Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is A 'sensitive Stomach' Something To Worry About?


floridanative

Recommended Posts

floridanative Community Regular

I was diagnosed with Celiac last month. Since then no one in my family has been tested but I only spoke with them on the phone since I have to worry about myself for the moment. Finally this week I'm sending out letters with statistic sheets about Celiac disease included, urging my parents and siblings to get tested. And also for my sister to have her kids tested as well (neither me or my brother has kids).

Here is my question. I knew that my neice (she's 4) seems to have frequent viruses that cause some symptoms which could indicate Celiac but then they could also be just a virus (some times she runs a fever with symptoms, other times not). She started 4K this year so she is exposed to plenty of germs now. But I only found out recently that my neice has a 'sensitive stomach' to quote my sister who also told me that she (sister) actually prepares two versions of meals for her family. One for her, her husband and their 3 year old son and a more bland version for my niece. Should this be a red flag now that I've been formally dx'd with Celiac or am I just being an overly concerned aunt? Any advice would be much appreciated since I know nothing about raising children or what a 'sensitive stomach' even means. Thanks in advance if anyone can help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

I would consider it a red flag. Just make sure that they have ALL the right tests done and that she is still eating gluten. I am sure that my daughter has Celiac, but she will not get tested. My brother who is older then me and extremely intellegent, won't take the time to read "Dangerous Grains" and he shows many of the symptoms. We can lead a horse to water, but we cannot make them drink. Hopefully, your sister will listen to your concerns. {{{{{{{{{{{HUGS}}}}}}}}}}}}

jerseyangel Proficient

Hi Tiffany--if I were you, I would be concerned and urge your sister to have her tested. I had a 'sensitive stomach' as a child, too. During my teen years, it went away, and came back when I was in my 20's. I understand that such a pattern is common. I have 2 neices--one of my sisters has no children, these are both from my youngest sister. After I was diagnosed, I told her to at least tell the girl's doctor about their aunt having Celiac, and to watch out for any suspicious symptoms. If anything stood out like that to me, I would tell her to get the test done--I would not want any person to go as long as I did without knowing what was wrong. I believe that the chances increase to 1 in 39 when a second degree relative has it. (according to the U. of Chicago factsheet)

penguin Community Regular

I had a "sensitive stomach" as a child as well. I also had stomach aches and a battery of tests from which the Dr. concluded that I had a nervous stomach. And yet, here I am.

Encourage your sister to look into it, if nothing else, maybe they'll find another reason her stomach is so sensitive.

Guest nini

"sensitive stomach" boy, that is how my family used to describe ME! I would say definitely a red flag...

my sister won't get tested, and she refuses to get her kids tested either... I don't get it. Wouldn't you WANT to know?

floridanative Community Regular

Thank you for your replys everyone. Patti I actually included those UofC fact sheets (you mentioned them to me in another post) with the letters I mailed to my family members today. I highlighted the statistics you mentioned so they would not be overlooked. Hopefully when my sister gets back from vacation next week I can discuss my concerns with her in a helpful and concerned way. My sister already told me she thought she would have her doctor test her (my sister) for it before I even brought it up that family members needed to get tested. Surely if I tell her that some kids who have Celiac are thought to have 'sensitive stomachs' she'll agree to get her kids tested. I agree Nisla - I don't know why people won't get themselves and especially their kids tested. That boggles my mind.

When my sister and her kids were here to visit our new aquarium last month, my neice had fried chicken fingers/fries for both lunch and dinner and then we had pumkin bread for b'fast the next day. Well the neice had a tummy ache all morning and then was sick (throwing up) when they got to a kids museum. I think the rest of the family eventually ended up sick though so it seems that was really a virus. The kids touched aquatic creatures and then ate lunch with their hands without washing them... But then two weeks later my Mother told me my niece had another 'virus' and had to go back to the doctor. This does not seem normal to me but maybe it is. Still she needs to get at least the girl tested just to make sure it's not Celiac.

floridanative Community Regular

Update on some family members. I just found out that my nephew has some symptoms of either lactose intolerance or Celiac. My sister thought he was just lactose intolerant since he was a baby (he's 3 now) but since he's been lactose free all his symptoms did not go away. I've never heard about any of this until today. Next week the whole family is starting an unprocessed food diet (also gluten free of course since she can't grow her own wheat) for two weeks to see what happens. What should I suggest she reintroduce back into the kid's diet first - gluten or lactose?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.