Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel really weird on gluten free


zentg

Recommended Posts

zentg Rookie

So benefits of gluten free:

- no longer crapping myself, which also means less laundry

- i feel like my nasal congestion is cleared up significantly and i can breathe better

Cons:

I have no appetite for any food. Everything without gluten taste awful to me. Even if I make a really tasty rice noodle with seasoning and everything, after a couple bites I Don't want to eat it. Gluten free foods just don't have the same OOMPH that gluten containing foods have. I know if I eat gluten foods I will feel sick, but if I don't eat foods with gluten, I feel like I am not eating any real foods cos all these gluten free foods feel like fake foods to me. In a way I feel like I am starving myself and I feel terrible! I know gluten is bad, but i feel like if I don't eat the gluteny foods I will die. 

 

Anyone else experience this? What to do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

That is not my experience, at least of late. Almost 20 years ago when I was diagnosed with celiac disease I would have been more in agreement with you. But the food industry has made great strides in producing gluten-free offerings that taste very good. Some of them even taste better than their gluten counterparts. Is that true for every gluten-free alternative? Certainly not. But there is enough variety out there that you should be able to find things that you like. I am speaking of processed foods at this point.

You do not mention how long you have been eating gluten-free. It does take a while to getting used to things tasting different. But after awhile, different becomes the new normal and you enjoy them just like you did their gluten counterparts. When I was a kid I used to hate some foods, like coconut cake or coconut macaroons. Now I love things that have coconut in them. Our tastes do change over time. So give it time.

Now, let's move away from processed foods. Many things you can still eat that you make at home that never contained gluten in the first place and will not have changed. Focus on these dishes. Focus on simple, fresh foods such as fresh meat, fruits and vegetables, eggs, etc.

Join a gluten-free support group where recipes are shared. Research gluten-free recipes on the Internet and try a variety of things. I think you will over time find dishes that are both gluten-free and delicious.

There are still things I sometimes miss and crave. Every time I smell fresh sour dough bread baking I crave it. But I am grateful for the improvement in the quality and quantity of gluten-free foods now available and count my blessings with regard to knowing that there are still many things I can eat without damaging my body. And when I think about it, eliminating gluten from my diet probably has eliminated a lot of unnecessary calories that aren't good for me.

trents Grand Master

Also, have you been checked for COVID? Loss of taste and smell is one of the symptoms.

zentg Rookie
45 minutes ago, trents said:

Also, have you been checked for COVID? Loss of taste and smell is one of the symptoms.

yeah i got tested for covid a couple weeks ago and it was negative. I don't think its covid cos i can still smell pizzas and sub sandwiches and other tasty foods that healthy people can enjoy :(

trents Grand Master

How long have you been eating gluten-free?

zentg Rookie
2 minutes ago, trents said:

How long have you been eating gluten-free?

today will be day 4 - it's especially difficult because i've been a fast food addict and pretty much living on fast food for the past 10 years. I am 32. 

DJFL77I Experienced
1 hour ago, zentg said:

 

Everything without gluten taste awful to me.  I know gluten is bad, but i feel like if I don't eat the gluteny foods I will die. 

you woulda died much faster eating the way you've been eating

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Four days? That long, huh?

My friend, be patient. Realize that it can take months, even more than a year for your small bowel villi to heal. In the meantime, you need to focus on learning where gluten shows up in the food supply, how it is disguised by terminology and how cross contamination occurs in the food production and delivery industry. It's not about avoiding major sources of gluten such as bread, pasta and noodles, it's about totally eliminating it from your diet. Did you know that almost all canned soups have wheat in them? Would you expect tomato soup to have wheat? But it does. Check the labels. Did you know that most soy sauces contain wheat? Have you thought about the fast food eatery where you order a burger patty without bun but didn't realize they cooked the burger on the same grill where they cooked breaded chicken nuggets or the fires were cooked in the same vat with breaded chicken patties? Or the chef sliced your roast beef with the same knife he used to slice someone's sandwich. And what about pills and supplements? Sometimes, wheat starch is used as a filler in meds. Every episode of "glutening" will set the healing back.

It can be daunting at first but you will catch on.

Edited by trents
Pat Jackson Apprentice

I was diagnosed (by biopsy) early in the pandemic, after suffering for many, many years.  Going gluten free has not been easy, but has been absolutely worth it.  I had already eased off most gluten, because I had known for years that it was a problem.  I thought it was just an allergy, as I had many of those.  I live in a household of 5 adults, so we often had things like pizza and carryout Italian.  I would have just 1 piece of pizza or just half of my spaghetti, and then get so bloated that I couldn't stand the waistband on my pants, even the really stretchy ones.  

Going gluten free had an immediate effect on the daily bloating problem for the first couple of months.  I was still getting carryout, but concentrating on only things that would be considered gluten free.  However, I learned that cross contamination became a big issue for me, and became more so as time went on.  Now, I never eat food I haven't prepared myself, and things are a lot better.  I eat mostly whole foods, and very little prepared foods, but sometimes its nice to have something really easy.  I really miss restaurant food, but here's my advice based on what I've done that helped a lot:

1.  Concentrate on those foods that you like and can prepare for yourself.  I just allow myself to eat whatever I want that makes me happy.  Fortunately, I love vegetables, so sometimes that's all I eat for a meal.  My body seems to let me know when I need more protein, as I start wanting it more.  I now try to pay attention to getting an overall balanced diet, but in the beginning I worried less about that and more about finding satisfying foods so I didn't feel so deprived.

2.  Find substitutes for the foods you really, really miss.  For me, that involved a lot of experimentation with pastas and frozen pizzas.  Many were huge disappointments, but I now have 2 really good frozen pizza choices, and I just found a good pasta at Whole Foods.  I don't even eat those very often, but somehow just knowing that they are there for me when I want them really helps.

3.  Concentrate on the positive.  Instead of thinking about how much you miss the fast food, think instead about how happy you are that you feel better.  I am never, ever tempted to eat anything gluten, because I know what will happen if I do.  But accidents happen, and when they do, I think its best to think of it as a learning experience.  I think of it as a "glass half full" vs. "glass half empty" kind of thing.

4.  Give it time.  You need to retrain your body.  In time, I suspect you will begin to enjoy food again, but it will be different foods.  I found that I don't even like anymore some of the foods I used to love.  For the most part, that's a good thing because those foods were the unhealthy things that I used to eat.

Good luck.  You can do it!

zentg Rookie

thanks everyone,  yeah I agree it may be uncomfortable now but it is necessary and I'm sure I'll get used to it before too long and then I can reap the health benefits!

ButWhatCanIEat Explorer
On 1/3/2021 at 8:46 AM, zentg said:

So benefits of gluten free:

- no longer crapping myself, which also means less laundry

- i feel like my nasal congestion is cleared up significantly and i can breathe better

Cons:

I have no appetite for any food. Everything without gluten taste awful to me. Even if I make a really tasty rice noodle with seasoning and everything, after a couple bites I Don't want to eat it. Gluten free foods just don't have the same OOMPH that gluten containing foods have. I know if I eat gluten foods I will feel sick, but if I don't eat foods with gluten, I feel like I am not eating any real foods cos all these gluten free foods feel like fake foods to me. In a way I feel like I am starving myself and I feel terrible! I know gluten is bad, but i feel like if I don't eat the gluteny foods I will die. 

 

Anyone else experience this? What to do?

I don't really eat the "gluten free" fake bread and noodles. I think they taste terrible and do not make good substitutes at all.
It was a rough adjustment as I had been mostly vegetarian but I have switched more to a meat and vegetable based diet. Just skip the noodles and bread substitutes altogether. Try experimenting with spices and sauces (homemade, unless you can find good gluten free ones) until you can find a flavor mix that works for you.
Good luck!

DJFL77I Experienced

Gluten free Elbow noodles taste just as good or better but are made with corn which might be a problem for some

ButWhatCanIEat Explorer
24 minutes ago, DJFL77I said:

Gluten free Elbow noodles taste just as good or better but are made with corn which might be a problem for some

I should try those

ronaboat Rookie

There are SO many brands now of frozen dinners, pizza, pasta, lasagna etc that I’m sure you will find a fav amongst them. A surprise is the Sam’s Choice gluten-free bread (white and multigrain) which I only found by accident in a Walmart because it is NOT FROZEN but sits with their regular bread choices!!! Who knew?  It doesn’t even need to be toasted and makes great soft sandwiches. I love the brand SAFFRON ROAD and EVOL for my main frozen dinners but there are many more. UDDI’s Lasagna is tasty but in the UK you can make your own with ground beef, white & red sauces and flat lasagna pasta strips & cheese. I still haven’t found a lasagna white sauce in Texas yet. Still...You can’t go wrong with fresh meat, mash potatoes and veggies! Or fish or shrimp .... Sausage, eggs & bacon with Van’s blueberry waffles and mayple syrup or bagels or instant gluten-free oatmeal to start the day!! You can eat just as “unhealthy” and fattening as before if you like and still be safe!!! Give it some time!! Our caterers on the film sets cook virtually everything gluten free and everyone loves it. 

DJFL77I Experienced
On 1/4/2021 at 10:31 PM, ronaboat said:

There are SO many brands now of frozen dinners, pizza, pasta, lasagna etc that I’m sure you will find a fav amongst them. 

you shouldnt be eating that package stuff..  guarantee you there's gluten in there somewhere

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,665
    • Most Online (within 30 mins)
      7,748

    Lucille S
    Newest Member
    Lucille S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      @Joe R Thanks for clarifying! That's what I've heard, too, about Italy, but I've never been, sad face. Almost no one on these boards would recommend the approach of your GI doc, and would instead stick with yours. (Maybe if a "glutening" causes so many discomforts and inconveniences that it just overwhelms your life, and you have nothing else to do...maybe.) But, generally in the clinical setting, coming off prednisone requires a taper, as suddenly quitting can cause problems. Anyway, good for you!
    • Joe R
      I am 58 years old and was diagnosed two years ago with Celiac Disease based on an EGD showing lymphocytic infiltrates and blunted villi in my duodenum. Lab work shows a severe IgA deficiency. Is it worthwhile to consult with an immunologist regarding the IgA deficiency?  I don’t seem to have any chronic sinus issues or infections but feel like I should get more information regarding the consequences of not having IgA from an expert. I live in Atlanta and surprisingly I have yet to find an immunologist that specializes in this area. Does anyone have a suggestion as to who I con consult with?  I’m sure that telemedicine consults can easily be accomplished these days if I can’t find a local expert. 
    • Jmartes71
      I was diagnosed in 1994 with celiac disease by Kaiser with biopsy and was told to stay away from wheat and I'll be just fine.I have and Im not.Had my first baby in 94 and my tolerance level was horrible.Having a celiac episode we all know how its horrible with the vomiting and digestive issues. Never googled because internet wasn't around.Still pushing through that's my normal.In 2001 was busy with my sick baby that went through the ringer with severe chronic Neutropenia it was horrible times he out grew it now almost 24 years old this month. In 2007 still digestive issues had blood drawn and have many food allergies.  told my primary im celiac ( i had primary Dr 25 YEARS up til May 2025.My savior was tramadel thats what my doctor gave me and thats what ive been on up til 2023 stopped when i got covid for the 3rd time to give my body a break. Been through  every test.Gi Dr as well who said I wasn't. celiac in 2024 Ive been glutenfree for 30 years at the time now 31 years. Im going to Standford this year and had breath test and sibo which is positive. I have ulcers on my body and I asked how when it was diagnosed as staph 4 years ago, not wanting to admit its from my dismissed celiac condition. Currently dealing with that.My last job was a bus driver last day of work was in March 2023. I was released from my job because of being out so long dealing with health issues. Disability is not helping at all, no income stressed.Currently doing more test and will be going under again next month with new GI doctor at Standford. Depressed because Im literally falling apart and it seems as if menopause is activating it more.Not eating what im not supposed too,always feeling full, tired, eye sensitivity to sunlight, constant bumps in back of my throat, pain down my left leg. Going through more test.Why is it so hard to get help or is it because I was dismissed all these decades?Should I take legal action?Im Currently not doing well which is keeping me from holding a job and im getting older.I can't push through anymore.Im very much into natural supplements that help but im still declining with one thing after another. What miracle will help so I can get back in the production line to make money.
    • Joe R
      That was the suggestion from my GI doc but I never book the medicine and maintained a strict gluten free diet. Actually, Italy is much more sensitive to gluten free diets than the US, I found. 
    • plumbago
      @Joe R are you saying that while traveling in Italy as a person with Celiac disease, you are eating gluten-containing foods and taking prednisone to dampen down the flares? Plumbago
×
×
  • Create New...