Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can You Eat If You Have Celiac Disease?


Bags

Recommended Posts

Bags Rookie

I just found out today that I have Celiac disease. I was wondering what foods are definitely ok to consume that does not have gluten? I am scared to eat because the pain is so bad and I just got over the symptoms (it lasted over 3 days). 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

well, what are you wanting to eat?  obviously, you can't have regular bread or pasta.  there is a pinned post in this section of the forum, go ahead and read through it.  "newbie 101" many good suggestions and recommendations.  in the beginning, I was like, o, i'll  just order off the gluten free menu, but it's not as simple as that.  I would suggest you do not eat out until you learn what to be wary of and what practices are safe in different restaurants.  

so, what are you wanting to eat? 

trust me, we all felt that "o, my gosh, I can't eat anything" in the beginning, including the 'grocery store meltdown'  <mine included crying and leaving the store with nothing lolz)

welcome to the club you never wanted to join 🙄 you are going to feel so much better once your body gets the right 'fuel' - lots of seemingly unrelated symptoms cleared up for so many of us!!  life is so much better for me personally being as I was almost dead when finally diagnosed.  this forum is very helpful and interactive.  no questions are 'dumb' questions.  it'll be ok!  promise!  :) 

GFinDC Veteran

Hi,

Most meats, veggies, nuts, eggs and fruit are ok and naturally gluten-free.  The exception is if you get some kind of pre-spiced meat or veggies etc.  Gluten is a protein in wheat, rye and barley.  Although some of us react to oat protein also.

To make it easy, look for foods with 3 ingredients or less.  One ingredient is ideal.  You can certainly combine as many ingredients as you like though.  Just don't start with processed foods with a long list of ingredients.  Whole foods (not processed) are a great way to go. 

Bags Rookie
On 6/23/2020 at 10:42 PM, GFinDC said:

Hi,

Most meats, veggies, nuts, eggs and fruit are ok and naturally gluten-free.  The exception is if you get some kind of pre-spiced meat or veggies etc.  Gluten is a protein in wheat, rye and barley.  Although some of us react to oat protein also.

To make it easy, look for foods with 3 ingredients or less.  One ingredient is ideal.  You can certainly combine as many ingredients as you like though.  Just don't start with processed foods with a long list of ingredients.  Whole foods (not processed) are a great way to go. 

Thank you for your comment. You have a lot of ideas that I can feel comfortable using!

That is a great idea 🙂 I took your advice and I did a quinoa recipe that had raisins and toasted pine nuts which was good and did not tear up my insides (3 ingredients). Additionally, I tried a banana with almond butter which was not only tasty but made me feel relief. Which particular grocery stores (Publix, Trader Joe’s, Fresh Market etc...) would be better (or has more choices for Celiac sufferers?

With meats, do we also need to be wary of getting it cut to our likening? I was thinking of cross-contamination. Although, I thought if I tell them about my diagnosis, Celiac disease, then they can ensure a separate area that would not cause upset and ripping of my insides?

Sorry for my long response. I am excited to get knowledge and advice from individuals. I have been in pain for so long (7 years) and could not get answers. It was not until I got a new primary doctor that we found answers. I found peace and finally could provide myself the much needed medication and attention. It feels good knowing that this disease can be managed and without pills (at this point of time according to my primary).

Sincerely,

Bags

Bags Rookie

Using forums is new to me so if there are multiple posts that look similar, I apologize. I will learn! Lol

cyclinglady Grand Master
(edited)

hi Bags!  
 

Any of those markets are fine when you are shopping for fresh fruit and vegetables, and processed foods.   I try to buy my meats that come straight from a processor at a grocery store like Publix.  Like chicken or turkey.  If I am buying pork or beef, I shop Costco.  That is because they only cut meat.  They are not stuffing pork chops or marinating meat and setting it in a meat case unwrapped in their facility and ripe for cross contamination.  

Feel free to talk to the butcher.  I have and at Publix too.  My family lives in Georgia.  I love Publix!  Of course we (California ) have had Trader Joe’s the longest.  I do not shop there often as it is not as convenient for me anymore.  

You will get the hang of it!  Keep to simple foods like GFInDC suggested. Easiest way to avoid gluten and maybe even heal faster!  

10 minutes ago, Bags said:

Using forums is new to me so if there are multiple posts that look similar, I apologize. I will learn! Lol

No worries!  😊. We are glad you are here.  

Edited by cyclinglady
Bags Rookie
2 minutes ago, cyclinglady said:

hi Bags!  
 

Any of those markets are fine when you are shopping for fresh fruit and vegetables, and processed foods.   I try to buy my meats that come straight from a processor at a grocery store like Publix.  Like chicken or turkey.  If I am buying pork or beef, I shop Costco.  That is because they only cut meat.  They are not stuffing pork chops or marinating meat and setting it in a meat case unwrapped in their facility and ripe for cross contamination.  
 

You will get the hang of it!  Keep to simple foods like GFInDC suggested. Easiest way to avoid gluten and maybe even heal faster!  

No worries!  😊. We are glad you are here.  

Thank you 🙂 I did not realize that Costco was like that...wow! I like that I do not necessarily have to shop at the high end grocery stores. It is expensive. What about juicing as part of our diet?

Bags


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
1 minute ago, Bags said:

Thank you 🙂 I did not realize that Costco was like that...wow! I like that I do not necessarily have to shop at the high end grocery stores. It is expensive. What about juicing as part of our diet?

Bags

Juicing is fine as long as you are not diabetic (Type 2/insulin resistant) gluten-free need not be expensive if you avoid processed foods which are not good for anyone as we have learned over the last 40 years or so.  
 

Feel free to shop budget stores.  Know that things like rice can last for years in pantry if kept in sealed containers.  I buy rice from Costco.  Since Celiacs consume a lot of rice, look for rice grown NOT in the southeast.  There is more Arsenic their soils (google this).    Do not buy from open bulk containers in any health food type store as cross contamination is a huge issue.  

Scott Adams Grand Master

Just in case, here is a link to our Gluten-Free 101 content mentioned: 

 

GFinDC Veteran
11 hours ago, Bags said:

Thank you for your comment. You have a lot of ideas that I can feel comfortable using!

That is a great idea 🙂 I took your advice and I did a quinoa recipe that had raisins and toasted pine nuts which was good and did not tear up my insides (3 ingredients). Additionally, I tried a banana with almond butter which was not only tasty but made me feel relief. Which particular grocery stores (Publix, Trader Joe’s, Fresh Market etc...) would be better (or has more choices for Celiac sufferers?

With meats, do we also need to be wary of getting it cut to our likening? I was thinking of cross-contamination. Although, I thought if I tell them about my diagnosis, Celiac disease, then they can ensure a separate area that would not cause upset and ripping of my insides?

Sorry for my long response. I am excited to get knowledge and advice from individuals. I have been in pain for so long (7 years) and could not get answers. It was not until I got a new primary doctor that we found answers. I found peace and finally could provide myself the much needed medication and attention. It feels good knowing that this disease can be managed and without pills (at this point of time according to my primary).

Sincerely,

Bags

Hi Bags,

I shop at Kroger, Aldi, Piggly Wiggly, Sav-A-Lot and Chinamart (Walmart).  I don't usually buy deli sliced meats myself.  I know people in the past have suggested talking to the deli people and asking them to set aside sliced meats from the first slicer use in the morning.  Or going to the store early to get there before they use a slicer for anything.  I think the first option is easier.  But like I said, I don't generally buy deli sliced meats.

Aldi has some gluten-free wraps that are ok.  Mission corn tortillas are gluten-free also.  Those are processed foods but seem to work ok for me.  You might want to wait until you are recovered a while before trying them.

Planters nuts will be labeled for gluten ingredients, so they should be safe if the label doesn't show gluten.  I can't do the dry roasted Planters myself because they have celery in them.  But their plain peanuts or mixed nuts are ok.

When it gets hot there are So Delicious and Halo Top dairy free ice cream subs available.  There are also cashew milk and almond milk subs available.  I don't recommend soy milk.

You might want to stock up on Pepto Bismol, milk of magnesia, Peppermint Altoids and peppermint tea.  These can all be helpful with various GI symptoms.  Aspirin is another good thing to keep around.

You may not want to read this next bit.  People seem to have worse reactions for a while after first going gluten-free.  Our guts are really irritated and our immune system is fired up in attack mode and it does react at the least provocation.  So you may think you are failing miserably at the gluten-free diet but it could just be that your gut is pissed off at the world and everything edible in it! :(

I had gut spasms for 6 weeks after going gluten-free.  You may not but, just to be warned.

After about 6 months of the gluten-free diet things should be going better.

Larzipan Rookie

When buying processed foods be on the lookout for "malt" as an ingredient to avoid. Malt has gluten in it because it is made from barley. I hadn't realized that malt was an issue until I went to Japan and saw that it is an ingredient in all of their vinegars. It's not typically an ingredient in vinegars in America, but I would still double check. In Japan there was malt in rice vinegar, which meant that even plain white rice or potato salad had gluten in it. I was sick every day of my trip in Japan because I learned that the hard way. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748

    tealangel09
    Newest Member
    tealangel09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.