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Celiac.com Article:COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk


Scott Adams

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Scott Adams Grand Master
  • 3 months later...

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Creyes Newbie
On 6/28/2021 at 1:32 PM, Scott Adams said:

I have lived in Mexico for most of my 78 years and all my life almost perfect health. near 0 digestive issues until last year´s covid. Now we are in october 2021. In october 2020 my wife and I had covid. Didn´t go to the hospital but both had pneumonia. Very weak, went from 130 to 115 pounds in 3 weeks. Coming out of covid I started having upset stomach, continued fatigue, very strong stomach rumbling, muscle weakness and other minor symptoms. Afer many visits to to gastro md´s, TACs, Ultrasounds, treatments with conventional and alternative medicine, etc., in the last 11 months , in late august I had an endoscopy with biopsy and blood tests and both confirmed strong gluten intolerance and small intestine damage. I strongly suspect that I have a genetic predisposition which covid triggered and exposed. I´ve been gluten free for the last 6 weeks but my symptoms persist. I am tired of upset stomach and rumbling almost 24/7. The doctors told me my small intestine would need months to recover. Is there something I can do to speed it up?

Scott Adams Grand Master

 I had similar stomach/bloating issues and these helped me a lot, but took about 2 weeks to start working:

https://www.amazon.com/gp/product/B08NSXBYVV/ 

Also, there is some research that the amino acid supplements L-Tryptophan and L-Glutamine supplements may speed up gut healing.

Last, be sure you don't have additional food intolerances, and that your diet is 100% gluten-free. You may also want to avoid oats, even gluten-free oats, as many celiacs also have issues with them.

Creyes Newbie
On 10/14/2021 at 1:27 PM, Scott Adams said:

 I had similar stomach/bloating issues and these helped me a lot, but took about 2 weeks to start working:

https://www.amazon.com/gp/product/B08NSXBYVV/ 

Also, there is some research that the amino acid supplements L-Tryptophan and L-Glutamine supplements may speed up gut healing.

Last, be sure you don't have additional food intolerances, and that your diet is 100% gluten-free. You may also want to avoid oats, even gluten-free oats, as many celiacs also have issues with them.

Thanks. I´ve ordered the supplements and will check on your suggestion to avoid even gluten-free oats.

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    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • nanny marley
      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
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