Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Sensitive And Lactose Intolerant?

CMCM

By CMCM
in Coping with Celiac Disease

Recommended Posts

CMCM Rising Star
CMCM
Posted

I always figured I was lactose intolerant because you can read about it so much, and there are lactaid pills, etc. Supposedly 75% of people actually are lactose intolerant! So in the process of my celiac testing I find out I'm also casein sensitive. Now I'm wondering if I could actually be BOTH at the same time??? And how would one figure this out?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted

I'm definitively both, I react to products that don't have casein but have lactose added to them as sweetener, and I also react to products that are lactose free but happen to have casein in them. But if you're casein intolerant, you need to avoid all dairy anyway, so I don't quite see why you would need to know if lactose is also a problem or not? Is there some product you would like to continue eating that only has lactose in it?

Pauliina

kabowman Explorer
kabowman
Posted

I am both casein and lactose intolerant. I avoid all dairy. An easy way to test is to eat dairy, take the lactaid pills and if you don't react, you are probably not casein intolerant (from what I have read before on the boards). The pills never helped me and I gave all dairy up before learning that there was even a difference except I could not eat ANY dairy. Stay away from goats milk if you are casein intolerant too - learned that one the hard way.

aikiducky Apprentice
aikiducky
Posted

Actually I seem to be fine with moderate amounts of hard matured goats cheese. Goats milk not, because of the lactose in it, but goats cheese doesn't, and the protein seems to be different enough for me to tolerate it.

Pauliina

Mango04 Enthusiast
Mango04
Posted

I always thought I was intolerant to both. I haven't experimented much with dairy since eliminating gluten from my diet though, so I'm not sure anymore. I can seem to tolerate raw goat cheese, but that's about it so far. I did try rice cheese with casein but that definitely gave me a reaction.

slpinsd Contributor
slpinsd
Posted

I am both as well!

BamBam Community Regular
BamBam
Posted

I always thought I was just lactose intolerant, so I would take pills whenever I ate dairy, sometimes they helped and sometimes they didn't. Ice cream and milk were always killers for me regardless. I could eat the dariy queen ice milk a little better. I continued drinking lactose free milk, eating rice cheeses and other items like yogurt. The one thing that was happening to me as a reaction, was I was constipated/irregular all of the time, meaning I wouldn't go for days and days. Jenvan challenged me to give up all dairy to see if that would help. One month later and I am feeling a whole lot better about myself and my body is responding so much better. I am no longer bloated up either. I really miss my rice cheeses, it's like I have to learn how to cook all over again. Giving up gluten was hard, and now all dairy. But if I feel better, than that is all I need!

BamBam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CMCM Rising Star
CMCM
Posted
  • Author

I guess it's a moot point for me...because yes, due to being casein sensitive that's the end of it, I shouldn't eat dairy. I was just wondering about it, though. And I have to say lactaid pills may have helped a bit in the past, but not entirely. I'm actually finding that the dairy restriction is perhaps harder than the gluten one. Gluten and dairy really wipe out a huge proportion of food I can eat. :angry: Sometimes I feel like I don't even care about eating anything any more, I wish I could just take some sort of pill to feed my body but dispense with the actual eating, which is getting pared down to plain meat, plain veggies, certain fruits, eggs. That's about it for me, I guess. :(:(:(

Felidae Enthusiast
Felidae
Posted
I guess it's a moot point for me...because yes, due to being casein sensitive that's the end of it, I shouldn't eat dairy. I was just wondering about it, though. And I have to say lactaid pills may have helped a bit in the past, but not entirely. I'm actually finding that the dairy restriction is perhaps harder than the gluten one. Gluten and dairy really wipe out a huge proportion of food I can eat. :angry: Sometimes I feel like I don't even care about eating anything any more, I wish I could just take some sort of pill to feed my body but dispense with the actual eating, which is getting pared down to plain meat, plain veggies, certain fruits, eggs. That's about it for me, I guess. :(:(:(

I agree that cutting out dairy is more restrictive than cutting out gluten. It is rather sad because I love cheese.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.