1 year.. antibody levels in weak positive range ?

[fllstuart77]

August was a year since I've been gluten free.  My antibody levels dropped from the 120's to 10 ( ttg iga )..  which is now weak positive ..   0 - 3 is normal... 4 - 10 weak positive..

My previous test showed my ttg iga at 13....  6 months later it only dropped by 3 points to 10...      My igg dropped a lot more though from 18 down to 7...  and is only 2 points from normal range now...

Shouldn't my ttg iga have dropped a lot more ???      why would it have dropped by only 3 points in 6 months ?

I have another test in December..     my Dr said he feels I'm 90% there...     but my stomach still feels upset daily....    better than it was a year ago..  but not like a normal feeling gut...

 

 

[cristiana]

Hi fflstuart

I have been gluten free for 8 years, and very conscientious about it, and yet my tTG has never dropped below 14.   I used to worry about it but my gastroenterologist isn't at all worried - he actually said to me that if I lived on a diet of rice and water my figures might never get lower than that.

Interestingly I have been reading on this forum recently that consumption of dairy can stall recovery and as I have never really got rid of dairy in my diet that might be a reason why my numbers have a) been so low to come down and b) haven't gone lower.  Are you still consuming dairy?

Also, my own view (I'm not a medical person) is that as I suffer from one auto-immune condition that may predispose me to suffering from another.  If so, the condition may be under the medical radar but it could be contributing to me having slightly raised numbers.   I haven't got a list on me now but I recently read about a few conditions that can have this effect.  I hope someone else can chime in on this.

Cristiana

 

[fllstuart77]

no dairy before i had these tests...     lately i've been eating lactose free cheese though....  over Lentil noodles

[fllstuart77]

22 hours ago, cristiana said:

Hi fflstuart

I have been gluten free for 8 years, and very conscientious about it, and yet my tTG has never dropped below 14. 

 

Are you able to gain weight ??

Have your villi healed with 14 ttg? 

[cristiana]

Hi - yes, too much weight! Also, my villi are healed. 

[GodsGal]

Hi,

I am not a medical professional. Your story reminds me of my story. In January 2020 my TTG IgA was >250 (normal range is <15). 11 months later it had dropped to 25.6. I was a bit discouraged that it had not dropped farther. But my GI specialist said that as long as it was going in the right direction, it is ok. This past June my TTG IgA was at 16.3, almost there!

Like your experience, my IGG also dropped a lot more quickly. 

Don't be discouraged. It takes time. Keep us posted!

[RMJ]

It took me three years to get my TtG IgA to the normal range, and six years for DGP IgA.