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Can celiac disease cause shakes?

BME21
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BME21 Apprentice
BME21
Posted

Hey Everyone! 

Can celiac disease cause shakes in your arms?

I have never experienced this before, but some mornings I wake up & have shakes in my arms. It doesn't happen all the time either. (That along with the rash that I get some times, bleeding gums, nausea, ache/pain in upper abdomen, bloating, gas, weight loss, itchy scalp, fatigue)

I had my endoscopy done & got results back negative. I also was not eating enough gluten. (not everyday). Trying to figure out what to do next...

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Scott Adams Grand Master
Scott Adams
Posted

Did you get a blood panel for celiac disease? This is the first step before a biopsy, and I recommend doing it before going 100% gluten-free. You need to be eating gluten daily for at least two weeks before an endoscopy, and 6 weeks before a blood test.

Nearly all of your symptoms could be directly related to undiagnosed celiac disease, and/or gluten sensitivity.

The shakes in your arms could be caused by vitamin/mineral deficiencies, but be sure to discuss this with your doctor, as it's possible they could be something else. Are you taking supplements? 

BME21 Apprentice
BME21
Posted
  • Author
10 minutes ago, Scott Adams said:

Did you get a blood panel for celiac disease? This is the first step before a biopsy, and I recommend doing it before going 100% gluten-free. You need to be eating gluten daily for at least two weeks before an endoscopy, and 6 weeks before a blood test.

Nearly all of your symptoms could be directly related to undiagnosed celiac disease, and/or gluten sensitivity.

The shakes in your arms could be caused by vitamin/mineral deficiencies, but be sure to discuss this with your doctor, as it's possible they could be something else. Are you taking supplements? 

Hey Thank you Scott! I appreciate your quick response 😊. I am trying so hard to get diagnosed so I know what is going on. I have a doctors appointment this Thursday (I will bring up the blood test since I haven't been consistently eating gluten).

As far as supplements - I have been taking a Multi Vitamin, Vitamin D, & B12. I feel like it has helped my fatigue/no energy feeling a little bit, but maybe it has to do with Iron? 

Something else really strange is the fact that on the last blood work I did the fall I had low Alkaline Phosphatase, which from my research, could suggest malnutrition from Celiac?

Scott Adams Grand Master
Scott Adams
Posted

You might look into magnesium citrate, but it can cause a laxative effect and takes a while to get used to. Look into Citrical also, as it contains other minerals that celiacs are deficient in. It also contains Vitamin D, and you need to be careful not to take too much D.

BME21 Apprentice
BME21
Posted
  • Author
29 minutes ago, Scott Adams said:

You might look into magnesium citrate, but it can cause a laxative effect and takes a while to get used to. Look into Citrical also, as it contains other minerals that celiacs are deficient in. It also contains Vitamin D, and you need to be careful not to take too much D.

I will look into both of those. Thanks so much for your feedback! So having shaky arms can be a symptom of celiac then? (like from a lack of absorption of a certain vitamin/mineral)?

Scott Adams Grand Master
Scott Adams
Posted

It's possible, you can review some of the scientific summaries we've done on this here:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ 

BME21 Apprentice
BME21
Posted
  • Author
14 minutes ago, Scott Adams said:

It's possible, you can review some of the scientific summaries we've done on this here:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ 

I will take a look. Thank you so much! 

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BME21 Apprentice
BME21
Posted
  • Author

@Scott Adams Question for you - if I wasn't eating enough gluten before I got scoped (endoscopy) could this have shown everything was normal even if I do in fact have celiac? 

Also, do you know how long it usually takes for your gut to heal?

 

 

Scott Adams Grand Master
Scott Adams
Posted

Yes, according to the Mayo Clinic you need to be eating ~1 slice of wheat bread daily for at least 2 weeks before a biopsy, otherwise you could get false-negative results.

Gut times vary greatly from person to person, but the average time is two years, and this depends greatly on how badly your gut was damaged. Being 100% gluten-free is the key for the fastest possible recovery time

BME21 Apprentice
BME21
Posted
  • Author
3 minutes ago, Scott Adams said:

Yes, according to the Mayo Clinic you need to be eating ~1 slice of wheat bread daily for at least 2 weeks before a biopsy, otherwise you could get false-negative results.

Gut times vary greatly from person to person, but the average time is two years, and this depends greatly on how badly your gut was damaged. Being 100% gluten-free is the key for the fastest possible recovery time

Thanks ~ So if I was not eating enough gluten before the scope (And it did show a false positive results), would my gut still have damage then?

Do you know if doctors will allow for another scope if I did not eat enough prior to this one? 

Scott Adams Grand Master
Scott Adams
Posted

Not eating enough gluten before a test would not cause false-positive results, it might cause false-negative results, as you need to be eating gluten for the damage to occur. If you are not eating gluten the damage begins to heal. If the doctor did not inform you properly of how the biopsy needs to be done, and this is very basic information, then in my opinion they need to re-do the test.

  • 2 weeks later...
BME21 Apprentice
BME21
Posted
  • Author

@Scott Adams Thank you for all of you replies! You have been super helpful.

I have one last question - do you if Celiac or a gluten intolerance of some sort can cause positive ANA blood result by any chance?

Scott Adams Grand Master
Scott Adams
Posted

I believe that ANA measures inflammation and could be a sign of many autoimmune issues, so perhaps it's possible, but you can read up more about what other people have posted on that topic with a search:

https://www.celiac.com/search/?q="ANA test"&updated_after=any&sortby=relevancy&search_and_or=and

BME21 Apprentice
BME21
Posted
  • Author
2 minutes ago, Scott Adams said:

I believe that ANA measures inflammation and could be a sign of many autoimmune issues, so perhaps it's possible, but you can read up more about what other people have posted on that topic with a search:

https://www.celiac.com/search/?q="ANA test"&updated_after=any&sortby=relevancy&search_and_or=and

Thank you again! :)

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