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Resources for those new to the "supersensitive" lifestyle?

TheDHhurts

By TheDHhurts
in Super Sensitive People

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TheDHhurts Explorer
TheDHhurts
Posted

Hi, I was wondering if there are some resources somebody new to the supersensitive lifestyle should read to get acquainted. I've been gluten free for a number of years now, but I still have recurring DH. I came to the realization after trying to ID the source of gluten contamination that I must be triggered by lower amounts. So, I need to learn as much as I can about this particular topic so I can get over this DH. Any help appreciated, so feel free to share resources!

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RollingAlong Explorer
RollingAlong
Posted

I've bought my spouse a membership to GlutenFreeWatchDog for the last several years and he's found that helpful.  Mostly though, he reads Mark's Daily Apple and sticks to a real food diet. (in his case, dairy free as he is casein intolerant as well.)    He likes to cook and we've both enjoyed a membership to ckbk.com 

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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