Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone see a doctor 1+ year after going gluten free?


JM12

Recommended Posts

JM12 Apprentice

I went gluten free a little over a year ago. I didn't see a doctor before doing this or get the proper testing. I didn't have insurance at the time and I was financially not in a good spot. It was definitely the solution to my problems, whether Celiac or NCGS. I do have health insurance now, and I'm considering seeing a doctor about my gut health. I know the blood test won't show anything (I already tested that which showed good results), but I'm curious about what an endoscopy might show. I will NEVER try a gluten challenge again, so I think the boat for a celiac diagnosis has sailed, which is fine, but I feel like why not see.

My gastro problems are minor (in my opinion). My stomach is still generally sensitive to things like processed food, dairy, caffeine, alcohol, sometimes pork, etc. Nothing major or severe like some members here, but I've been dealing with reactive hypoglycemia which has been a big deal, and have never had my gut health looked at. I did see a GP recently, and we spent time talking about something unrelated I'm dealing with (kidney problem), and I brought up seeing a gastro or looking into my gut health, she basically said she thought it probably wasn't necessary since I've been doing well on a gluten-free diet. I'm honestly ok with that. Considering I'm still recovering and have never seen a gastro, it's been something on my mind. Wondering if anyone else didn't see a doctor for the first time until after going gluten-free, or had an endoscopy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

It might be a tough sell to have your insurance company cover a biopsy if you've been gluten-free for a long time. In genera they want you to do a gluten challenge, and do this to make an official diagnosis, and provide follow up care (which rarely happens!). Since you're opposed to a gluten challenge, you could get stuck with the bill for a biopsy...not sure how your insurance works, but most only pay for things like this when you follow certain protocols.

You may want to consider food sensitivity testing, for example ALCAT offers this (disclosure that they have also been a sponsor of this site in the past), to see if you may have issues with other foods.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,892
    • Most Online (within 30 mins)
      7,748

    Beth T
    Newest Member
    Beth T
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      The article was shocking - and horrifying - to read. For me it’s a good argument to cook as many fresh foods as possible. I personally can’t do grain free because I lose weight too quickly and don’t feel full, but I will be sticking to companies I trust like Lundberg for rice.    I live in Germany and thankfully, labeling here is more transparent and more trustworthy than it appears to be in the U.S. these days (where I’m also originally from).  I am so sorry to hear this! May you heal quickly. ❤️
    • Scott Adams
      Yes, it is unfortunate that the GFCO seems to have a policy that allows companies that it certifies to lower their guard the longer that they've had their certification. After jumping though the harder GFCO testing requirements for long enough they seem to "rubber stamp" companies and allow them to keep their certification with much less testing going forward. To me this is like having a restaurant where you train the staff one time about how do handle gluten-free foods, and do the training less and less over time, even though you might have high turnover in the industry. People in big food production and supply companies come and go, just like in restaurants, and it's important never to lower your guard.
    • Scott Adams
      There are tons of ingredients that can cause IBS-like issues in anyone, but especially in newly diagnosed celiacs, and it would probably make sense for us to do an article on that topic, but here is an article that might be helpful:  
    • Waterdance
      Thanks but that amount of gluten will def have me in chronic pain and discomfort. My hemorrhoids issues are quite severe. Part of the reason I've abandoned diagnosis. 
    • Beverage
      Are you exposed to any airborne sources of gluten? We have an older house and constantly fixing something. Cutting into old wall board or plaster can release gluten into the air. Also, the sickest i ever got was from taking care of my neighbor's chickens, they get excited and kick up everything, air filled with dust. Sure enough, their food contained gluten grain.  Any pets? If they are eating gluten, they lick themselves, you pet them .... my pets all eat grain free pet food. If I pet someone else's critters, which I am compelled to do, I immediately was hands.
×
×
  • Create New...