Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Survival Kit


Guest nini

Recommended Posts

Guest nini

After 3 years of this, I have put together a large zip file of lists and articles that are very helpful to the newly diagnosed celiac.

If you are interested in having a copyof this survival kit e-mailed to you

PLEASE E-MAIL ME AT nisla@comcast.net

in the subject line put "Request Newbie Survival Kit"

this is a large file and it's just helpful stuff I have compiled over the past three years. It includes the Delphi list and several Restaurant menus, School supplies, Candy, articles, information that you can print out and share with others to help explain this diet and the reason for it.

If you have a cable modem it will be a fairly quick download, but if you are on dial up, be prepared to let it sit for a while!

disclaimer:

I did not come up with this info all by myself, I've compiled it with the help of other helpful celiacs over the past two years, and it's all been helpful to me. Also, this file is just a guideline, as always you will need to make your own decision on what works for you and what doesn't.

also, it's a zip file so you will need a program like pk unzip to open it... or any program that opens up archived files.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jaten Enthusiast

Request has been sent. Golly so many great folks here.

I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

minibabe Contributor
I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

That is all I have recieved.....except from doctors <_<

I love everyone here! It is such an amazing website :D

Amanda NY

Guest nini
Request has been sent. Golly so many great folks here.

I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

it's my pleasure to help... I relied on the kindess and generosity of others when I was first dx'ed too...

Guest nini

bump... just in case any newbies haven't seen this...

ebrbetty Rising Star

nini...how kind of you..I wish someone offered this to me last month. your always so helpful

Lisa Mentor

:):):) That is really cool. I sure wished that I had that in August. I know that it will be a great help to all the newly diog. Kinda pay it forward. Very cool. Thank you for your time to do this.

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 months later...
Chako Apprentice

What is the Delphi list?

And would this survival kit be good for a Canadian? :)

Lister Rising Star

not a newb but still could be helpfull, i dont need the delphi lists though but anything else is kewl

Guest nini

Lister, I thought I already sent you this... But maybe it was just the delphi lists... I'll send it again.

What is the Delphi list?

And would this survival kit be good for a Canadian? :)

I suppose so, just e-mail me at nisla@comcast.net and in the subject put "request newbie survival kit" and I'll send it... and you can judge for yourself if it's useful for a Canadian...

Kaycee Collaborator

Nisla, I am a New Zealander, (have only been diagnosed since February) so not too sure how much of the kit would be useful, but would like to have it sent to me.

The gluten free forum has been a life saver and wonderful to follow, and I am getting to feel I know quite a few of you all.

Your picture is a bit scary, but hey you obviously have a heart of gold. And when I see your picture with your piece of advise it is comforting.

I must admit that when first diagnosed, I thought coeliac would be a piece of cake, and that with everybody saying to watch this and watch that, I thought they were being a bit too severe. But hey, everybody was right, and I do have to be that careful. I never would've thought I would 've been so sensitive. Most of my immediate family have cast iron stomachs, and I was so used to having quite good health, apart from the diahrea. But now I have arrived here to where any little bit of gluten manages to keep me grounded for a few days, it is quite scary.

This sight is proving to me that I am now on the right track for me, trying to eliminate all manufactured products, and start mostly from scratch. I don't need the treats, as they are not always weight friendly, and I do carry a bit of excess weight. But sometimes I tend to push the boundaries, and that is when I get unstuck, and get to know the loo intimately again, but I am determined to get past that.

I'm quite proud to say, last night was my first dining out in a restuarant for a few months, it was my 49th birthday, and I am happy to say, I survived without any reactions what-so-ever, but I did push boundaries, luckily nothing untoward happened.

Thanks again Nisla.

Daxin Explorer

Bump. Do not need the kit. Just trying to help all those other newbies out there who may be looking for answers.

Guest nini

Kaycee, I got your e-mail, you should have the kit by now... thanks for your comments!

  • 4 weeks later...
Guest nini

Open Original Shared Link

Attention!!! I now have uploaded the Newbie kit to my website! Click on the above link, scroll down until you see the link for Newbie Survival Kit, you can then just simply download it on your own computer!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kathleen Mostek replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      26

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    4. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      15

      Related issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,486
    • Most Online (within 30 mins)
      7,748

    Maureen vanheusen
    Newest Member
    Maureen vanheusen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Kathleen Mostek
      I have had low Vit D for years before my Celiac diagnosis. I recommend Nature Made, it’s everywhere. GET THE TABLET, not the oil based capsule. The soy oil in the capsules give me diarrhea!
    • catnapt
      ack!! seriously???  just googled all the different things I ate Milky Way: Contains barley malt and is not gluten-free. Krackel: Contains barley malt.   good grief 
    • catnapt
      oh I forgot I also had some Doritos (those are corn chips aren't they?)
    • catnapt
      I'm not yet diagnosed, seeing a GI March 4th I'm keeping a food diary and yesterday I went to play cards at a friends house and ate things I don't ordinarily eat- mainly a bunch of those mini chocolates that ppl typically give out at Halloween (hershey kisses, mr goodbar. milkway, snickers) I ate er... too many.  also had a tiny bit of some kind of creamy salad dressing on raw veggies.  I had SOO much pain last night in my feet- burning, numbness and pain in my feet and ankles, and a bit less so in my knees. Lasted for hours, kept me up half the night at the same time, the trouble with constipation that I've had ever since being put on the chlorthalidone, has started to improve but then gets worse again...and I can't figure out what is making it worse and what is helping it   it is like my entire digestive tract just shuts down.   Before finding out that I may have a renal calcium leak, I did not use fortified plant milks and did not consume dairy. Since being told to consume 1000-1200 mgs of calcium from food per day- I switched to fortified soy and almond milk and added some non fat or low fat plain yogurt (It is very hard to get that much  calcium from other sources without eating an enormous amt of food- I'm 70 and just can't eat that much. I'm already seeing my weight creep up which is disturbing)   I am seeing that ppl with celiac can have issues with dairy- what would those issues be? Did I get glutened yesterday unknowingly or does chocolate or that tiny bit of salad dressing I had have gluten in it?   My feet are fine this morning! thank goodness but the pain was excruciating last night.   I don't know what to do.  I am thinking that I should ditch the dairy  (which I never really wanted to consume in the first place) and maybe anything with calcium carbonate in it (that is very constipating for me) not only has my GI system slowed down, my stools are strange-  round and often float. This so so different from what used to be my normal (on the Bristol stool score it was in the ideal range) I will go several times a day - these meatball sized round floaters I don't know if I'm still dealing with the after affects of the chlorthalidone (which has a very long half life- my last dose of that was Feb 9th or 11th - I'll have to look that up but I think it's been almost a week.   I just want all this pain and discomfort to stop. but I don't know where it's coming from. those 12 days on gluten have just wrecked my whole system it seems.   any ideas what I might do to help things get back to normal?
    • Jmartes71
      No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because its going to be same thing around here.i just feel lost and in tbe medical file they are writing what ever and its really not ok. In fact i dont want to go unless they record the conversation. Yes its that bad.im only having  care and concern for my ms whose Not part of the same health association that pcp and gi are with.I will have to look into changing to another. Mayo clinic is great but its the celiac, sibo, ect and all related issues that need addressed but current " careteam says call when needed. No plans of scheduled dates
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.