...well the lastest thing with me is the GI that dx with celiac disease, i went to him and he thinks b/c of all the inflamtion i had due to the damage and the irritation, that i could be having spasms. He said usually belly button pain is connecting with ur small intestines....and the stomach pain (which comes and goes, kind of a gnawing thing) could also be due to the same reason. he saw no ulcers/reflux in the CTscan or GI xrays....so he gave me this med called levsin...took it once, seemed to help, but the side effects were god awful for me, i would rather deal with the stomach spasms....

AND im putting 2 and 2 together here, this all started right after i ate McD's french fries, and we all know whats going on with that mess right now. OVer time though it is getting a little better, still hasnt gone away...

julie5914 Contributor
julie5914
Posted

Have you had your gall bladder checked? Sometimes they can't see it in regular scans - it is kinda hidden.

Moongirl Community Regular
Moongirl
Posted
  • Author
Have you had your gall bladder checked? Sometimes they can't see it in regular scans - it is kinda hidden.

Actually i dont have one! lol :D

had it removed 4 yrs ago

julie5914 Contributor
julie5914
Posted
:lol: That's funny. Well at least you can rule out one thing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,898
    • Most Online (within 30 mins)
      7,748
    MLucia
    Newest Member
    MLucia
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.