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Poll: How Many Had Elevated Liver Enzymes?

trents

By trents
in Related Issues & Disorders

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trents Grand Master
trents
Posted

How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

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Jenn2005 Contributor
Jenn2005
Posted

My husband has elevated liver enzymes. His weren't elevated before dx or even right after but they were at this last visit. He was dx last August. His doctor tested him for Hepatitis and he had Ultra Sounds and CT Scans to check for other things going on and since everything else was negative he said its from the Celiac and he'll monitor the levels and they should go down once he's healed more.

Jennifer

Guest Robbin
Guest Robbin
Posted

Count me in on that crazy symptom, too. Have had this off and on for ten years and was tested for hepatitis, and was told it was fatty liver disease common in diabetes, but I don't HAVE diabetes, so the drs. are stumped (of course) :)

angielackner Contributor
angielackner
Posted

my liver enzymes are slightly high...i had them tested when i was being tested for PCOS (which I have)...they had to test me before i could do any kind of fertility treatment...and we have not been able to figure out why they were slightly elevated...celiac had never occured to me...i dont have an "official" diagnosis of celiac...but i do most likely have it...or at least for sure a gluten intolerance...i'll have to bring this up with my GI doc when i see him next.

angie

Bonnie Explorer
Bonnie
Posted

I kept waking up in the morning with a yellow face and eyes. Also incredibly nauseous. Had bloods tests which revealed I have very high billirubin (liver enzymes). Doctor says that I have Gilbert's Syndrome. Have I? Who knows - these quacks talk a lot of rubbish.

Yvonne

zakismom Newbie
zakismom
Posted

Before diagnosis my liver enzymes were all over the place, some were too high others were too low. My GP sent me to a liver specialist gastroenterologist- who of course checked for everything else first.

ravenwoodglass Mentor
ravenwoodglass
Posted
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

Mine were slightly elevated at times. My twin however had his liver deteriorating since birth. We have no way to know if this was celiac related as he passed away at 15, at that time his liver had been totally destroyed. Please be aware that you should not drink or take tylenol if your enzymes are elevated. Especially if you are young and still growing liver damage can be greatly accelerated.

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pturse Apprentice
pturse
Posted

My liver enzymes were elevated too. It was not the case my entire life though, only during a certain period. Went on the diet when first diagnosed (after the whole Hepatitis testing blah blah). Liver was okay after that. Went OFF the diet for a period of 6-8 months and felt absolutely fine but I ran a marathon and I guess that was too much for my body to take and my liver started acting up again and I lost some weight and the color in my face. Started back on the diet in Feb. 06 and have gained a bunch of weight back (ugh), have the color back in my face and I think my enzymes are fine. We shall see, I am donating platelets this weekend and I can ususally tell how my levels are doing by my iron tests during the donation period. I know that isn't a "scientific" way of judging but is a good indication for me.

jenvan Collaborator
jenvan
Posted

pturse-

Why did you end up going off the diet?

plantime Contributor
plantime
Posted

My liver enzymes were in the very low end of the normal range last time they were tested. Doc said it was perfectly normal, but I started taking herbs to treat sluggish liver, and I feel much better!

  • 2 weeks later...
Guest snowy
Guest snowy
Posted
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

I was diagnosed with Gilbert's syndrome about 10 years ago. My bilirubin was 3x higher than normal.

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      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
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      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
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