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Hidden Gluten

Guest cassidy

By Guest cassidy
in Coping with Celiac Disease

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luvs2eat Collaborator
luvs2eat
Posted

It was finding out that some brands of sour cream contain modified food starch that made me realize that I have to read EVERY SINGLE LABEL, EVERY SINGLE TIME!!!

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Matilda Enthusiast
Matilda
Posted

..

ehrin Explorer
ehrin
Posted
Carbon-less copy paper. I really started feeling better after I found out about this one.

Can you elaborate on this please?

I am an account manager at a print distributor and I deal with NCR stocks all the time.

Thank you!

Guest BERNESES
Guest BERNESES
Posted

[quote name='minibabe' date='Mar 10 2006, 12:10 PM'

TROPICANA LEMONADE!!!!! WHAT OMG I am so glad that I did not buy that the other night. :blink:

Are there any other drinks that are not gluten-free?

Amanda NY

jenvan Collaborator
jenvan
Posted

Open Original Shared Link

that paper thing fascinated me too--talks about it a bit on this site...

Matilda Enthusiast
Matilda
Posted

..

Guest BERNESES
Guest BERNESES
Posted
Well, most carbonless copy paper is made from wheat. I read about it on the Braintalk board, googled it and found that it was true. I thought about trying to find out what the paper I use at work is made of, but felt too much of a twit to ask anyone. So I started a very strict policy of never touching my mouth or my food without washing my hands first. In fact I try not to touch my food at all! I came across this little fact round about last October. Started feeling much better, ooh round about last November. Coincidence? I don't know.

OMG! Are you serious? wait, what exactly is carbonless copy paper? The paper you put in copy machines ot the paper that imprints copies on multiple pieces of paper without carbon? This is freaking me out!

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Guest cassidy
Guest cassidy
Posted
Carbon-less copy paper. I really started feeling better after I found out about this one.

Oh My God!!! I am a sales rep and my customers sign on 4-ply carbon-less forms every day. I just called the form supplier and they are calling the printer, and trying to find out if there is gluten in these forms. I can't tell you how many times I have handled them and ripped them apart and then eaten a snack or lunch. I live in my car so I use hand sanitizer all the time, but I don't know if that works for gluten.

This is really scary.

Matilda Enthusiast
Matilda
Posted

..

Guest BERNESES
Guest BERNESES
Posted

Matilda- No, you didn't cause a panic. If anything, you just raised our awareness. I, for one, am very grateful. Thanks, Beverly

prinsessa Contributor
prinsessa
Posted

One thing that I didn't think would have gluten in it was my children's fruit snacks. I know that they are basically junk food anyway....I just didn't expect them to have gluten in them. And of course I keep on forgeting and then pop one in my mouth :blink:

ehrin Explorer
ehrin
Posted

WOW that's just amazing. Luckily I work with the printers so finding out shouldn't be too difficult - but it is going to be hard since I work in the industry and deal with various forms of NCR (carbonless paper) all the time. I guess I'll just have to be even MORE diligent about washing my hands, as I really have no way around not dealing with NCR stocks.

Thanks for your eye opener, I sure do appreciate it!

peace

Ehrin

floridanative Community Regular
floridanative
Posted

Nutrisse told me their hair colors are gluten-free and I use them regularly with no problems. Even had really bad psoriasis pre gluten-free days and now after being gluten-free for only 7 weeks that has almost cleared up. I think my rx shampoos had gluten in them so I switched to Neutrogena t-get and everything got better almost immediately.

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    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
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      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
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      By cristiana · Posted

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