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DJFL77I

just found out i have gluten allergy

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I was recently diagnosed with Gastritis... and in the Biopsy they found Gluten allergy...  not sure if its celiac disease yet or just an allergy?  there's a difference right? going to Doc in a few days..

anyway, I woke up one morning on FEB 9'th... and started having upset stomach issues.. went to Gastro Dr.. sent me for a CT scan of my entire abdomen..... then this month finally had an Endoscopy.. Dr found mild Gastritis and the biopsy shows Gluten allergy.. I also have been feeling tension in front of my head and a bit dizzy / off balance feeling.. I believe that's also a symptom of Gluten Allergy?   

 I'm cutting gluten completely now...

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A biopsy is how celiac disease is diagnosed, rather than an allergy. It’s also possible they diagnosed you with gluten sensitivity, but you should find out for sure and let us know.

You may want to discuss your results with your doctor before going gluten-free to be sure that all the tests they want done are completed, as you could get false negative results if you go gluten-free too soon.


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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Definition of Gluten Allergy - Gluten Intolerance

Gluten allergy is a widely used term referring to Gluten sensitivity (the inability to fully digest gluten). A few Gluten sensitive people test positive for the Celiac Disease biopsy, and so are called Celiacs (~0.5% of the population).

But most Gluten sensitive people return negative or inconclusive results from a Celiac biopsy test. A more appropriate term for these people is Non-Celiac Gluten Sensitive (NCGS)

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I also read that Celiac disease is hereditary, meaning that it runs in families....  But I've never had anyone in my family that has had it.

Celiac disease tends to cluster in families. Parents, siblings, or children (first-degree relatives) of people with celiac disease have between a 4 and 15 percent chance of developing the disorder. 

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16 minutes ago, DJFL77I said:

I also read that Celiac disease is hereditary, meaning that it runs in families....  But I've never had anyone in my family that has had it.

Celiac disease tends to cluster in families. Parents, siblings, or children (first-degree relatives) of people with celiac disease have between a 4 and 15 percent chance of developing the disorder. 

I am the first person who has been diagnosed with celiac disease.  Hereditary means that there are specific genes associated with celiac disease.  Many people have the genes, but only a few actually develop celiac disease.  Because researchers know about these genes, they have determined that only 20% of celiacs are actually diagnosed.  Like I know that I have family members who have it, but the thought of giving up bread is just to horrible for them to contemplate. 
 

Mayo Clinic recently came up with a much higher number than 4 to 14%.  They say it is 44%!  Know that some celiacs display no symptoms at all.  So you just never know.  
 

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/

 


Non-functioning Gall bladder Removal Surgery 2005

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Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

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Allergies and Food Intolerances

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so got back from Dr...  confirmed celiac ..  because damage to the little things in Biopsy...   dr said they heal up in a few weeks when off gluten 100%... but I'd probably think a few months...

going to a referred Dietitian next week..

also said to start taking a men's multi vitamin...

taking bloodwork to see about vB12 and Iron...

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Welcome to the club! 😉

For some people villi recovery can take up to two years, but as you know the important thing is that your diet is 100% gluten-free from now on, otherwise you will have setbacks and it could take longer.

 


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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Given some of the horror stories I've seen over the years, it's far better that you know about this and treat it than continue eating gluten and not know about it. Here are some things that will be helpful:

 


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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