Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got My Enterolab Results Back


Clark Bent as Stupor-Man

Recommended Posts

Clark Bent as Stupor-Man Contributor

Looks like I hit the jackpot... casein and gluten apparently.. I was hoping I was just lactose intolerant and could have dairy again in the future... I was also curious what my numbers would look like after eliminating gluten 1-2 months before testing but it certainly didn't seem to matter much..

Fecal Antigliadin IgA 151.5 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 49 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 280 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 73 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0302

HLA-DQB1 Molecular analysis, Allele 2 0602

Serologic equivalent: HLA-DQ 3,1 (Subtype 8,6)

the interpretation of the genetic results indicates that I have one celiac gene and one gluten sensitive gene, with both of my parents having at least one copy of a gluten sensitive gene... also says having two copies means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity or celiac disease may be more severe... might explain my sister's medical problems as well though her situation is likely more complicated, at least at this point...

I am glad to finally have a diagnosis after years of trying to figure out what was going on and it lets me know I wasn't bugging out by trying this whole diet thing.. pretty good news actually, except for the casein.. certainly gonna miss Italian food but I guess there's always rice cakes with almond butter B)

- charlie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Well, now you know for sure, and can go on with your (gluten and casein free) life, without wondering if you need to restrict your diet. You also won't be as tempted to cheat when you know that you obviously have Celiac disease, and would cause yourself harm if you do.

All the best, you'll be fine!

jerseyangel Proficient

Charlie--Always best to know what you're dealing with. We're all behind you-- ;)

Clark Bent as Stupor-Man Contributor

thanks.. yeah, I actually take this as good news... except the casein of course..

if my test results had come back negative for gluten I was planning on eating a bowl of spaghetti and seeing what happened.. but now all my reservations about buying new pots and pans and whatnot are gone.. good to have a concrete diagnosis

dlp252 Apprentice
thanks.. yeah, I actually take this as good news... except the casein of course..

if my test results had come back negative for gluten I was planning on eating a bowl of spaghetti and seeing what happened.. but now all my reservations about buying new pots and pans and whatnot are gone.. good to have a concrete diagnosis

Congratulations Charlie! I so agree with the concrete diagnosis...it really helped cement in my mind that I need to be diligent even about seeming small things. My family is fairly supportive of most of my efforts to feel better, but it also helped to make THEM more serious about being diligent. The casein was even harder to give up than gluten for me too!

CMCM Rising Star

I have the gluten/casein thing going on too...and I'll say that I think the casein is harder than the gluten. Avoiding both these two rules out a huge universe of foods and leaves.....just a few plain, but very healthy things to eat. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.