Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gaining Back The Weight


Kim UPST NY

Recommended Posts

Kim UPST NY Apprentice

Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

I can empathize with your situation. I am 5'5 and got down to 95 pounds. I was so afraid to eat anything because everything made me feel bad. Even after going gluten-free, I had awful nausea and stomach problems for awhile. I didn't begin to gain weight back for about 6-8 months, unfortunately (though I gained back about 5 to 8 pounds initially). I'm now finally back to my pre-Celiac days' weight, but it's taken me a year and a half to get here. However, my intestines were really damaged and my body still feels like it's healing. So, give it some time--you will eventually gain weight back.

In the meantime, it's all about "good" fats--peanut butter, Ensure, olive oil, pure butter. I also began eating more cakes and cookies to gain weight back. I figured I had been ill for so long that it was time to indulge :) If you're still feeling ill, though, eat simply: pure fruits and veggies, potatoes, fish, and chicken. Then, on to the good stuff :)

Hang in there--it will get better, but it may take some time. Good luck!

par18 Apprentice

Hi Kim

I understand where you are coming from. I was there about 11 months ago. I was approx 30 lbs underweight when Dx'd in May 2005. At first I was scared and not hungry. A visit to an RD set me up on a diet of mostly naturally gluten free foods. In the beginning I was eating almost 3000 calories a day. This consisted of 3 meals and 2 snacks a day. It seemed like all I was doing was eating but I felt the only way to gain weight is to eat. I do not know how much of what I ate in the beginning was being absorbed but my main symptom (diarrhea) went away in only two days. I don't think I missed a meal for about the first 2 months. After about 12 weeks I had gained about 10 pounds and started to relax. I resumed my normal activities and my appetite returned. Today I have gained back all the weight I needed. If you have to do so chart a sample diet for about a week and try as best that you can to eat at regular intervals. The key for me was making eating a routine. For now try to view food as a fuel and not some restrictive measure. Also try to get your mind off the disease by focusing on other things that interest you. This website is a valuable source of information. The snacks I ate in the beginning consisted of yogurt,nuts, peanut butter on gluten-free toast,fruits and chips (corn or potato). Good luck to you.

Tom

bluejeangirl Contributor

;)

Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com

Kim,

Do you still have an uneasy feeling when your stomach is full. Food issues are not easy to get over. I can tell you what I'd eat to gain weight but it mostly involves high fat foods and desserts after I'd ate a nice lunch or supper. You don't have to be scared to eat anymore. and keep telling yourself that. You said you eat lots of salads, well try eating smaller salads with like a grilled cheese on kinnikinnick Italian white tapioca bread. Have some chips with it. Have two Pamela's cookies the ones that are already made. It will take awhile to stretch your stomach and eat normal. But I keep looking at what you eat and its all the stuff I'd have if I wanted to lose weight not gain. ;)

Lollie Enthusiast

I can totally relate to you! I am 5'9' and got down to 110. I got very scared. I lost weight when I started the diet. but now I find that I have gained about 20lbs and I eat little snacks all day! i agree that it will take some time to allow your body to heal and it will take time to stretch your stomache back to a more normal size. I think I just ate like kid sized meals mostly, then I would have a snack or snacks, in between. I always thought that food would make me sick, because it really was, but now I know that if I avoid the ones that make me sick, the others make me feel good! It has taken me a while to switch my mind over, but it is so much better now! I drank insure, and I love chocolate milk (I am not lactose intolerent). I also started having ice cream. All the things that you like, you should stock your house with and have them ready to eat.

Good Luck!!!!!!!

Lollie

ravenwoodglass Mentor
Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com

Something that helped our family was carnation instant breakfast, the powder, we woould add a shake with it whole milk and ice cream a couple times a day. If you can have dairy they come to about 500 calories each or more. Make sure the ice cream is gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    Jane02
    Newest Member
    Jane02
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.