Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

ll1234

Recommended Posts

ll1234 Newbie

Hello, I wanted to share my personal experience of what cured my Perioral dermatitis. I hope this will help others find a solution to their Perioral dermatitis problems as well. I know how awful it is and how painful those blistering hives are, so my heart goes out to anyone dealing with it. The steps below are what cleared the devil rash off my face, in addition to cutting gluten completely out of my diet. My PD flared up and got so much worse each time I ate anything with gluten. 

*Disclaimer*: I am not a medical professional. I'm just a fellow victim of Perioral dermatitis trying to help! I do mention products/brands, but this is not a sponsored post in any way. This is just what has worked for me personally. I tried to make this as detailed as possible, but if anyone has any questions, please feel free to reply to this post or message me. 

1). DO NOT PUT ACNE CLEARING PRODUCTS ANYWHERE NEAR IT!!! I had absolutely no clue what Perioral dermatitis even was when it first showed up. I just thought it was acne since it was on my face. I made the massive mistake of putting acne washes that contained alcohols, acne creams, toners, and then finally hydrocortisone all over the bumps. Which caused the rash to viciously spread like wildfire. This is why it is so important to see a dermatologist about your skin problems. 

2). Doxycycline. My dermatologist prescribed me doxycycline 100 mg, 1 per day for 6 weeks (Currently still taking it because the 6 weeks aren't up yet.) But after 3 doses, I am not even kidding you, the PD rash/bumps began to disappear. And the inflamed, burning, blistering itch was no more!!! Talk to your dermatologist about the best option for you, but I give doxycycline the most credit for clearing my Perioral dermatitis so fast. The first dose did make me feel nauseous, so I just take it before bed. It also causes increased sun sensitivity, so be mindful of that. 

3). Pimecrolimus Cream 1% (Again, must be prescribed. This is not an over the counter medication.) This cream treats dermatitis and eczema. This is NOT a steroid cream. I warn you all... stay FAR, FAR, FAR away from any steroid topical creams!!! Steroids will make the PD incredibly worse. 

4). Spectro Jel Cleanser Frangrance Free. I read about this cleanser on a blog for curing Perioral dermatitis. You can buy this cleanser on Amazon. Read the reviews! You will see that almost every person mentions how great it has been for their PD. From my personal experience, this is the only face wash that hasn't felt like I'm rubbing acid onto my skin. It has seriously worked wonders for me! I wash with it twice a day. I don't use any sort of face washing tool, and no toners, scrubs, serums, etc. If you're suffering from PD or have sensitive skin, I highly suggest you do the same. My skin drastically cleared up once I stopped using unnecessary products. I know that doesn't seem glamorous and fun, but neither is the dermatitis... am i right?! 

--- Here's a link to the cleanser: https://www.amazon.com/Spectro-Cleanser-Fragrance-Free-200ml/dp/B00CUIKYJW/ref=sr_1_1?dchild=1&keywords=spectro&qid=1598559522&sr=8-1 

5). Fluoride free toothpaste. My dermatologist told me to throw out my toothpaste if it contained fluoride. She said toothpaste containing fluoride can actually cause or irritate PD. The brand I like and recommend is 'Toms'. It's fluoride free and is made with natural ingredients. 

6). Get a gluten free chapstick. I was so surprised to find out how many chapsticks or lip balms actually contain gluten. My lips have always been dry or irritated, regardless of how much water I drink or how much chapstick I use. After discovering my gluten allergy, I realize it's because my lips couldn't handle the ingredients. An amazing, super hydrating option is 'EOS: The Hero Extra Dry Lip Treatment' It is gluten free and hypoallergenic. (but always check labels for ingredients you may be sensitive to)

7). Gluten Free Shampoo and Conditioner. Now obviously, I know (or hope) that no one is ingesting their hair products. However, think about how close they get to your face! Duh it goes all over your scalp, but it also can come in direct contact with your face during a shower. I have been using 'Garnier Fructis Pure Clean' which is free of gluten. I believe it's also free of some other common allergens. Google it and check it out for yourself!  

8). All Free Clear Detergent. Oh my gosh... ANYONE with sensitive skin, allergies, eczema, Perioral dermatitis, whatever!!! Please be careful of the detergent you are using to wash your clothes. Detergents have been one of the biggest irritants for my sensitive skin, especially my neck and face. 'All Free Clear' is great and is my go-to. It's the only one that doesn't turn my skin red and make me itch like crazy. 

9). Makeup. When my Perioral Dermatitis first happened and was at it's absolute worst, I didn't put any makeup on my face for 2 weeks. Trust me, I know you want to cover it up any way you can. I did too, because I thought I looked like a horrifying monster. But the rash will heal so much faster if you aren't putting foundation or powder on your face. Putting makeup on also means taking it off, and using makeup wipes while I had the rash drove my skin absolutely nuts. 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

This is great information, but I've not heard of a connection between Perioral Dermatitis and celiac disease or gluten sensitivity. Do you know of such a connection?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,924
    • Most Online (within 30 mins)
      7,748

    Mckshane
    Newest Member
    Mckshane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.