Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do They Give Children Biopsy? Also, Been Glutened ...


frustratedneicey

Recommended Posts

frustratedneicey Apprentice

Hi everyone. My 17-year-old daughter is going to have a "Celiac Panel" run on her today at the lab. Do you know if a child comes up for showing they have Celiac, do they do the biopsy, or do they just recommend they start the diet?

Also, I somehow got glutened and was up at 2 am very very sick, and in horrible pain. I will vomit when I have this intense pain. The doctor says that children with Celiac throw-up and it is unsual for adults, but I am very CLEARLY vomitting when I am glutened. Does anyone else (adult) have really violent vomitting episodes with diarrhea when they are glutened....

Great,,, here I go again, back to another month or two of diarrhea and loud bowel sounds until I heal.

And I STILL don't know what I ate!!!!

Denise


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

it depends on your doctor and the circumstances. 2 of my children had biopsies, the 3rd did not.

christine

penguin Community Regular

Does depend on the Dr. I would say that if you're celiac and your child has positive bloodwork, they'll probably forgo the endo.

On the vomiting, horrible pain, big D and all, yes. I have that, they never could figure out why or what it was. I've always had a sensitive stomach, and I throw up over nothing.

Even as a kid, I would wake up in the middle of the night about once a month, throw up, and go back to bed. Made no sense. Since being an adult, it's about the same, but with horrific pain.

Since I haven't been off gluten very long, I don't know if it's due to glutening or not, but it would make sense. I generally have to take phenergan (not orally :o ) when it happens. It helps a lot.

frustratedneicey Apprentice
Does depend on the Dr. I would say that if you're celiac and your child has positive bloodwork, they'll probably forgo the endo.

On the vomiting, horrible pain, big D and all, yes. I have that, they never could figure out why or what it was. I've always had a sensitive stomach, and I throw up over nothing.

Even as a kid, I would wake up in the middle of the night about once a month, throw up, and go back to bed. Made no sense. Since being an adult, it's about the same, but with horrific pain.

Since I haven't been off gluten very long, I don't know if it's due to glutening or not, but it would make sense. I generally have to take phenergan (not orally :o ) when it happens. It helps a lot.

Thank you. I just called my doctors office and left a message for him to give me a prescription for when this happens. Doesn't happen too much anymore, but ya know how people say you forget the pain of having a baby? well......I remember it well when this happens, it is absolutely unbearable.

Denise

cmom Contributor

Yes, I also had uncontrollable diarrhea and when it reached a certain point, vomiting as well. :ph34r:

mamaw Community Regular

My two grandchildren had the bloodwork done then the four year old had the endo and the colonoscope done. It ended up with one intolerant and the four year old full blown celiac's....

Mother is full blown celiac. I'm intolerant.

We are grateful to find out why our daughter and son were so sick for so long.After an adjustment period all is doing well....

mamaw

celiac3270 Collaborator

Children absolutely have biopsies. Now, if you had a 1-2 yr. old, then one would not have a biopsy, but at that age you couldn't reasonably test through bloodwork, either. I've had three biopsies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

my daughter did not have a biopsy... with me having Celiac and her positive dietary response and the fact that when she gets glutened she reacts horribly, we know she's Celiac as well.

One of my main symptoms before dx was vomiting and diarrhea. I would be in my dr.s office at least once or twice a week with horrible diarrhea and I would even be vomiting in the sink in the dr.s office while I was there. That is one of my first symptoms when I get accidentally glutened... I get D and vomiting at the same time... Very uncomfortable! :blink:

fisharefriendsnotfood Apprentice
Children absolutely have biopsies. Now, if you had a 1-2 yr. old, then one would not have a biopsy, but at that age you couldn't reasonably test through bloodwork, either. I've had three biopsies.

I had one when I was 2.

-Jackie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748

    dalimoda
    Newest Member
    dalimoda
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.