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Not sure if my symptoms are Celiac

Fraser
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Fraser Rookie
Fraser
Posted

Hi 

been looking at this site for a while and thought I would post my experience. I am on England. I am a 59 year old male and I started having issues about 3 months ago.

it started with loose stools every morning which were always as soon as I got up and always came out very quickly. 
had blood test that didn’t reveal anything but have had other issues since. 
I get off to sleep ok but always wake now at about 3 and struggle to get back to sleep.on about 5 occasions I have had diarreah when I have woken in the night. I now wake every night with cramping in my stomach and struggle to get back to sleep.

i never have diarreah all day just loose first thing in the morning and then ok. 
 

i always start to feel worse in the evening leading up to bedtime and can feel a build up happening. Get off to sleep ok but always wake again after a few hours.

i have also occasionally woken up in a sweat. 
I have had another blood test to check on Celiac and am waiting for the results. 
having read this forum I feel like I may have some of the symptoms. I also am very anxious at the moment.

i am trying to cut our Gluten now to see what difference that make.

apologies for the rambling text but I guess my questions would be, does anyone else have similar symptoms and is it unusual for someone of my age to suddenly become gluten intolerant?

thanks in advance

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Fraser Rookie
Fraser
Posted
  • Author

Ho

 

just to add when I wake up in the night as well as feeling bloated I have a burning sensation in my stomach.

thanks

trents Grand Master
trents
Posted

I would not start eating gluten-free yet as your doctor may order an endoscopy/biopsy. Going gluten free before that may invalidate the results.

Fraser Rookie
Fraser
Posted
  • Author
17 minutes ago, trents said:

I would not start eating gluten-free yet as your doctor may order an endoscopy/biopsy. Going gluten free before that may invalidate the results.

Hi trents

thanks for the advice. 
 

regards

Scott Adams Grand Master
Scott Adams
Posted

If you are in England they have stopped doing biopsies to diagnose celiac disease except in certain cases where the blood tests are not definitive:

Be sure to talk to your doctor soon about your blood test results, and whether or not you need a biopsy, or need to go gluten-free.

Fraser Rookie
Fraser
Posted
  • Author
18 minutes ago, Scott Adams said:

If you are in England they have stopped doing biopsies to diagnose celiac disease except in certain cases where the blood tests are not definitive:

Be sure to talk to your doctor soon about your blood test results, and whether or not you need a biopsy, or need to go gluten-free.

Hi Adams 

 

thanks for your reply. I know they haven’t come back yet. My doctor said she will ring me as soon as they do. 
 

many thanks

DJFL77I Experienced
DJFL77I
Posted

how did it go..

I had night sweats too when my symptoms first started before being diagnosed..   you might just have gastroenteritis...  infection

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Fraser Rookie
Fraser
Posted
  • Author
1 hour ago, DJFL77I said:

how did it go..

I had night sweats too when my symptoms first started before being diagnosed..   you might just have gastroenteritis...  infection

Hi

should get the results tomorrow I think. For some reason I feel they will come back negative. Not sure why but we shall see. Have been cutting gluten and dairy out of my diet for the past few day’s and my digestive system has calmed down some  which is nice.

at the moment I am very anxious and prone to googling symptoms which is just feeding the anxiety which in turn makes my digestion worse. It’s the ultimate viscous circle! 
 

thanks

 

fraser

Also have had symptoms for about 3 months which I feel is too long for a gastric infection. 

Ladybird Newbie
Ladybird
Posted
On 10/8/2020 at 7:58 AM, Fraser said:

Hi 

been looking at this site for a while and thought I would post my experience. I am on England. I am a 59 year old male and I started having issues about 3 months ago.

it started with loose stools every morning which were always as soon as I got up and always came out very quickly. 
had blood test that didn’t reveal anything but have had other issues since. 
I get off to sleep ok but always wake now at about 3 and struggle to get back to sleep.on about 5 occasions I have had diarreah when I have woken in the night. I now wake every night with cramping in my stomach and struggle to get back to sleep.

i never have diarreah all day just loose first thing in the morning and then ok. 
 

i always start to feel worse in the evening leading up to bedtime and can feel a build up happening. Get off to sleep ok but always wake again after a few hours.

i have also occasionally woken up in a sweat. 
I have had another blood test to check on Celiac and am waiting for the results. 
having read this forum I feel like I may have some of the symptoms. I also am very anxious at the moment.

i am trying to cut our Gluten now to see what difference that make.

apologies for the rambling text but I guess my questions would be, does anyone else have similar symptoms and is it unusual for someone of my age to suddenly become gluten intolerant?

thanks in advance

I have exactly the same symptoms that you are describing, except I wake up at 2am! Let us know what your results say, I’m intrigued:)

Fraser Rookie
Fraser
Posted
  • Author

Hi

so got my results and negative for celiac but my doctor has said it doesn’t rule out gluten intolerance.

She also feels I may have IBS and a lot of the symptoms do match. 
I cut out dairy and gluten a week ago and have been a little better since but it’s early days and I am still waking up at the same time each night which she says could be due to my anxiety levels. 
 

many thanks

 

Fraser

trents Grand Master
trents
Posted

It is not unusual at all for some of your age to develop Celiac Disease or other gluten-related disorders. I was in my early 50's when I finally got diagnosed but I realize there were symptoms present at least 15 years before the diagnosis. About 40% of the population have the genetic potential for Celiac Disease but most of those never actually develop the disease. That requires some kind of trigger. Experts believe these triggers consist of some kind of physical or psychological stress event such as a viral illness or emotional trauma. Decades ago it was thought that Celiac Disease necessarily develops in childhood but we know better now.

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