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New Doctor What To Test For ?

DonnaD

By DonnaD
in Doctors

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DonnaD Apprentice
DonnaD
Posted

Hello everyone.

I have decided to pay to see yet another doctor.

edited

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tiredofdoctors Enthusiast
tiredofdoctors
Posted

I am NOT a doctor, but these are the minimum tests I would request:

SMA 18

TSH

T3

T4

Thyroid antibodies

(I think Sedimentation rate is in the SMA 18)

Rheumatoid Factor

IGg

IGa

Anti-Transglutaminase antibodies (don't know the abbreviation)

Anti-Emdomysial Antibodies

Antigliadin antibodies

Anticholinesterase Antibodies

Brain MRI

Don't know if this is all-inclusive, but I hope it helps . . . it may be a start, and someone else on the forum can add . . . . Good luck to you, Lynne

DonnaD Apprentice
DonnaD
Posted
  • Author

Thanks Lynne

.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I'm glad you got some positive results! Good luck to you . . . Keep us posted as to what the findings are!

heli Newbie
heli
Posted

Donna - I also was misdiagnosed for 50 years. I diagnosed myself and was confirmed by a lab. I suspect all of your symptoms are food reactions triggering an autoimmune response. The suggested blood panel would cover a lot of issues but why? You already know that you have celiac disease - of course you have a leaky gut! You also may know that gluten intolerance is associated with thyroid disease so maybe you need to confirm that. New research in arthritis links it to a nutritional deficiency of a vital plant sugar (search: sugar printing in the UK).

I would recommend IgG delayed food allergy testing and know for sure what other foods are causing reactions in your body. I had this testing done and I was stunned to realize that grapes of all things were triggering my migraines!

DonnaD Apprentice
DonnaD
Posted
  • Author
Donna - I also was misdiagnosed for 50 years. I diagnosed myself and was confirmed by a lab. I suspect all of your symptoms are food reactions triggering an autoimmune response. The suggested blood panel would cover a lot of issues but why? You already know that you have celiac disease - of course you have a leaky gut! You also may know that gluten intolerance is associated with thyroid disease so maybe you need to confirm that. New research in arthritis links it to a nutritional deficiency of a vital plant sugar (search: sugar printing in the UK).

I would recommend IgG delayed food allergy testing and know for sure what other foods are causing reactions in your body. I had this testing done and I was stunned to realize that grapes of all things were triggering my migraines!

Hi Heli

You are right, I have pretty much diagnosed myself. I did have Igc testing in 2003 and it came up wheat, milk, & cashew nuts (which i don't eat anyway). I need a correct medical diagnosis if I have a thyroid problem that needs treatment also I am moving to another country soon and don't want a new Doctor thinking I'm a self diagnosed food allergy freak! My GP is determined that the cause of all my problems is depression/low seratonin so more prozac. The NHS would rather stuff people full of drugs than spend money actually finding out the causes of illness. I am so glad I have private health insurance now. It will also help my family who don't have insurance to get the correct treatment as their doctors will have to finally listen.

I will look into the sugar link,

Donna

thomas3000 Rookie
thomas3000
Posted

Donna,

Go to biohealthinfo.com. They are number 1 for celiac patients and check out the thread for the Radio program on gluten intolerance. A regular MD is not educated in these matters. You need a biohealth doc to check for infections and other things...Hope you call them!!!

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DonnaD Apprentice
DonnaD
Posted
  • Author

Hi thomas, interesting site but I needed a UK based doctor who my regular GP and my new one when I move would respect the opinion/test results of without question. I checked out a lot before choosing him!

Avon Complementary Medicine is the central office for the practices of Dr David Dowson, a specialist in Complementary Medicine.

Dr Dowson was a general practitioner near Bournemouth for over twelve years, during which time he incorporated complementary methods within his practice, mainly acupuncture. His increasing interest in complementary methods of treatment led to him founding the British Medical Acupuncture Society in 1980, which now has over 1000 members.

From 1984 to 1993 he was a partner at the Centre for the Study of Complementary Medicine, Southampton. He has written extensively on complementary medicine, including being the co-author of two books and contributor to others, including the Readers Digest Family Guide to Alternative Medicine.' In addition he has done research, subsequently published, mainly in environmental medicine. He has a particular interest in the treatment of M.E., and conducted research which demonstrated the most effective treatment for this condition so far discovered.

As well as his clinical commitment, Dr Dowson teaches acupuncture, homoeopathy, and allergy to fellow doctors, physiotherapists and to veterinary practitioners. He lectures extensively, particularly on M.E., and has advised the House of Commons, M.P., and the Select Committee of the House of Lords on Complementary Medicine.

Dr Dowson considers that his treatment is primary through "Biological Therapy". This is treatment designed to encourage the body's natural healing and defensive mechanisms."

Open Original Shared Link (this one is on ME )

Donna

  • 3 weeks later...
DonnaD Apprentice
DonnaD
Posted
  • Author

The leaky gut test showed Decreased permeability and malabsorbsion not a leaky gut after all! I'm havn't managed to find much information on this on the net, it does seem a bit odd considering that I don't actually look mal nourished, sadly I could could do with losing weight.......

I'm not seeing the Doctor until the end of the month when all the rest of the results will be back too.

The tyroid results were: Free T4 11.5 pmol/l ref (*--) (9.14 - 23.4)

Free T3 3.5 pmol/L (-*-) (2.23 - 5.34)

TSH 1.42 uIU/ml (*--)(.49 - 4.67)

Thyroid antibody profile - negative

Zinc 66 ug/dl 75-130

10.1 11.5 -20.0

All the other minerals were within limits, I don't know why there are 2 results for Zinc. My B12 was a bit low at 400. I'm still awaiting the adrenal saliva 4 tests results.

Perhaps I have celular resistance??? any ideas experts????

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Son's legs shaking

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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