Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Various symptoms - should I get tested?


rachaelbaci

Recommended Posts

rachaelbaci Newbie

Hi all!

I'd love your thoughts on this. I'm a 25 year old female and I've had a few different symptoms so I'm considering getting tested, but I have no family members with celiac or anything like that. I'm not sure if this actually looks like these could mean it or not!

  1. I've had these little bumps on my elbows, knuckles, and knees on and off for 5 years. They're like small blisters filled with clear liquid and are super itchy. Anti-itch cream and lotions don't do anything for them, they just sometimes disappear after a while. Wondering if it's dermatitis herpetiformis?
  2. I've been diagnosed with anxiety/panic attacks and depression and have been on and off medication for 4 years
  3. I had Mono and a Vitamin D deficiency 8 years ago and I haven't been checked for it since then...no idea if I'm still deficient or not, but I am definitely still always tired. I frequently feel sluggish physically, which is different from the mental sluggishness of my depression.
  4. I've had stomach/digestion issues for yearssss now and I've been unable to find any actual food allergies. My entire abdomen will feel incredibly bloated for 2 or 3 days at a time, but I'll also just get my stomach bloated frequently after I eat. My stomach also hurts a lot and I'm always paranoid I have appendicitis, but it never turns out to be that and goes away after a bit. I've tried being gluten free/diary free before but I wasn't incredibly strict about it and it seemed to help some? But not always. I'll often feel gross and nauseous in the morning if I eat right before going to bed.
  5. I also saw somewhere that sometimes vitiligo can be a symptom (although it's not listed on most sources) and I do have some on my face

I feel like there are more things too, but they've slipped my mind at the moment. Thanks for taking the time to read this!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome.  
 

Sure, get tested.  I am the first one in my family to be diagnosed with celiac disease.  Make sure you are consuming or have been consuming gluten daily for 6 to 12 weeks or the tests will be invalid.  Here are the tests:
 

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

Scott Adams Grand Master

Your symptoms certainly sound consistent with celiac disease and dermatitis herpetiformis (DH), which is the skin condition associated with celiac disease. @cyclinglady is right, you should request that your doctor give you a blood panel for celiac disease. You also may want to go to a dermatologist to be test for DH if that's possible. Either condition would be treated with a gluten-free diet after all tests are finished.

rachaelbaci Newbie

Thank you both so much for the response! @cyclinglady @Scott Adams I think I'll go in and get tested, hopefully this would provide some answers for everything finally...

I've tried in the past to have a DR look at the bumps on my hands/elbows, but by the time I actually get into the dr office the bumps have disappeared again since they always come and go. I've just recently started to try and take photos to document them when they're around.

I've also just recently moved to a new location and am looking for a doctor here. I'm very interested in naturopathic/holistic treatment in general, but I'm not sure if they would be able to administer the types of test typically needed to diagnose Celiac. Do you recommend seeing a MD over an ND?

 

Scott Adams Grand Master

I don't have an opinion on and MD vs ND, but I also just got an email from imaware, who does at home celiac blood testing kits, and they are offering $20 off through the end of today for celiac disease screening kits: https://imaware.health. So $79 for a screening, which would almost beat my co-pay for such tests.

rachaelbaci Newbie
1 hour ago, Scott Adams said:

I don't have an opinion on and MD vs ND, but I also just got an email from imaware, who does at home celiac blood testing kits, and they are offering $20 off through the end of today for celiac disease screening kits: https://imaware.health. So $79 for a screening, which would almost beat my co-pay for such tests.

Awesome, good to know! Thank you so much!

Juanvw Rookie

Hey,

I would definitely suggest getting tested as it’s better to rule it out if anything however you symptoms seem consistent with similar things I have had previously. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    3. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,768
    • Most Online (within 30 mins)
      7,748

    Cora Pifer
    Newest Member
    Cora Pifer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  
    • xxnonamexx
      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  
    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.