Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oat Anti-bodies?


guy220d

Recommended Posts

guy220d Rookie

I know about tests for gliadin and reticulin antibodies, but is there such a thing as a blood test for avenin? I was curious because I think I have my strongest reaction (headache, nausea, cramping) to eating oats.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
I know about tests for gliadin and reticulin antibodies, but is there such a thing as a blood test for avenin? I was curious because I think I have my strongest reaction (headache, nausea, cramping) to eating oats.

None that I have heard of yet. Wish there was!

hungryforlife Apprentice
I know about tests for gliadin and reticulin antibodies, but is there such a thing as a blood test for avenin? I was curious because I think I have my strongest reaction (headache, nausea, cramping) to eating oats.

Hi Guy22od:

Oats are the only thing that I have a strong reaction too. I can eat bread products, (I have the subtle symptoms, ie. tiredness, brain fog, occasional body dumping etc.) But when I eat oats it is fast and immediate, it is as if I have just been poisoned. I ate oatmeas EVERY day for about three years, along with changing to whole wheat products and a whole "healthy diet." I continued to get sicker and sicker, neuropathy, stomach, blood sugar issues, etc. I was to the point that I could not get out of bed. After taking oats out of my diet and am starting to feel better. I am having my scope at the end of the month and CANNOT wait to go completely gluten free.

Good luck to you. (I often wondered if I am just not allergic to oats?)

Guest Robbin

Oats and barley were the big ones for me, but I noticed everything starting with oat problems. Even the Irish oatmeal gave me a severe reaction. I almost wonder if it is because of gluten AND oat fiber. Have either of you noticed barley giving the same immediate reaction as with oats?

jenvan Collaborator

No test yet. Some Celiacs do react to pure oats. However, it also could have been gluten contamination in your oats that caused the issue.

hungryforlife Apprentice

Hi Robbin, I barley and rye are not really a part of my diet so I cannot comment on them. I try to believe the cross contamination rational, but I can eat pure whole wheat flour, or things like shredded wheat and not have a reaction. But one bowl of oats and the whole stomach thing starts again and stays with me for days. At first I thought it was the fiber, but I take fiber everyday and have forever, so I thought it may be too much fiber so gave up the physillim (sp?) and oats would still make me ill. I put the fiber back in and gave up oats and my issue went away. I ate oatmeal one day a week ago after my Gastro appointment, thinking I would just add them back in until my scope at the end of the month. BAD IDEA! A VERY BAD IDEA. I am still suffering the affects.

So, I figure, it could be cross contamination in some, but some just really have a bad reaction to oats. I know without a doubt oats will not be a part of my gluten free life.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,173
    • Most Online (within 30 mins)
      7,748

    Mel12
    Newest Member
    Mel12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.