Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mcd Fries 2: The Phone Calls :)


ryebaby0

Recommended Posts

Rachel--24 Collaborator

I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular
I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

There are plenty of people who are totally asymptomatic yet the damage is still being done. I think the fact of whether or not you have a reaction to them cannot be used to determine whether or not damage is being done. But I agree, anyone who has had follow-up biopsies or bloodwork after stuffing their face with McD's fries for three months, I would like to hear from you!

Karen

casnco Enthusiast
I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

Great suggestion

VydorScope Proficient
If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

I can not imagine the vast quantiy of fries you would have to eat to get enough gluten to be detected in the blood test, meanwhile your eating posion. Heck even if hteres not gltuen in them, that much fires would be very unhealthy :blink::huh::blink:

No thanks! :o

casnco Enthusiast

I think the most important thing here for all of us to remember isn't if we can eat fries at McD's or not. The most important thing is make sure the information they give us is correct. I can live without fries. On the road I can stop at the convenience mart for chips. Or take fruit on trips. When I travel I can make other arrangements. I just want to know when I go into any resturant and tell them I need gluten free or I research their web site before patronizing them I learn what is correct.

Lets just start an email/letter writing campaign stateing our needs.

Becky6 Enthusiast

This is frustrating! But every time dh would take my daughter there she would have issues the next day. I think that was the problem! The other problem is that they said years ago that the beef was removed because vegetarians had a issue with that. Now it is back! Terrible!

VydorScope Proficient

I have been thinking about this, and trying to come up with a postion that supportes eating the fires... lest look at this..

POSTION ONE "I trust McDondals"

PROBLEM - Thier Website says fries contain GLUTEN, not only wheat, but gluten specficly. It says it is in the "Natural Flavoring" . Fries are also no longer on thier gluten-free menu. If you choose to trust McDonalds then you cant eat thier fries. Some ppl have been told otherwise when they called in, but I suspect that has more to do with the newness of this information then anything else.

POSTION TWO "I do not trust McDonalds"

Umm then why you eating there to begin with?

And well here I gets stuck cause every other postion falls back on these two.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
There are plenty of people who are totally asymptomatic yet the damage is still being done. I think the fact of whether or not you have a reaction to them cannot be used to determine whether or not damage is being done.

Yes, this is why I said if you *know* what your reaction to gluten is and you dont react to the fries they may be completely safe for you. If you are asymptomatic then obviously you have no idea what the fries may or may not be doing to you so in that case you'd have to make a personal decision about whether or not you're willing to risk your health over the fries.

I think it all boils down to one thing in the end....personal choice. Some people will continue to eat the fries...others wont. Without undeniable proof of gluten in the fries we really dont know enough to say with 100% certainty that the fries are going to cause damage to Celiacs. We also dont know with 100% certainty that its safe for Celiacs to eat the fries. Until we know more about it its really going to be a personal choice we'll have to make.

psawyer Proficient

Thanks, Rachel. I do react to gluten in small amounts. I have gas and explosive diarreah. I have never had a reaction after eating McDonalds hash browns or fries. That does not prove that they are gluten-free. Scientifically you can not prove a negative. But, to me, it does mean that my body does not react, so if there is any gluten it is it an extremely low level. I think that I take a greater risk of bodily harm, or death, each time I drive my car. FWIW. P.

Rachel--24 Collaborator

Thanks Peter,

This was my point exactly.

Just because you don't react to the fries doesnt prove them to be 100% gluten-free. On the other hand just because someone else does react to the fries doesnt mean they are unsafe for all Celiacs. You just gotta do whats best for you. Also someone may react to the fries for a reason totally unrelated to gluten or because that particular batch got contaminated by a nugget in the fryer.

Merika Contributor

This splitting hairs over is-the-gluten-still-there-or-not with some cooking method reminds me of the laws in Europe which say (as I understand, not living there) that anything with less than .05 somethings of gluten in it can be labelled gluten free. Hence, European wheat starch is considered gluten free because it is a high quality starch that has had 99.9% of the wheat protein removed. It is believed there that a minute amount of gluten will not harm a celiac. YMMV (your mileage may vary).

To me, it sounds like the fries are made with gluten and always were, and they're just now labelling them as such. It's also possible the supplier sends the same flavor item to packaged food manufacturing places and so is sending blanket notifications to all their customers.

I think the medical jury is still out as to how pure something needs to be for a celiac to safely eat it. Personally, I'm not going anywhere near any gluten AT ALL :o I don't care if someone says it's safe.

Merika

VydorScope Proficient
Thanks Peter,

This was my point exactly.

Just because you don't react to the fries doesnt prove them to be 100% gluten-free. On the other hand just because someone else does react to the fries doesnt mean they are unsafe for all Celiacs. You just gotta do whats best for you. Also someone may react to the fries for a reason totally unrelated to gluten or because that particular batch got contaminated by a nugget in the fryer.

Oh I agree, if your comfrotable with Mcdonalds saying there is gluten in the fries, but believe it to be low enough not to bother you (ingoring CC), then go head and eat them. In the ned its YOUR body, and has to be your descion.

Personly, my son has never not reacted to them and I refuse to do that to him, myself... I never had them while being gluten-free so I can not say for sure I guess, so I probably need edit my post where I imply other wise. Since my son reacts and he seems to get everything like that from me, I am assuming that I will also react.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.