Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

just found out i have gluten allergy

DJFL77I
 Share

Recommended Posts

DJFL77I Experienced
DJFL77I
Posted

I was recently diagnosed with Gastritis... and in the Biopsy they found Gluten allergy...  not sure if its celiac disease yet or just an allergy?  there's a difference right? going to Doc in a few days..

anyway, I woke up one morning on FEB 9'th... and started having upset stomach issues.. went to Gastro Dr.. sent me for a CT scan of my entire abdomen..... then this month finally had an Endoscopy.. Dr found mild Gastritis and the biopsy shows Gluten allergy.. I also have been feeling tension in front of my head and a bit dizzy / off balance feeling.. I believe that's also a symptom of Gluten Allergy?   

 I'm cutting gluten completely now...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

A biopsy is how celiac disease is diagnosed, rather than an allergy. It’s also possible they diagnosed you with gluten sensitivity, but you should find out for sure and let us know.

You may want to discuss your results with your doctor before going gluten-free to be sure that all the tests they want done are completed, as you could get false negative results if you go gluten-free too soon.

DJFL77I Experienced
DJFL77I
Posted
  • Author

ok

DJFL77I Experienced
DJFL77I
Posted
  • Author

she said "Gluten Allergy"...   

DJFL77I Experienced
DJFL77I
Posted
  • Author

Definition of Gluten Allergy - Gluten Intolerance

Gluten allergy is a widely used term referring to Gluten sensitivity (the inability to fully digest gluten). A few Gluten sensitive people test positive for the Celiac Disease biopsy, and so are called Celiacs (~0.5% of the population).

But most Gluten sensitive people return negative or inconclusive results from a Celiac biopsy test. A more appropriate term for these people is Non-Celiac Gluten Sensitive (NCGS)

Scott Adams Grand Master
Scott Adams
Posted

So a gluten allergy would not be diagnosed with a biopsy, but celiac disease can be. I would ask your doctor to send you your test results. 

DJFL77I Experienced
DJFL77I
Posted
  • Author

ok I'll wait and see... but i find it odd that they wouldn't have just said celiac disease rather than gluten allergy...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DJFL77I Experienced
DJFL77I
Posted
  • Author

I also read that Celiac disease is hereditary, meaning that it runs in families....  But I've never had anyone in my family that has had it.

Celiac disease tends to cluster in families. Parents, siblings, or children (first-degree relatives) of people with celiac disease have between a 4 and 15 percent chance of developing the disorder. 

cyclinglady Grand Master
cyclinglady
Posted
16 minutes ago, DJFL77I said:

I also read that Celiac disease is hereditary, meaning that it runs in families....  But I've never had anyone in my family that has had it.

Celiac disease tends to cluster in families. Parents, siblings, or children (first-degree relatives) of people with celiac disease have between a 4 and 15 percent chance of developing the disorder. 

I am the first person who has been diagnosed with celiac disease.  Hereditary means that there are specific genes associated with celiac disease.  Many people have the genes, but only a few actually develop celiac disease.  Because researchers know about these genes, they have determined that only 20% of celiacs are actually diagnosed.  Like I know that I have family members who have it, but the thought of giving up bread is just to horrible for them to contemplate. 
 

Mayo Clinic recently came up with a much higher number than 4 to 14%.  They say it is 44%!  Know that some celiacs display no symptoms at all.  So you just never know.  
 

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/

 

DJFL77I Experienced
DJFL77I
Posted
  • Author

so got back from Dr...  confirmed celiac ..  because damage to the little things in Biopsy...   dr said they heal up in a few weeks when off gluten 100%... but I'd probably think a few months...

going to a referred Dietitian next week..

also said to start taking a men's multi vitamin...

taking bloodwork to see about vB12 and Iron...

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the club! 😉

For some people villi recovery can take up to two years, but as you know the important thing is that your diet is 100% gluten-free from now on, otherwise you will have setbacks and it could take longer.

 

DJFL77I Experienced
DJFL77I
Posted
  • Author

thanks you have a pretty crappy club

Scott Adams Grand Master
Scott Adams
Posted

Given some of the horror stories I've seen over the years, it's far better that you know about this and treat it than continue eating gluten and not know about it. Here are some things that will be helpful:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,231
    • Most Online (within 30 mins)
      7,748
    ethan710
    Newest Member
    ethan710
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Abscesses on legs

      By knitty kitty · Posted

      Welcome to the forum, @LookingForAnswers101, I had similar experiences with boil outbreaks in the same areas.  Mine was caused by Candida Albicans and eating a diet too high in sugar and simple carbohydrates.   Candida is a yeast infection, so the antibacterial wash is not going to help.  I had to change my diet to a Paleo diet before it went away.  If I consume high levels of sugar or other simple carbohydrates (rice, corn, dairy, etc.), boils would occur at pressure points like the groin and back of the legs.  Your doctor might be able to prescribe an antifungal medication, but some of those antifungal medications destroy thiamine.  Thiamine is needed to keep fungal and bacterial infections in check.  I took Thiamine in the form Benfotiamine, but TTFD (tetrahydrofurfuryl disulfide) will work, too.   Thiamine, and the other B vitamins, especially Niacin and Biotin, along with Vitamin A, Vitamin C, and Vitamin D will help keep skin healthy.  Be sure to address these nutritional deficiencies that occur with Celiac! Ask your doctor to rule out autoimmune hidradenitis suppurativa (HS) and Human Papilloma virus, too.   Hang in there!  You'll get over this rocky patch of the journey!  Best wishes!
    • Scott Adams
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Scott Adams · Posted

      As I mentioned, gluten intolerance encompasses more than just those with celiac disease, and in the past was used more like the term "gluten sensitivity" is used today.
    • Scott Adams
      Abscesses on legs

      By Scott Adams · Posted

      By the way, have you been diagnosed with celiac disease, and if so, are you on a 100% gluten-free diet?
    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I haven’t had any noticeable reactions to salt so I will continue using it. I think I just freaked out when I realized this but it doesn’t cause me any discomfort- so thanks!
    • plumbago
      Abscesses on legs

      By plumbago · Posted

      Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your question was regarding gluten, and you've gotten a couple of other follow up questions and answers that are good, including the idea to keep a food diary. Let us know if we can help further or answer any other questions. I'm sorry you're going through this, it sounds very painful.
×
×
  • Create New...