Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased appetite


BrianG

Recommended Posts

BrianG Explorer

I’ve been on a gluten-free diet for 4-5 months and my appetite is still very strong most of the time. I’m tired of always feeling hungry and I’m gaining weight. Is this normal?
Is there anything I can do to lessen my appetite?

Will this eventually go away? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Gaining weight could be normal for some people with celiac disease who are in recovery, and this is often caused by the recovery of damaged villi, so you are now absorbing nutrients better. Some people with celiac disease are actually overweight because they feel like they are starving all the time, and they actually are, so they over eat to compensate. To heal the villi it can take up to two years, so it's possible that your feeling hungry all the time will diminish over time.

knitty kitty Grand Master

@BrianG,

What are you eating?  Are you filling up on gluten free facsimile foods?  Are you following any specific diet (fodmaps, AIP)?  

Are you gaining weight from putting on muscle or are you putting on fatty pounds in the abdominal region?

Can you give us a typical day's intake?

BrianG Explorer

I’m just avoiding foods with gluten, no special diet. Gaining fat not muscle. Yes I’m eating gluten-free pasta, gluten-free bread etc. almond flour products. Lots of fruit.  

knitty kitty Grand Master

Be aware that gluten free facsimile foods are not required to be enriched with vitamins and minerals like their gluten containing counterparts.  Vitamins and minerals are destroyed in the processing of wheat, so the government mandates adding vitamins and minerals to wheat products.  

Gluten free processed products are not required to add vitamins and minerals although they undergo similar processing.  

You need Thiamine (Vitamin B1) to process carbohydrates and turn them into fuel for every cell in your body.  When you are running low on thiamine, your body takes a short cut in order to ration thiamine and stores carbohydrates as abdominal fat.  

There's eight B vitamins that all work together with thiamine.  You may want to consider taking a B Complex supplement.  Discuss this with your dietitian or nutritionist (part of proper follow up care for Celiacs), who can also guide you to a more nutrient dense diet.  I like the Autoimmune Protocol diet (AIP diet) by Dr. Sarah Ballantyne, a doctor with Celiac Disease. 

Hope this helps! 

 

 

 

MADMOM Community Regular
On 7/5/2021 at 4:11 PM, Scott Adams said:

Gaining weight could be normal for some people with celiac disease who are in recovery, and this is often caused by the recovery of damaged villi, so you are now absorbing nutrients better. Some people with celiac disease are actually overweight because they feel like they are starving all the time, and they actually are, so they over eat to compensate. To heal the villi it can take up to two years, so it's possible that your feeling hungry all the time will diminish over time.

i’m the same i’m gluten free now 6 months and in last 2 i’ve gained 10 pounds - not what i needed my weight was normal prior to dx - normal for my height is what i was referring to - i’ve gained more around belly and thighs which i don’t like however i am feeling much better so i’m assuming i’m healing - i watch what i eat too and i’m having a hard time losing it 

Jackie Garrett Collaborator
On 7/1/2021 at 5:19 AM, BrianG said:

I’ve been on a gluten-free diet for 4-5 months and my appetite is still very strong most of the time. I’m tired of always feeling hungry and I’m gaining weight. Is this normal?
Is there anything I can do to lessen my appetite?

Will this eventually go away? 

Hello Brian

I found when I went on medication it made me so hungry I gained well over 2 stone in a matter of 2 months all I wanted to do was eat, now I have my own theory as to why this happened to me, I didn’t realise at the time and have now found out after all these years that I was milk/ lactose intolerant and my body can not break down lactose, hence accumulation of acids I have always had a good appetite I think because of this, so when I went on the medication which contained lactose it made me more acidic and more hungry, so when I came off the meds and stopped ingesting milk and things that contain lactose, it’s in so many things you wouldn’t believe it’s in, and not always listed on the ingredients, I started to feel less hungry, I tried to eat lots more veg, and followed a healthy diet, like fruit, but not too acidic fruit, I like to have watermelon, honeydew, bananas red apples grapes, blueberries and sometimes an orange they are more acidic but the odd time I didn’t think would hurt  to have an orange. I dropped acidic drinks and that included tea and coffee, I drink more water and weak peppermint tea or camomile,  but only one a day if that and alcohol on the odd occasion, but not acidic wine just a lager or something diluted, so my acid levels came down and the constant hunger eventually went, now in my case I believe the milk was the start of my health problems, all my symptoms have gone away it takes time, this is just my theory and my case. I stopped my meds because i felt it was safe to do so ( it was only precautionary that I was on them) I wouldn’t recommend anyone to do that without speaking with their doctor or check that they don’t contain lactose there ma be alternatives, and if you do come off milk make sure you still get your calcium and vitamins from another source, we have to do things safely. And maybe one day when our stomach linings have had a rest from all these extra acids we may be able to go back sensibly to eating and drinking these things again but only in moderation. Good luck Brian 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BrianG Explorer

What medication were you taking? 

Jackie Garrett Collaborator
23 minutes ago, BrianG said:

What medication were you taking? 

Aspirin, Avorstatin, Ramilpril and Bisoprolol all contain Lactose, they made me feel unwell and really hungry I just wanted to eat so much it was horrible, at the time I didn’t know I was Lactose intolerant   it’s only recently that I have found out a lot medicines contain Lactose, hence feeling unwell. They made me very acidic too.

trents Grand Master

It is normal to put on some weight after going gluten free if you are a celiac. Your body is now more efficiently absorbing the nutrition in the food you eat. Adjustments in what you eat (as opposed to how much) and activity levels are key to losing weight. Also, you might want to look into the keto diet. It does work.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,346
    • Most Online (within 30 mins)
      7,748

    Thomas D Cosgrove
    Newest Member
    Thomas D Cosgrove
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Given your severe symptoms it sounds like you would be much better off going 100% gluten-free!
    • Ginger38
      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods. Unfortunately my suspicions are correct. When I eat gluten-free foods -like Schar breads or rolls, or the crackers, including when I stay in my carb limit,  my sugar spikes and just sits there.. .it won;t even come back down for hours. So in the end it drives my overall glucose and A1C up. I can't really even eat oats or things like that. Cereal is very iffy. Gluten free pizzas, gluten free nuggets, and things like that majorly spike my sugar as well, again, even when staying in my carb limits. I already feel so limited on foods because of the diabetes so of course, when medical people and family and friends are like just go eat gluten, I have been like oh okay - maybe it is all in my head and hey its way cheaper to eat gluten and tastes wayyy better...and then I end up right back where I am today,. MISERABLE, just laying around in pain, spending all day in the bathroom, having accidents related to diarrhea, constant tremors, heart rate issues, chest pain etc. and I forgot about these terrible painful canker sores in my mouth right now, I can't even hardly eat or drink or swallow they hurt so bad.  Not being able to feel like I can eat gluten free is extremely frustrating. I had some great recipes and substitutes for things, and was at a decent place with all that, until the diabetes went crazy out of control, so gluten-free living seems to not be an option for me. However, eating gluten when I truly still believe I am celiac -just misdiagnosed- does NOT seem like a wise idea. I am honestly scared  I am going to get deathly ill from all this or something. I even asked my GI doctor, more like begged, if he would please just label me as celiac and tell me I was for sure (like he did before) so I could get the support I truly need. No such luck. He just keeps saying but your tests were okay 🙄 My family went to an arcade and pizza/pasta buffet yesterday - obviously I didn't want to miss out spending time with my family and my mom spent money paying for my meal/buffet - and I was hungry, so of course I ended up eating pizza and pasta that was not gluten-free, because they don't offer any gluten-free options, and then my brother and others want to ask can you eat that or are you supposed to, and I am like well no, and I will definitely pay for it. They think it is hilarious when I say things and then make comments, like how it is so fun to go out with me especially places like that because I am not supposed to eat but I just do it anyway and say I will pay for it 😥 just seems everywhere I turn it is pointless and I have no support 
    • Wheatwacked
      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said McCarthy ... “There are now very few patients with infections, and asthmatics who are coming off medications are staying off of them. ... A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; ... Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL;
    • somethinglikeolivia
      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary depending on where the samples are taken and how many are collected. It’s also true that celiac disease exists on a spectrum, and many people have serious symptoms and immune responses without yet showing classic biopsy damage. Managing diabetes alongside suspected or confirmed celiac disease is incredibly tricky, especially when healthcare providers don’t work as a team to support your whole health. You shouldn’t be forced to choose between controlling your blood sugar or protecting your gut and immune system. A well-planned gluten-free diet can be both nourishing and diabetes-friendly, especially with guidance from a knowledgeable dietitian who understands both conditions. It’s also deeply concerning that your symptoms—neurological issues, severe fatigue, GI distress, rashes, and more—are being dismissed. You’re not just describing discomfort; you’re describing a level of illness that’s life-altering, and your instincts that something is seriously wrong are absolutely worth trusting. You know your body better than anyone. You deserve a team that listens, believes you, and helps you build a realistic, sustainable path to healing. Whether it’s celiac disease, non-celiac gluten sensitivity, or something else, you have every right to go gluten-free permanently if that’s what makes you feel functional. Many people never get a “perfect” diagnosis but reclaim their health by honoring their own experience and choosing a path of least harm. You are not crazy, you are not weak, and you are not alone. Keep advocating for yourself—you and your daughter both deserve a healthier, more stable life.
×
×
  • Create New...