Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hospital Contamination

Melissa-M
 Share

Recommended Posts

Melissa-M Rookie
Melissa-M
Posted

My name is Melissa Mandrick I have celiac disease and I was impatient and they Contaminated my food I got celiac reoccurrence and right after I found out I got gallstones. My gallbladder was removed. Before it progressed to the point I was peeing blood. Doctor thinks I have a hernia from surgery. I get gastrol spams every week to the point I pass out. Med change. Later same place Contaminated again . My local hospital didn't believe my source of stomach spams instead check my vagina it was fine and was hurt not there but my stomach.no food for my to eat. What do I do about further hospitalazions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Melissa-M Rookie
Melissa-M
Posted
  • Author

It was Penns Highlands I had to get on my knees and beg with going on 8 hours of stomach etc. spasms before I went to emergency room they said nothing was wrong I don't have celiac. 

trents Grand Master
trents
Posted

Did you make it clear to the food service staff at the hospital that you must have gluten free food?

Melissa-M Rookie
Melissa-M
Posted
  • Author
9 hours ago, trents said:

Did you make it clear to the food service staff at the hospital that you must have gluten free food?

Yes I was there before for the past 6 years and I stated my allergies during intake.

Scott Adams Grand Master
Scott Adams
Posted

I would communicate your gluten-free diet needs with everyone involved with your food. So the person who brings you food--ask them if your meal is gluten-free. If they don't know assume that it isn't and insist that they find out.

Melissa-M Rookie
Melissa-M
Posted
  • Author
2 hours ago, Scott Adams said:

I would communicate your gluten-free diet needs with everyone involved with your food. So the person who brings you food--ask them if your meal is gluten-free. If they don't know assume that it isn't and insist that they find out.

I ask before I eat everytime that it is gluten free . One of the staff members know about my celiac but put it the toaster said others patients that saw I asked if she used the toaster she said no. So I ate it. Found out later

Melissa-M Rookie
Melissa-M
Posted
  • Author

I went to the cafeteria management and head of building health and safety we all had a long discussion.still happened.

I had to go to the emergency room for gastrol spams that lasted over 8 hours. I was on my knees begging to be sent to the emergency room .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Contact the hospital administration and report that incident. The administration would want to know about it in order to take appropriate action to confront the staff member in question and educate them. If this staff member were being careless with your health needs then it is likely they would repeat it and endanger others. Here in the USA you get sent a patient satisfaction survey every time you have a doctor visit or hospital stay. Here, the healthcare systems take patient satisfaction very seriously.

trents Grand Master
trents
Posted

If they aren't responsive, use another hospital next time. Do you have that option?

Melissa-M Rookie
Melissa-M
Posted
  • Author

I did they survey and that's who I talked to in the first place. No matter what hospital I go to they don't feed me properly I get a banana everyday to eat for breakfast lunch dinner and sometimes one extra small lacking in jelly and peanut butter carrots califour some beans for a month I was netrition  deprived. They tried to cover up the matter when saying anything about it

trents Grand Master
trents
Posted

Can you eat hard boiled eggs?

DJFL77I Experienced
DJFL77I
Posted

are you sure youre not still eating gluten otherwise

youre too young to be that sick yet

Melissa-M Rookie
Melissa-M
Posted
  • Author
3 hours ago, DJFL77I said:

are you sure youre not still eating gluten otherwise

youre too young to be that sick yet

I use only certified gluten free meals

DJFL77I Experienced
DJFL77I
Posted

Stop eating packaged food even if it's certified gluten-free

trents Grand Master
trents
Posted

Certified gluten-free should be okay except for the most sensitive Celiacs. There are two gluten-free certifying bodies and one of them uses a stricter standard of 10ppm while the other uses the FDA guideline of 20ppm. If you don't have a problem with what you eat outside the hospital I would think that's no where the issue is.

DJFL77I Experienced
DJFL77I
Posted

How do you tell which use the 10ppm one

trents Grand Master
trents
Posted
(edited)

This is helpful: https://www.schaer.com/en-us/a/certified-gluten-free

I was in error. There are three certifying agencies. Two use the FDA recommendation of 20 ppm while gthe GFCO standard is 5 ppm, not 10. I think the GFCO has a distinctive logo bearing the letters GFCO but I'm not positive about that.

Be careful with products that don't bear a gluten-free certified label but say stuff like, "Naturally gluten free." That would only rule out gluten used as an intentional ingredient but would not rule out cross contamination.

Edited by trents
RMJ Mentor
RMJ
Posted

GFCO limit is 10ppm and they have two distinctive logos, the old one and a new one.

GFCO

trents Grand Master
trents
Posted

The article I was referencing must have it wrong then but I also quoted the article incorrectly. Having a bad day. Upon more research here is what I found:

Here is a direct copy paste from the article: 

In addition to these organizations, there are also three programs which offer certification for gluten free foods: The Gluten Intolerance Group’s Gluten-Free Certification Organization (GFCO), the Celiac Support Association (CSA), and the Allergen Control Group. Each of these groups has its own tests and standards for the levels of trace gluten they will allow. Here is a quick overview:

Gluten-Free Certification Organization (GFCO) – This group requires tested foods to contain less than 20 ppm of gluten, though many foods contain less or even no detectable traces of gluten.

Celiac Support Association (CSA) – This group requires tested foods to contain less than 5ppm of gluten – they also require that foods be free from oats, even gluten free oats.

Allergen Control Group – This group requires tested foods to contain less than 20 ppm of gluten and it is endorsed by Beyond Celiac as the Gluten-Free Certification Program (GFCP).

But the CSA has the strictest standard it seems - 5 ppm.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.