Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

H. Pylori


ebrbetty

Recommended Posts

ebrbetty Rising Star

has anyone had this? I'm beginning to think this may be why I'm still having terrible stomach pains, gas and burning after I eat

what where your symptoms

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



momandgirls Enthusiast

Hi - I was positive for H. Pylori about three months ago. As far as I know, I don't have Celiac though I am going to have the blood test because I feel like I have a lot of the symptoms and my daughter has it. My doctor ordered the the blood test for H. Pylori because I complained of feeling like I was being choked all the time. My doctor thought it was either thyroid disease or an ulcer that had "burned" an area in my esophagus. The choking was actually my only symptom. But, common symptoms include stomach aches, reflux and excess gas (burping). As it turned out, I was positive for H. Pylori and also positive for thyroid disease (Hashimoto's thyroiditis). For the ulcer, I was given a course of antibiotics - two weeks of antibiotics (two different types, I can't remember now what they were) with Prevacid and then an additional two weeks of Prevacid. As I recall, it took a couple weeks for the blood test results to come back. I'm not sure how much I helped but thought I'd try!

key Contributor

I asked my GI about this and he said it isn't very common in people under 50 years old and didn't recommend even testing me for it. I have been having severe heartburn. Mainly in my throat.

Prilosec is helping me for now.

MOnica

momandgirls Enthusiast

I was 41 when I had it. It's diagnosed with a simple blood test and the treatment is a two week course of antibiotics. I would think it's worth knowing for sure.

Rachel--24 Collaborator
I asked my GI about this and he said it isn't very common in people under 50 years old and didn't recommend even testing me for it. I have been having severe heartburn. Mainly in my throat.

Prilosec is helping me for now.

MOnica

Thats not true. I would get tested. Your doctor is making an assumption that you dont have something based on your age? Thats just like saying you cant have Celiac if you're overweight. I'd get tested if I were you. Its better for your health to know something like that.

I was just tested and it was negative. :)

ebrbetty Rising Star

thanks for the replies..I also have hypothyroid..years ago I had Graves.

I had a gastric emptying and was told my food digests at a slower rate than normal. I was also told by my gastro Dr that I have a distended stomach and inflamed dodium [sp] along with the borderline positive celiac blood tests. no ulcer showed during tests but He did say I have all the symptoms of an ulcer, can't eat butter, chocolate, pasta sauce, most spices and have tried most PPI'S with no help.

I think I'll call my allergist on Tuesday and see if he will take blood for H. Pylori..from what I understand pain starts a couple hours after eating, this is one of my problems.

as far as age goes, its untrue that it effects ppl only over 50, I believe your Dr is misinformed, as many of them are..my Gastro is the one who told me I could not have celiac disease because I don't have diarrhea :huh: a couple days later the blood test came back borderline positive [drawn by my primary care Dr]

jkmunchkin Rising Star

I had actually self diagnosed myself with this a couple of years ago and it was confirmed with blood test and then an endoscopy. Actually this is a bit of a sore spot because the GI who did the endoscopy on although he noted there was something "funny looking" with my small intestine he didn't biopsy it. So I really should have had my celiac diagnosed atleast 2 years prior to when I did.

However I digress. It consisted of very sharp, painful stomach pains. Like someone was punching me in the stomach. If your blood tests positive for the H Pylori, definately make sure you have the endoscopy before you start the medication because trust me, you do not want to take it if you don't definately have it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ebrbetty Rising Star

I thought the medication was triple therapy? just 3 different antibiotics..are there side effects? at this point anything would be better than the pain I get 2 hours after every meal

Guest cassidy

I had surgery for reflux when I was 11. It came back a year ago and I've been on heartburn medicine every since. I had an endoscopy and they said the previous surgery had come undone. I didn't like that gi doc and went back to my primary care doctor. He did an H. Pylori test and I was positive. The weird thing is that I had the endscopy two weeks prior and the H. Pylori biopsy was negative and I had a blood test for it 4 days prior and that was negative so I don't know how it could have caused my symptoms for the last year.

I am almost done with my antibiotic. I only had one, but it caused nausea, stomach pain, and tons of gas. I felt like I was back on gluten. The symptoms have gotten better over time, I only have 3 days left to take. I don't have an ulcer or any symptoms that haven't cleared up with the gluten-free diet except heartburn, confirmed by my two recent endoscopies. I'm hoping this was my problem and I don't need surgery again, but it doesn't make sense.

H. Pylori doesn't cause reflux. It actually reduces the amount of acid that your stomach produces, so if anything, you should have less heartburn when you have the bacteria.

It is also contagious through saliva and other bodily fluids. I asked my doctor if my husband should be checked and he said he never thought of that. I figure if he has it and gives it back to me, what was the point of treating it.

momandgirls Enthusiast

My treatment was called PrevPak. I did not have an endoscopy (and nor was it suggested). I only had the blood test. The PrevPak comes in one big box. It consists of two antibiotics and a bunch of Prevacid and everything is marked clearly. You take two antibiotics and and a Prevacid twice a day for two weeks. After that, you take Prevacid twice a day for two more weeks. The only side effect I had was nausea (not terrible but annoying) but I get nausea every time I take an antibiotic for any reason.

Oh, I forgot to add...H. Pylori is the name of the bacteria that causes certain types of ulcers which, in turn, cause sore spots in the lining of your stomach. If the problem is an ulcer, you would, typically, have pain within minutes of eating or drinking something (even water). So, if you're having pain two hours after a meal, it actually doesn't sound like an ulcer. However, to be on the safe side, I would have the blood test anyway. After all, I didn't have the typical symptoms and ended up positive anyway! Good luck.

jkmunchkin Rising Star
I thought the medication was triple therapy? just 3 different antibiotics..are there side effects? at this point anything would be better than the pain I get 2 hours after every meal

I don't remember exactly what the different medications where but yes there were 3 different types of antibiotics (but 4 pills) that I took 2x a day. One tasted like ass (and that taste would stay with me all day), and I know atleast one of the pills was a really high dose of penicillin. Side effects doesn't begin to describe what I had. I literally couldn't eat anything for the entire week I was taking the medication. You are supposed to take it for 2 weeks, but after taking it for a week I broke out in huge hives from neck to toe, that even the doctor jumped back when he saw them. They think my body most likely couldn't stand the high doses of penicillin even though I've never been allergic to any medications or penicillin before.

But that wasn't the worst part. If food even touched my lips - rice a banana, anything - I was running for the bathroom. I think I lost about 10 lbs. in that 1 week. By day 3 my clothes were falling off of me. (I'm really thin to begin with so this was not a good thing). The doctor told me I could take 1 Immodium and that should help. Well that only made things worse because then I had a combination of DH one minute and the next I was all backed up. I am not a whiner or a cryer. I wore a back brace for 23 hours a day for 4 years and never once complained, I broke my collar bone and didn't cry... with this, it literally got to the point that I was sitting at my desk at work and just started hysterically crying I was so miserable.

But apparently everyone reacts differently to the meds because momandgirls seemed to have very little side effects.

And yes as far as age goes with this, that is untrue. I was 26 when I had H-Pylori. And I also, didn't quite have an ulcer yet, but was told I was well on my way. I think the meds helped that though.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.