Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treatment Post Glutening?


silly-yak-mum

Recommended Posts

silly-yak-mum Apprentice

Sorry if this has been posted before but I read many many posts and couldn't find any suggestions.

My son can go many months without an accidental glutening but inevitabley it happens. This last month has been tough as he's been glutened 3 times! (I think he's trying to "self select" his food and doesn't have the experience yet to find those hidden glutens.)

But, in addition to the long term effects, I feel bad that I can't ease his immediate pain. He does use Pepto Bismal now but does anyone have something that works for them? His symptoms are usually quite severe and he has to come home from school. I'd even try an old wives tale if you have one!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

There's not a lot you can do but supportive measures. Rest, easy to digest foods, ginger or mint teas, etc and plenty of water.

Canadian Karen Community Regular

When I am glutened, my heating pad is my best friend...... :D

Karen

plantime Contributor

All I can do is curl up in bed. Tiffany, how do I make ginger tea? I found some premade bags of it, but they were blended with teas I am allergic to.

Guest MyKidsMom

I find that the Aloe Vera Juice from GNC really helps with the tummy pain...I still have the brain fog, muscle and joint pain, etc. But for me the relief is instant and saves me from curling up into a ball. It is an acquired taste and I like the Mixed Berry best. Just as big a gulp as I can take and then more gulps if needed. Stay away from the flavors with pulp, too.

thomas3000 Rookie

Try alka-seltzer gold

TCA Contributor
I find that the Aloe Vera Juice from GNC really helps with the tummy pain...I still have the brain fog, muscle and joint pain, etc. But for me the relief is instant and saves me from curling up into a ball. It is an acquired taste and I like the Mixed Berry best. Just as big a gulp as I can take and then more gulps if needed. Stay away from the flavors with pulp, too.

How long does it take the joint pain to manifest itself and how long does it last? trying to pinpoint glutening....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice
All I can do is curl up in bed. Tiffany, how do I make ginger tea? I found some premade bags of it, but they were blended with teas I am allergic to.

Buy some fresh ginger root, peel it, cut in pieces, and boil in plenty of fresh water. Don't use too much at once, a few small pieces will be enough for several cups of tea. You can add your favorite tea to this, or drink it with honey, or just plain.

Pauliina

Guest MyKidsMom

My joint pain usually comes on within 4-6 hours and lasts anywhere from 4-7 days, usually the longer amount. The brain fog lasts a couple days longer than that for me.

nogluten- Newbie

Imodium works better than Pepto, but if you can get an rx I would say Robinal Forte, Symax or Bentyl really helps cramps a lot. Also if you can eat a banana and honey will soothe your stomach, along with as much water as possible. Everyone is different, but that is what helps me with Celiac and Crohn's too. When I have the joint pain I take a warm bath with epsom salt and then curl up in bed. Good luck. I hope your son is doing better.

Guest MyKidsMom

Before my gallbladder was removed I used Bentyl, too, and loved it. It was very expensive though. The warm baths are a great idea, too. I like to go to Aquasize for exercise and it feels great when I am aching.

silly-yak-mum Apprentice

As always! Thanks so much for the ideas. I will try them all!

Today is a better day - we have survived another glutening but I want to be ready for the next time.

Have a fun & healthy day!

penguin Community Regular

Bentyl is awesome!

Also, if you are throwing up and have abdominal pain that's really bad, and you can get a prescription, phenergan works well. Um, it's kind of gross to take, because it's not oral

Knocks you flat on your butt, but at least it doesn't hurt as bad :blink:

I find that laying on my back on a triangular stack of pillows helps, so does a heating pad

plantime Contributor

Thank you Pauliine.

tarnalberry Community Regular
Buy some fresh ginger root, peel it, cut in pieces, and boil in plenty of fresh water. Don't use too much at once, a few small pieces will be enough for several cups of tea. You can add your favorite tea to this, or drink it with honey, or just plain.

Pauliina

Yep. you can get bagged ginger tea that's just ginger at health food stores (I do this for work, where it isn't as convenient to use fresh ginger) or you can get ginger juice (at Whole Foods, by "The Ginger People") I like it pretty strong, and will use about four or five *very* thin slices off of a piece of ginger in a single mug of water.

Lollie Enthusiast

I do the heating pad, water, and I really like diet sprite. I have always drank it when I was in pain, prior to finding it was celiac. I like a hot shower, too! i actually have muscle relaxers that work well when I'm really sick....cramping and all. But I don't know if that would be appropriate for your son.....

Anyway, that is what works for me!

Lollie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,877
    • Most Online (within 30 mins)
      7,748

    Christian Konig
    Newest Member
    Christian Konig
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.