Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! How Do I Know If The Diet Is Successful?


DianeByrd

Recommended Posts

DianeByrd Apprentice

Our family has been gluten-free for thirteen days, except for an accident four days ago (malt in the chicken broth we used for homemade soup). Our 2 1/2 year old daughter is the only one who has been tested through Enterolab. Her results indicated that she not only had antibodies for gluten but also for casein. Can I hope to see improvement without eliminating milk? How long should we be gluten-free before trying to remove milk?

When she had a trial gluten-free diet a year ago, she was also off soy because the doc thought soy was a more likely culprit than gluten. Would a soy allergy cause failture to thrive?

What about the rest of our family; my husband, our 9-year-old son, and I all have suspicious symptoms?Would it take longer for us to see results for ourselves than for our daughter? Do certain symptoms clear up quicker than others?

I really want to believe the results of Enterolab despite the doctors' doubts, but I can't feel committed to this lifestyle for the long haul without seeing positive change.

Thanks for any input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice

Have you seen any improvement at all? Is your dh still getting exposed to gluten through toiletries or supplements? If she has tested positive for casein intolerance, then milk and milk products must be removed from her diet also. Enterolab has had nothing but positive responses from other posters at this site; many trust the lab a whole lot more than their own drs. And what suspicious symptoms do your family members have? And remember, if one family member tested positive, then all the first degree relatives have a much higher chance of having celiac and casein intolerances also.

Annette

Electra375 Newbie

If she is sensitive to casein, then yes dairy needs to be eliminated to see improvements.

You can check out www.gfcfdiet.com for help in that area.

As for results -- it depends on the symptoms. My ds2's diarrhea was gone almost immediately going gluten-free, except for the accidents. His behavior was slower to change, maybe 2 wks for my noticing, then 4 wks for others to notice.

It's hard to have toddlers tell you how they feel. But what I've heard from adults is that they feel better all over in general being gluten-free, even those not sensitive to Gluten (as the case of one husband to help his wife, elderly couple).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,787
    • Most Online (within 30 mins)
      7,748

    KateR1963
    Newest Member
    KateR1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • thejayland10
      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
      interesting I did not know that was that common or could take that long.  When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing.  I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free.  Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? 
    • RMJ
      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
    • thejayland10
      Thank you for the clarifcation, how can I get to the bottom of this as to why they may be elevated even on a super strict gluten-free diet? 
×
×
  • Create New...