Yesterday I realized what I've Been Eating

[Susie0402]

I have remained gluten free since March 17, 2020, the day I was diagnosed with celiac.  Since that day, I have added glulten free bagels, bread, cookies and feel miserable.  At night I'll grab a handful of mostly gluten-free cookies.  Pre-diagnosis, cookies, bread, bagels were just not in my list of foods.  So what has changed during these past 15 months?  I wonder if any of you just ate normally pre diagnosis (whatever normally is) but with the celiac diagnosis is anyone triggered by the carbs we can buy at Krogers that are gluten free???  I looked at the ingredients on some of these products and although there is no wheat, there is plenty of butter, potato starch, honey, soy lecithin, milk, egg, xanthan gum, etc.  That can't be good can it?  Is anybody else triggered by these gluten-free products?  Thanks for any feedback.

Susie

[GodsGal]

On 5/30/2021 at 3:05 PM, Susie0402 said:

I have remained gluten free since March 17, 2020, the day I was diagnosed with celiac.  Since that day, I have added glulten free bagels, bread, cookies and feel miserable.  At night I'll grab a handful of mostly gluten-free cookies.  Pre-diagnosis, cookies, bread, bagels were just not in my list of foods.  So what has changed during these past 15 months?  I wonder if any of you just ate normally pre diagnosis (whatever normally is) but with the celiac diagnosis is anyone triggered by the carbs we can buy at Krogers that are gluten free???  I looked at the ingredients on some of these products and although there is no wheat, there is plenty of butter, potato starch, honey, soy lecithin, milk, egg, xanthan gum, etc.  That can't be good can it?  Is anybody else triggered by these gluten-free products?  Thanks for any feedback.

Susie

Hi Susie,

I got my diagnosis in February 2020. Many of us with celiac disease also have other foods that trigger problems. Milk and oat products are problematic for me. As are some raw vegetables. I can have issues if I get too much soy. I have seen others post about not doing well with xantham gum.  🥴

I am curious...are you eating gluten free products that are just labelled "gluten free", or are you getting food products that that say "certified gluten free" and have a certification logo? Here in the USA, food can be labelled "gluten free" and still have gluten levels up to 20 ppm. Most of the certification companies certify at 10 ppm or less.

Also have you looked at non food sources of gluten contamination? I have been a lot better since I switched to gluten free medications, soaps, shampoos, lotions, conditioners, etc.

Hope this helps!

 

 

[Scott Adams]

Many gluten-free replacement products, unfortunately, are loaded with carbs, salt, sugar, and gums like xanthan gum. Xanthan gum causes IBS-like symptoms in many people:

 There are companies making whole grain and sprouted grain gluten-free products that might agree more with you, but you need to seek them out.