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For Years I been so sick ....I'm not living .just existing

Diamonds
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Diamonds Apprentice
Diamonds
Posted

For years  I've had  Coleac disease 😔  and   for some reason I think my thyroid .I eat  some good  but  very bad more .cakes .biscuits ..puddings ...gooddinners  ..cakes .chocolate..biscuits....my head  is so  foggy  it  unreliable..anddepression   so bad ...earlier  this  afternoon  I cry and realise if I don't take  a stand  now .I will be dead  soon  ...tho I don't  have  any gluten free food  at moment  ...I  eat  chicken beans  ...orange and apple...my stomach  is feel  better already .. and  it  a bit  annoying  gluten free food  is  so  expensive...but  tomorrow  is   the  start of buy gluten free ....for  me  ..and  I  cant  wait  ...and  I hope to come of  all  this  medicine  for  terrible pain  I've been in for  years  .....I just  needed  to say that ...

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cristiana Veteran
cristiana
Posted
(edited)

Hello Diamonds

Welcome to the forum.

I am so sorry to read that you are struggling.

Can you tell us a bit more about your story - how long ago you were diagnosed, and what sort of support you have had in the past from the medical profession, friends and family in your coeliac journey?  

Some find it easier than others to stick to the diet, but we're here to help.

Cristiana

Edited by cristiana
trents Grand Master
trents
Posted

Diamonds,

Eating gluten free doesn't have to be expensive unless you insist on buying a lot of already made gluten free food products such as pizzas, frozen dinners and snacks. If you will focus on consuming things that are fresh, simple and naturally gluten free it is not much more expensive at all. Focus on fresh meats, fruits, vegetables and eggs and cooking for yourself. If you make things with noodles you will need to buy gluten-free noodles and if your eat sandwiches you will likely need to purchase gluten free bread unless you bake it yourself. It takes a little more effort and it's more restrictive but you can eat gluten free rather economically. And avoid eating out at all costs. You have no control over cross contamination when you dine out.

  • 2 weeks later...
Diamonds Apprentice
Diamonds
Posted
  • Author
On 12/21/2021 at 1:57 AM, trents said:

Diamonds,

Eating gluten free doesn't have to be expensive unless you insist on buying a lot of already made gluten free food products such as pizzas, frozen dinners and snacks. If you will focus on consuming things that are fresh, simple and naturally gluten free it is not much more expensive at all. Focus on fresh meats, fruits, vegetables and eggs and cooking for yourself. If you make things with noodles you will need to buy gluten-free noodles and if your eat sandwiches you will likely need to purchase gluten free bread unless you bake it yourself. It takes a little more effort and it's more restrictive but you can eat gluten free rather economically. And avoid eating out at all costs. You have no control over cross contamination when you dine out.

Thankyou very much trents.   I have good days  and  bad days  ..yes it very tiring  on my bad days  ...if I need go out and buy  food..or cook it ...Happy New Year..

Diamonds Apprentice
Diamonds
Posted
  • Author
On 12/21/2021 at 1:35 AM, cristiana said:

Hello Diamonds

Welcome to the forum.

I am so sorry to read that you are struggling.

Can you tell us a bit more about your story - how long ago you were diagnosed, and what sort of support you have had in the past from the medical profession, friends and family in your coeliac journey?  

Some find it easier than others to stick to the diet, but we're here to help.

Cristiana

Hello Christiana  ....sorry it late reply..foggy head so bad....I was diagnosed with coeliac disease  11 years ago ....no  I  don't  get  no help from doctors  ..or family  not care ...Happy New Year.. 

Just now, Diamonds said:

Hello Christiana  ....sorry it late reply..foggy head so bad....I was diagnosed with coeliac disease  11 years ago ....no  I  don't  get  no help from doctors  ..or family  not care ...Happy New Year.. 

Sorry  I forgot to say  nice to meet you Christiana on  Coleiac.com.

Diamonds Apprentice
Diamonds
Posted
  • Author
On 12/21/2021 at 1:57 AM, trents said:

Diamonds,

Eating gluten free doesn't have to be expensive unless you insist on buying a lot of already made gluten free food products such as pizzas, frozen dinners and snacks. If you will focus on consuming things that are fresh, simple and naturally gluten free it is not much more expensive at all. Focus on fresh meats, fruits, vegetables and eggs and cooking for yourself. If you make things with noodles you will need to buy gluten-free noodles and if your eat sandwiches you will likely need to purchase gluten free bread unless you bake it yourself. It takes a little more effort and it's more restrictive but you can eat gluten free rather economically. And avoid eating out at all costs. You have no control over cross contamination when you dine out.

Nice to meet you  on Celiac.com  Trents..Happy New Year.

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    • trents
      Newly diagnosed

      By trents · Posted

      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      Newly diagnosed

      By plumbago · Posted

      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Newly diagnosed

      By Bronwyn W · Posted

      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Still unsure.....

      By Scott Adams · Posted

      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
    • knitty kitty
      4 Years and very little progress

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