Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten

Guest cassidy

By Guest cassidy
in Coping with Celiac Disease

Recommended Posts

luvs2eat Collaborator
luvs2eat
Posted

It was finding out that some brands of sour cream contain modified food starch that made me realize that I have to read EVERY SINGLE LABEL, EVERY SINGLE TIME!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 62
  • Created
  • Last Reply
Matilda Enthusiast
Matilda
Posted

..

ehrin Explorer
ehrin
Posted
Carbon-less copy paper. I really started feeling better after I found out about this one.

Can you elaborate on this please?

I am an account manager at a print distributor and I deal with NCR stocks all the time.

Thank you!

Guest BERNESES
Guest BERNESES
Posted

[quote name='minibabe' date='Mar 10 2006, 12:10 PM'

TROPICANA LEMONADE!!!!! WHAT OMG I am so glad that I did not buy that the other night. :blink:

Are there any other drinks that are not gluten-free?

Amanda NY

jenvan Collaborator
jenvan
Posted

Open Original Shared Link

that paper thing fascinated me too--talks about it a bit on this site...

Matilda Enthusiast
Matilda
Posted

..

Guest BERNESES
Guest BERNESES
Posted
Well, most carbonless copy paper is made from wheat. I read about it on the Braintalk board, googled it and found that it was true. I thought about trying to find out what the paper I use at work is made of, but felt too much of a twit to ask anyone. So I started a very strict policy of never touching my mouth or my food without washing my hands first. In fact I try not to touch my food at all! I came across this little fact round about last October. Started feeling much better, ooh round about last November. Coincidence? I don't know.

OMG! Are you serious? wait, what exactly is carbonless copy paper? The paper you put in copy machines ot the paper that imprints copies on multiple pieces of paper without carbon? This is freaking me out!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest cassidy
Guest cassidy
Posted
Carbon-less copy paper. I really started feeling better after I found out about this one.

Oh My God!!! I am a sales rep and my customers sign on 4-ply carbon-less forms every day. I just called the form supplier and they are calling the printer, and trying to find out if there is gluten in these forms. I can't tell you how many times I have handled them and ripped them apart and then eaten a snack or lunch. I live in my car so I use hand sanitizer all the time, but I don't know if that works for gluten.

This is really scary.

Matilda Enthusiast
Matilda
Posted

..

Guest BERNESES
Guest BERNESES
Posted

Matilda- No, you didn't cause a panic. If anything, you just raised our awareness. I, for one, am very grateful. Thanks, Beverly

prinsessa Contributor
prinsessa
Posted

One thing that I didn't think would have gluten in it was my children's fruit snacks. I know that they are basically junk food anyway....I just didn't expect them to have gluten in them. And of course I keep on forgeting and then pop one in my mouth :blink:

ehrin Explorer
ehrin
Posted

WOW that's just amazing. Luckily I work with the printers so finding out shouldn't be too difficult - but it is going to be hard since I work in the industry and deal with various forms of NCR (carbonless paper) all the time. I guess I'll just have to be even MORE diligent about washing my hands, as I really have no way around not dealing with NCR stocks.

Thanks for your eye opener, I sure do appreciate it!

peace

Ehrin

floridanative Community Regular
floridanative
Posted

Nutrisse told me their hair colors are gluten-free and I use them regularly with no problems. Even had really bad psoriasis pre gluten-free days and now after being gluten-free for only 7 weeks that has almost cleared up. I think my rx shampoos had gluten in them so I switched to Neutrogena t-get and everything got better almost immediately.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    2. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    3. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    4. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    5. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,817
    • Most Online (within 30 mins)
      7,748
    sleuth
    Newest Member
    sleuth
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.