Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Sick Easier Since gluten-free


rache

Recommended Posts

rache Apprentice

I have been doing the gluten-free diet for almost a year now. I have had accidental incidents with gluten (including McDonalds FF, which i still dont understand if they are gluten-free or not.... but anyway!). But since i've been on the diet and trying to control this illness i seem to get sick way easier! in the past year ive had about 3 colds, stomach flu, bronchitis, sinus infections. I always just have an overall sick feeling in my body. I get real weak, shakey, still have some reoccuring nausea. I do feel better since starting the diet. Not 100% better, but better. It's just these weird other things are happening that i never had before, when i wasnt gluten-free. These things are interfering with my everyday life. Has anyone else had anything similar happen?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



key Contributor

Yes!!! I have been sicker this year then in my whole life! I have been gluten free for a year in the beginning of May. It is so frustrating. I don't understand it. I am starting to wonder what is wrong with me. I just got over having the flu. I was the only one in my family that didn't get a flu shot, but was the only one to get the flu in my house and I have three kids under six. I am sick more then they are and when I get a cold now, I get a cough for like a month. I have had some cold virus going on every month since October. The doctor says it is because I have kids, but the kids aren't even sick as much as me. I am at my whits end. I try and stay healthy and eat right, etc., but I don't know. I have had accidental gluttenings too and don't know if this has to do with it or what.

Maybe someone else will have some answers, but I can totally relate and I don't know what is causing it.

Monica

ilstate Newbie

My experience has been quite different. In the 5.5 years that I have had celiac, I haven't gotten (NON CS) sick at all. Not a single cold, flu, cough, ache/pain, sneeze, sniffle or anything. I know I've been exposed because my wife gets colds alot. I had started a similar post to this about six weeks ago and there were a couple of other people who hadn't been sick either.

key Contributor

May I ask what you are doing to not get sick?? I want to know, because I am tired of being sick all the time.

Monica

jerseyangel Proficient
My experience has been quite different. In the 5.5 years that I have had celiac, I haven't gotten (NON CS) sick at all. Not a single cold, flu, cough, ache/pain, sneeze, sniffle or anything. I know I've been exposed because my wife gets colds alot. I had started a similar post to this about six weeks ago and there were a couple of other people who hadn't been sick either.

Me too! Although I've only been gluten-free for 9 months. I did not get sick with a cold or virus at all this winter--even when someone else in the house had one. This was also the first Christmas season that I didn't get sick--I would always manage to catch something then. I'm not doing anything special--just eating gluten-free and taking a multivitamin every day.

ilstate Newbie
May I ask what you are doing to not get sick?? I want to know, because I am tired of being sick all the time.

Monica

I'm not doing anything. I don't take vitamins or have a very balanced diet. I'm a really busy grad student so I don't even have time to work out. In otherwords, I don't have a healthy life style. Maybe something developing celiac triggered a gene or something. I'm not really sure. I can't figure it out. My wife has had all sorts of things including strep throat and light mono. But I didn't get it. Good luck.

Rusla Enthusiast

The only time I get sick is when being glutened. I find just the opposite, everyone at work has been sick many times over and I have not got the flu at all. Howevr, I do keep getting a reoccuring eye infection and everytime I go to the doctor it disappears. However if it is not gone this time when I see him then he can see it, he figures it could be shingles which Celiacs seem to be more susceptible than other people.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eeyor-fan Contributor

I was getting sick for a long while but the "Olay Energy Pack" vitamins...even says gluten-free on the box...seems to have helped a huge amount. Plus the "Culturelle" probiotics Patti got me on say they will help boost immune system. Maybe this things will help others too. Just to double check I called Culturelle (put out by my fave company ConAgra and you can get them at CVS) they are gluten free and won't interact with any medications.

Hugs

Bridget

tarnalberry Community Regular
Has anyone else had anything similar happen?

Yes, but I know it's not the diet for me, because I've been on the diet for two and a half years, and it's just been the past six months or so of extreme unhealthiness - constant migraines and colds every three weeks or so. It's probably because we've moved out of state to a colder climate, started new jobs, and bought a house, but it sucks all the same. Having to drastically alter your idea of what you should be able to accomplish in a day/week/month and what you are/do... yeah. It sucks.

plantime Contributor

The germs and viruses have most likely mutated into something you have not built up immunity to, and that is why you are sick so much this year. Your body is building immunities now, and you will probably not be sick next year.

Tiffany, your moving to a new state means being exposed to a new set of germs, and your body needs time to acclimate. This would happen every time a new child came into day care with a different set of germs.

rache Apprentice

I feel like my body has been bashed into pieces and cant handle any germs at all. Im on week #4 of my sinus infection & bronchitis. I got my 3rd antibiotic today, and was sent for a chest x-ray. And i noticed i seem to get all the side effects from any medication i get prescribed. I feel like my body cant take much more of this... I have been taking vitamins, just in hopes that maybe in some point in time theyll make a difference!

aikiducky Apprentice
I feel like my body has been bashed into pieces and cant handle any germs at all. Im on week #4 of my sinus infection & bronchitis. I got my 3rd antibiotic today, and was sent for a chest x-ray. And i noticed i seem to get all the side effects from any medication i get prescribed. I feel like my body cant take much more of this... I have been taking vitamins, just in hopes that maybe in some point in time theyll make a difference!
Are you taking a probiotic with your antibiotics? Otherwise you're going to wipe out the good bacteria in your gut, and that will make you more suspectible to other bugs again.

Pauliina

key Contributor

Tiffany,

It may be just a phase for you. We had friends move here to TN from California and they were sick alot for like six months. I think it is getting used to the germs in your area.

THen for me, I don't know what my problem is, but I am hoping this will pass.

Monica

rache Apprentice
Are you taking a probiotic with your antibiotics? Otherwise you're going to wipe out the good bacteria in your gut, and that will make you more suspectible to other bugs again.

Pauliina

i did just start taking probiotics a little over a week ago.

i just dont know how much longer i can take this. this sick feeling 24/7 is realllly getting to me. im 21, i have a 1 year old son. i never go out b/c i feel so sick. i feel like i cant take care of my son. all my friends are going out and having a good time, and im at home b/c i havent eaten in a day, or im sick to my stomach. this is so hard to deal with...

jerseyangel Proficient

Rache--I just want to say that I hope you get some relief from all of this soon. I can remember when my boys were very young and it was all I could do to take care of them. When they napped, I rested. I know that's no way for a young person to live--I understand and I will keep a good thought for you :)

rache Apprentice
Rache--I just want to say that I hope you get some relief from all of this soon. I can remember when my boys were very young and it was all I could do to take care of them. When they napped, I rested. I know that's no way for a young person to live--I understand and I will keep a good thought for you :)

Thanks Patti, i really appreciate it :)

sillyyak Enthusiast

YES! I have many symptoms still and n/v/d still. It is very strange. I feel that I have more symptoms now then I did BEFORE I was diagnosed. Sometimes I wish I had my old body back.

Guest cassidy
I get real weak, shakey, still have some reoccuring nausea.

This part of it sounds like hypoglycemia to me. There is another thread on that right now. You might try eating every few hours and see if that makes you feel better. The best diet I have found for it is at www.glycemicindex.com. It seems like a lot of us with Celiac have hypoglycemia as well.

My other thought is, are you sure that you don't have any other food allergies/intolerances? If you don't feel 100% on the diet, you still may be eating things that don't agree with you. If your body is constantly dealing with bad food, it may stress your immune system and make you more susceptible to other illnesses. Just a thought. I am going through this right now. I think there are other things I can't eat and I'm trying hard to figure them out.

Hope you feel better soon

rache Apprentice

Now im even more worried. I had gone to the hospital for a chest x-ray b/c ive been sick for 4 weeks now. Thr nurse from my Dr office called and said that the x-ray came back fine, but she then said the Dr wanted to know if i was having any stomach pain. I said yes, actually lately i have had it worse than normal. And she said the Dr wanted me to go back yesterday ASAP for a stomach x-ray... Being that yesterday was Friday, im assuming i wont hear anything till Monday. I asked why she thought i needed one, but the nurse said she didnt know. I'm a little nervous as to why the Dr thought i would need an x-ray of my stomach... Guess i'll have to wait until Monday and see if i hear anything back!

jerseyangel Proficient

Oh Rache--try not to worry. I know it is hard not to. Quite possibly the doctor has an idea why you've been so sick--at least that way you'll know and can begin to get better. Please let me know what they say on Monday--still keeping those good thoughts coming your way :)

thomas3000 Rookie

I encourage all of you to contact Biohealth Diagnostics....www.biohealthinfo.com You're suffering needlessly and they're experts in treat causes rather than symptoms. If you have sinus infections you should not be taking antibiotics, you sound be taking antifungals...98 percent of sinus infections are caused by fungus according to the Mayo Clinic... ALL people with celiac have underlying infections that need to be treated or total health can't be restored...

scorpionco Newbie

I had a very different experience - initially. I used to get 2-3 colds per year, and after going gluten-free, for a long time I never got sick at all. It was one of things that really proved to me that the diet was really helping. Unfortunately, that hasn't been the case over the last four months or so - in that time, I have had a stomach virus 3 times, and 2 or 3 colds. However, we have a lot of circumstances that I think contribute - we just moved to a new state, we have a toddler in day care, my wife works in a hospital, and last, and I think probably most importantly, we have gone for a significant length of time (2+ years) with a ton of stress and no significant downtime. I think after having to burn the candle at both ends for a while, you start to lose your resistance. Something to think about anyway.

Chris

rache Apprentice

the dr office called me back today with my abdominal xray results. they said there was no blockages. but i have a lot of extra air moving around inside. i have definately been SO bloated lately. i feel like i could be popped with a pin. i swear nothing inside of me is moving. i eat food, and im not sure where it goes... i have felt horrible the last couple of days. im not sure why. right now i feel so sick, nauseated... yuck. this is horrible. i wish it could just be over :(

key Contributor

Rache,

I am sorry you are feeling so sick! Hopefully they can find some answers to your stomach problems. Do you have C or D still? Thinking of you and hoping you get some relief very soon. I take dramamine when I am nauseated and it seems to help me.

Hugs,

Monica

jerseyangel Proficient
the dr office called me back today with my abdominal xray results. they said there was no blockages. but i have a lot of extra air moving around inside. i have definately been SO bloated lately. i feel like i could be popped with a pin. i swear nothing inside of me is moving. i eat food, and im not sure where it goes... i have felt horrible the last couple of days. im not sure why. right now i feel so sick, nauseated... yuck. this is horrible. i wish it could just be over :(

Rache--I have the same problems with gas. My GI, when I mentioned it to him, told me to take Phazyme--I find it helps. If you want to try it, keep in mind that the softgels are gluten-free. The fast acting ones are NOT. My gas can cause nausea, too--especially while eating for some reason. Feel better :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748

    BH1951
    Newest Member
    BH1951
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ok thank you.  Me either 
    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.