Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Update


Danijela

Recommended Posts

Danijela Contributor

:D Hey everyone!!!

Its been soo long since ive been on... I've been really busy and my computer had some viruses so I couldn't access the internet for awhile there...

Anyways I had my appointment with an allergist on Jan 11th he ran all the usual enviornmental tests and for pets as well... then he asked me if I wanted anything special... I told him I was questioning Celiac so he decided to test me for wheat, white flour, milk and yeast..

well within seconds I was having a reacion to YEAST! he said this was quite suprising to him...

all he said was not to eat bread baked goods and doughnuts!! I thought that was funny that he specifically mentioned doughnuts lol I felt like saying do I look like i've consumed alot of em' <_<

so I cut out all yeast gluten and dairy. I've found recently that when I eat dairy products I get a stabbing pain in my stomach and the gas is unbearable I't makes me feel like I can't breath properly at times.... I've lost 16.5 pounds since I started the diet....

I've been feeling alot better however my problems with my throat and blood sugar still remain...

I believe I have some sort of insulin problem after I eat anything sweet my hands and feet go really cold I feel really hungry, jittery and aggitated... this also happens if I wait too long between meals...

My throat is killing me as well... its not really my throat it doesn't hurt when I swallow like strep or anything its more my neck below my chin it swells and hurts when I talk... it feels like a pressure is in there and its rubbing together and raw or something... its getting worse in the morning and at night when I drink it feels like its not passing throught almost like its just sitting there... its really botersome to me.

I don't know if there is any connection but i'm always cold as well my skin is actually cold to the touch all the time. I've recently started sleeping with 2 pairs of socks, pants, a shirt and sweater and a hat... because I wake up freezing and shaking in the middle of the night....

anyway if anyone can offer me any advice i'd greatly appreciate it

thank you sooo much for you time

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

Hypoglycemia is likely the cause of the jittery, hungry, aggitated feeling. I have had it all my life and since going gluten free, it is gone. The symptoms come back only when I'm glutened. You can try only eating carbs that are digeted slowly - check out www.glycemicindex.com. Hopefully, after you have been gluten-free for a while it will get better.

I am also always cold all the time. I've been taking my temperature for baby making reasons and I am always 97. something. I did read a thread that there are many people like this. When I'm watching tv I keep a heating pad on me and it really warms me up. I love in Florida, and it will be 85 today and I will still be cold if I'm not in the sun.

I don't know about the throat thing. My mom gets a rash on the outside of her throat when she eats gluten and she feels like her throat is closing. I get reflux when I eat gluten and I feel it mostly in my throat. I don't know if either of those is your problem, but I would think that eating gluen could affect your throat.

Stick to your diet and hopefully you will feel better.

Danijela Contributor
Hypoglycemia is likely the cause of the jittery, hungry, aggitated feeling. I have had it all my life and since going gluten free, it is gone. The symptoms come back only when I'm glutened. You can try only eating carbs that are digeted slowly - check out www.glycemicindex.com. Hopefully, after you have been gluten-free for a while it will get better.

I am also always cold all the time. I've been taking my temperature for baby making reasons and I am always 97. something. I did read a thread that there are many people like this. When I'm watching tv I keep a heating pad on me and it really warms me up. I love in Florida, and it will be 85 today and I will still be cold if I'm not in the sun.

I don't know about the throat thing. My mom gets a rash on the outside of her throat when she eats gluten and she feels like her throat is closing. I get reflux when I eat gluten and I feel it mostly in my throat. I don't know if either of those is your problem, but I would think that eating gluen could affect your throat.

Stick to your diet and hopefully you will feel better.

It kinda feels like my throat is closing at times, and when I swallow liquids especially it feel like it is stuck in my throat for a few mins....

does anyone know if this could have anything to do with my thyroid???

my gp said my throat is really red inside... he is sending me to a new endocrinologist (sp?) I just hope he can help not like the last one!

thanks for your reply:)

kabowman Explorer

Have you noticed a pattern to the throat thing? There is yeast in vinegar so I would watch that since you have an actual allergy. That means no dressings, sauces, marinades, condiments, etc. unless you make your own and work around the need for vinegar.

Danijela Contributor
Have you noticed a pattern to the throat thing? There is yeast in vinegar so I would watch that since you have an actual allergy. That means no dressings, sauces, marinades, condiments, etc. unless you make your own and work around the need for vinegar.

Ya there is a pattern actually it flares up in the morning and in the evening and if I talk alot it really hurt my voice changes it goes hoarse it becomes hard to talk and things don't really come out right...

The pain is in my neck below my chin... thats why i was wondering if it could be my thyroid.. there is a pressure there all the time.... i don't know if anyone can relate but its kinda like when you cry and you sort of get a feeling like there is a lump in your throat <_< (don't know if anyone knows what i mean)I can actually feel thats its swollen it will be larger on one side once in a while... and it bothers me more when i drink cold or hot drinks.... so i stick to room temp and really small sips.

I had no idea there was yeast in vineger I have vineger on salads on a weekly basis..... it doesn't say anything about it on the bottle....

I'm completly lost with this yeast thing:(

key Contributor

I had something with my throat when I was pregnant with my first son and then 8 months after while breastfeeding. It was I believe my thyroid. I think it was swollen and would be worse sometimes during the day. Usually at the end of the day. IF felt like you said, that you had cried along time. It was VERY annoying. I even quit nursing my baby early to see if it would go away. It actually did. I think hormones did something to my thyroid. It was visibly swollen during pregnancy, but it did go away. That was 5 years ago and it didn't return with the next two pregnancies, thank goodness. No one could find anything wrong with me and it was very frustrating.

You should probably have something checked though. My voice never changed. Not to alarm you and this probably isn't your problem, but my cousin's wife had some rare throat cancer. It did change her voice though and I don't think she ever had relief during the day at any point. It sounds like it might be your thyroid. If you are cold, that is another symptom of thyroid problems.

Hope you figure it all out.

Monica

mommida Enthusiast

You should get your thyroid checked, by an endocronologist. The thyroid could be enlarged or it could have nodules.

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Danijela Contributor

hey!

I just noticed yesterday that the skin in the centre of my neck has changed texture and colour just in one spot.... does any one know what this is? and should i be alarmed???

I'm still waiting to hear back about my appointment with the new endocronologist

thanks

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.