Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New Here...please Help!


Veronica

Recommended Posts

Veronica Rookie

Hi. I'm new here, and was diagnosed with Celiac Disease in Aug/05, after loosing 80 lbs over the course of a few months.I'm 34 yrs old, married to my wonderful husband for 18 yrs. We have 2 sons, 15&16.

The biggest problem I have is staying gluten free. It's in everything!! I also have a bit of a denial problem with this, I always think maybe I can have a little bit....not a good idea.

My husband said that in order to help me become gluten-free we should make the entire house gluten-free.

Well that sounds like a great idea, but my Mom had to move in with us in May/05, and for some reason she refuses to cook gluten-free foods. She's 100% German and feels that's how she should eat...well what about me? I don't mean to sound selfish, but when my husband and I are at his shop for the day, if Mom even decided to cook, it's usually, pasta, gravies, etc....but my gluten-free pasta is in the house and she won't use it.(The deal was if she were to move in she would help a bit, clean,dust,etc....but she doesn't do anything. IF she cooks it's food that will hurt me.

I know my situation may sound different, but Mom moving in wasn't our choice. How can I get this woman to understand that what she's feeding me is killing me? Some nights I refuse to eat, becasue I can't eat what she made, or I'll make my own, then she gets offended, and gives me an attitude. I can't figure this out.

I have given her all the information I have regarding Ceiac, and she's refusing to cook gluten-free foods!!

During the weekend my husband and I made chili, we were going to eat it with toasted rice bread. Right before dinner, Mom runs to the grocery store and buys a fresh loaf of french bread. The entire house smelled sooooo good, I could have cried.I don't have alot of time to prepare my foods ahead of time....I just really need help here. Maybe going gluten-free is more of a pain than it's worth.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mmaccartney Explorer

Your husband is correct, and I support making your whole house gluten-free. I did the same with my home. My wife and younger son can have gluten, myself and my oldre son cannot. We made the entire house gluten-free, and even replaced all of our kitchen equipment (perhaps a bit overboard, but I'm sick of being sick!).

Regarding your mother. Talk about the circles in life!! Granted this is your mother, and she deserves all the respect and admiration that a mother deserves. BUT this is YOUR home, not hers. YOU (and your husband) make the rules. To quote many parents out there, including myself.... "While you are living under my roof you will abide by my rules"

Tell your mother it has to stop, or she cannot continue living there. In the world of addiction it is called tough love. If someone will not stop what they are doing to harm themselves, you or your relationship, end it. It wouldn't be easy, you'll feel guilty, and she'll reinforce that guilt. But it might just be that wake up call that gets her to seriously respect your disease!

Personally, I wouldn't care if my family disowned me over the gluten issue. It's my health and well being and if they cannot or will not support me in that then I do not need to be around them.

Would your mother have alcohol in your home if you or your husband were recovering alcoholics?

mommida Enthusiast

Make the house gluten free. Then hide all those cookbooks, and replace them with gluten free ones. Give yourself some time to figure out the gluten free diet, then work on converting your favorite recipes when you are in a gluten free comfort zone.

If your mom's circumstances have left her depressed, she can't even begin to imagine what is going on in your life. See if you can get to the bottom of what is going on in your mom's head.

Good luck,

Laura

Guest nini

I have to agree with your husband on this one. You have Celiac, if you continue to eat gluten, eventually it's gonna kill you. In the mean time you'll just get more sick and more tired and so on and so forth... You HAVE to stay 100% gluten free and if your MOM can't understand that, too bad. You have to take responsibility for your own health. I know you want her to help with cooking, but it looks like that aint gonna happen. She's going to insist on doing it her way and you are right, you cannot eat what she makes if she is going to keep using gluten foods.

I don't mean to be harsh, but you are a grown up. You are the ONLY one who is going to suffer the ramifications of not eating gluten free. Tell your mom she can help out in other ways, but cooking and grocery shopping IS NOT HER JOB and unless she can see clear to support you in this and cook healthy food for you, then put your foot down and tell her NO. Find other things for her to help you with, cleaning, laundry, that sort of thing.

As far as cooking gluten free for the whole family, There are a ton of ways to do this simply and inexpensively. There are many foods that are naturally gluten free, not time consuming and you can do them yourself. Or get your husband or kids to help.

Crock pot meals are a big time saver, pot roasts are a good one, tons of meat and veggies in a nice broth simmering all day??? How much yummier can it get? Taco night is a big hit around my house. I have a list of naturally gluten free menu items if you want it, and I'm sure others can help you in that dept. as well.

You HAVE to do this. It is not easier to give in to your Mom's behavior at this point, it is NOT worth it. This is a question of life or death for you. Get in her face if you have to and stand up for yourself.

Feel free to e-mail me at nisla@comcast.net or pm me, I can give you all kinds of pep talks and ideas of how to make cooking less time consuming and easier on the whole family. It's really not that difficult.

BAN THE GLUTEN FROM THE HOUSE!!!!

Veronica Rookie

Thank you all very much for your advice. I feel soooo much better being a member on this site. I don't feel out of place.

So many things have been changing over the past year...I think you are all right and I should focus more on my health than her feelings. But I always wonder if maybe I'm over reacting to the cooking thing....only because I know her situation is hard, then I was diagnosed with Celiac, we had to move to a bigger house...and the daily stresses.

The reason I think I may overeact is becasue the symptoms of my gluten reactions are so severe that I don't feel like myself. I'm in a constant angry/sad fog. I always feel down and feel like I could cry. Is this ever going to go away? Will I get my life back?

Lollie Enthusiast

Yes, you will get your life back! But, you have to committ to a completely gluten-free diet! In my house, I am the only one gluten-free. All meals and things that I cook are gluten-free. My whole family eats gluten-free at home, but we do have some gluten stuff in the house. It's prepackaged and for consumption of the Non-Celiacs. I know that they have some food that I can't have. It's just that simple. I know that if I eat gluten I will be sick and causing damage to my intestines and I'm not willing to eat anything that I know will hurt me!

Mom's are tricky, especially when we take over the care for them! You will have to just set boundaries about what is or is not okay in your house. This is your house and your health that we're talking about here! And believe me, my mom drives me crazy (by the way my mom's half German, so I really do know how stubborn a German mom can be! :D ) and I'm giving you the same advice that I got! You have to just do what is best for you! You will have to take back charge of your kitchen!

Godd Luck!

Lollie

Canadian Karen Community Regular

Ask your mother if she would pour sugar down your throat if you were a diabetic.........

Sheesh! Mothers!

Good Luck! (from someone who was previously in your shoes until my Mom FINALLY figured out she couldn't interfere anymore!)

Hugs!

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

What a hard situation! First off, going gluten-free if you have Celiac is absolutely worth any difficulty you encounter. We go gluten-free to be healthy, to live longer...to get more of our lives back. You are not selfish! Your mom is being selfish. Unfortunately, it seems like she really doesn't understand the situation. She may never...sometimes that happens. But, to give her that chance, have you sat down and had a gentle, but firm face-to-face with her? If so, then I think it is time for some hard boundaries--hard, but worth it. She has moved into your home, which means she needs to defer to your house rules. You need to lay down the law, again, in a gentle but firm manner. Use your husband to back you up on this too--and I agree you should try to make the house gluten-free. Your mom is a wild-card at home, in the case of gluten, and not going completely gluten-free will probably put you at risk since she doesn't understand how serious of a matter this is. Maybe if she gets it one day, you can make some exceptions.

Don't let guilt keep you from making the boundaries you need. I'm not sure what your relationship with your mother is like...but it would probably be good to approach the issue with your husband by your side, as a united front, instead of just mom-to-daughter. And that also makes sense since you two are in charge of your home.

Good luck--I hope things change smoothly and quickly. Let us know what happens!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

    2. - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

    3. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    5. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,196
    • Most Online (within 30 mins)
      10,442

    Spider2026
    Newest Member
    Spider2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...