Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oat Anti-bodies?


guy220d

Recommended Posts

guy220d Rookie

I know about tests for gliadin and reticulin antibodies, but is there such a thing as a blood test for avenin? I was curious because I think I have my strongest reaction (headache, nausea, cramping) to eating oats.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
I know about tests for gliadin and reticulin antibodies, but is there such a thing as a blood test for avenin? I was curious because I think I have my strongest reaction (headache, nausea, cramping) to eating oats.

None that I have heard of yet. Wish there was!

hungryforlife Apprentice
I know about tests for gliadin and reticulin antibodies, but is there such a thing as a blood test for avenin? I was curious because I think I have my strongest reaction (headache, nausea, cramping) to eating oats.

Hi Guy22od:

Oats are the only thing that I have a strong reaction too. I can eat bread products, (I have the subtle symptoms, ie. tiredness, brain fog, occasional body dumping etc.) But when I eat oats it is fast and immediate, it is as if I have just been poisoned. I ate oatmeas EVERY day for about three years, along with changing to whole wheat products and a whole "healthy diet." I continued to get sicker and sicker, neuropathy, stomach, blood sugar issues, etc. I was to the point that I could not get out of bed. After taking oats out of my diet and am starting to feel better. I am having my scope at the end of the month and CANNOT wait to go completely gluten free.

Good luck to you. (I often wondered if I am just not allergic to oats?)

Guest Robbin

Oats and barley were the big ones for me, but I noticed everything starting with oat problems. Even the Irish oatmeal gave me a severe reaction. I almost wonder if it is because of gluten AND oat fiber. Have either of you noticed barley giving the same immediate reaction as with oats?

jenvan Collaborator

No test yet. Some Celiacs do react to pure oats. However, it also could have been gluten contamination in your oats that caused the issue.

hungryforlife Apprentice

Hi Robbin, I barley and rye are not really a part of my diet so I cannot comment on them. I try to believe the cross contamination rational, but I can eat pure whole wheat flour, or things like shredded wheat and not have a reaction. But one bowl of oats and the whole stomach thing starts again and stays with me for days. At first I thought it was the fiber, but I take fiber everyday and have forever, so I thought it may be too much fiber so gave up the physillim (sp?) and oats would still make me ill. I put the fiber back in and gave up oats and my issue went away. I ate oatmeal one day a week ago after my Gastro appointment, thinking I would just add them back in until my scope at the end of the month. BAD IDEA! A VERY BAD IDEA. I am still suffering the affects.

So, I figure, it could be cross contamination in some, but some just really have a bad reaction to oats. I know without a doubt oats will not be a part of my gluten free life.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,497
    • Most Online (within 30 mins)
      7,748

    sturfninja
    Newest Member
    sturfninja
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.