Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yesterday I realized what I've Been Eating


Susie0402

Recommended Posts

Susie0402 Apprentice

I have remained gluten free since March 17, 2020, the day I was diagnosed with celiac.  Since that day, I have added glulten free bagels, bread, cookies and feel miserable.  At night I'll grab a handful of mostly gluten-free cookies.  Pre-diagnosis, cookies, bread, bagels were just not in my list of foods.  So what has changed during these past 15 months?  I wonder if any of you just ate normally pre diagnosis (whatever normally is) but with the celiac diagnosis is anyone triggered by the carbs we can buy at Krogers that are gluten free???  I looked at the ingredients on some of these products and although there is no wheat, there is plenty of butter, potato starch, honey, soy lecithin, milk, egg, xanthan gum, etc.  That can't be good can it?  Is anybody else triggered by these gluten-free products?  Thanks for any feedback.

Susie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GodsGal Community Regular
On 5/30/2021 at 3:05 PM, Susie0402 said:

I have remained gluten free since March 17, 2020, the day I was diagnosed with celiac.  Since that day, I have added glulten free bagels, bread, cookies and feel miserable.  At night I'll grab a handful of mostly gluten-free cookies.  Pre-diagnosis, cookies, bread, bagels were just not in my list of foods.  So what has changed during these past 15 months?  I wonder if any of you just ate normally pre diagnosis (whatever normally is) but with the celiac diagnosis is anyone triggered by the carbs we can buy at Krogers that are gluten free???  I looked at the ingredients on some of these products and although there is no wheat, there is plenty of butter, potato starch, honey, soy lecithin, milk, egg, xanthan gum, etc.  That can't be good can it?  Is anybody else triggered by these gluten-free products?  Thanks for any feedback.

Susie

Hi Susie,

I got my diagnosis in February 2020. Many of us with celiac disease also have other foods that trigger problems. Milk and oat products are problematic for me. As are some raw vegetables. I can have issues if I get too much soy. I have seen others post about not doing well with xantham gum.  🥴

I am curious...are you eating gluten free products that are just labelled "gluten free", or are you getting food products that that say "certified gluten free" and have a certification logo? Here in the USA, food can be labelled "gluten free" and still have gluten levels up to 20 ppm. Most of the certification companies certify at 10 ppm or less.

Also have you looked at non food sources of gluten contamination? I have been a lot better since I switched to gluten free medications, soaps, shampoos, lotions, conditioners, etc.

Hope this helps!

 

 

Scott Adams Grand Master

Many gluten-free replacement products, unfortunately, are loaded with carbs, salt, sugar, and gums like xanthan gum. Xanthan gum causes IBS-like symptoms in many people:

 There are companies making whole grain and sprouted grain gluten-free products that might agree more with you, but you need to seek them out.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748

    MLB1970
    Newest Member
    MLB1970
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.