Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions About Entrolab?

Lollie

Recommended Posts

Lollie Enthusiast
Lollie
Posted

I've read alot about tesing and entrolab keeps coming up.... I'm wondering if you have already gone gluten-free will the test still be accurate? I really don't want to go back on gluten, the diet has shown me there is a definant correlation and i'd rather not be sick again. :unsure: But at the same time, a Dx would be helpful when I'm weak. ;) I did get blood tests done prior to going gluten-free, but my doctor sent a letter saying I was normal....

I just don't know, other than that I feel better with no gluten.

Any comments would be great!

-Lollie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lollie Enthusiast
Lollie
Posted
  • Author

I accidentally, spelled Enterolab wrong.... my bad!

-Lollie ;)

Nancym Enthusiast
Nancym
Posted

Enterolab can detect the antibodies for quite awhile after being gluten free. I had been gluten-free for about 3 months. And, of course, the DNA test isn't dependent on eating anything.

Lollie Enthusiast
Lollie
Posted
  • Author

Will it tell you if your just intolerant-or is it just indicative of celiac.

And is it expensive? I undersood that it is something you do your self? I guess I still have lots of questions!

Lollie

dlp252 Apprentice
dlp252
Posted
Will it tell you if your just intolerant-or is it just indicative of celiac.

And is it expensive? I undersood that it is something you do your self? I guess I still have lots of questions!

Lollie

I'd say it's expensive, I got almost all the tests so it cost around $400 with shipping. It definitely told me I was intolerant and since I also bought the gene testing as well, it told me I have one of the main genes associated with Celiac...that was enough for me. That cemented in my mind that I can never eat gluten again without suffering the consequences. The treatment for intolerance is the same as for Celiac in any case. You order the tests from them, they express it out to you. The gene test is done with a swab on the inside of your cheek. The others are done with a stool test which you collect in a special container. They include all the shipping materials to sent it back to them. They run the analysis and a doctor interprets the tests, then they email the results back to you.

Lollie Enthusiast
Lollie
Posted
  • Author

$400 doesn't sound so bad, if I hadn't already spent $400+ to my doc to do testing....I don't know if he even knew what to look for! <_<

Thanks for getting back to me! I guess I'll look them up on the net and see about taking care of it....And I can stay gluten-free?

-Lollie

Guest barbara3675
Guest barbara3675
Posted

Donna has done a very good job of explaing the Enterolab process to you. I did it and had been gluten-free for a while too. They got the results back to me within two weeks via email. I consider it a well spent $400 and will never eat gluten again. I do not have celiac disease/I have a gluten intolerance, but I do have a gene. I could develop full-blown celiac disease somewhere down the line if I would not eat gluten-free, and I have a granddaughter that has celiac disease. It is thought that the method of testing that Enterolab does will eventually be the gold standard for gluten intolerance and celiac testing as it is much more sensitive than testing through the blood. Barbara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lollie Enthusiast
Lollie
Posted
  • Author

Thanks! I'm going to give it a try! I appreciate all of you responding!

-lollie

Rachel--24 Collaborator
Rachel--24
Posted

Good luck!!

I got tested after 4 months off gluten and was positive in all areas but with no Celiac gene. I have 2 intolerance genes. Enterolab cannot offically diagnose Celiac...it will just tell you if you're immune system is responding negatively to gluten and if you posess the gene to develop Celaic or not.

dlp252 Apprentice
dlp252
Posted
$400 doesn't sound so bad, if I hadn't already spent $400+ to my doc to do testing....I don't know if he even knew what to look for! <_<

Thanks for getting back to me! I guess I'll look them up on the net and see about taking care of it....And I can stay gluten-free?

-Lollie

You're welcome! I feel my $400 was money well spent. I had been on a low carb diet for about 2 years so I doubt the standard blood tests and biopsies would have shown much. I'd been gluten free for a few weeks before I sent for my Enterolab tests. Their website says you can be gluten-free for up to a year I believe.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    2. Jane02
      - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to...
    3. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    4. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    5. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.