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Disneyland

hez

By hez
in Traveling with Celiac Disease

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hez Enthusiast
hez
Posted

Well, we finally returned from our first vacation in five years. We went to Disneyland in California. Parts of the vacation were wonderful :) Others not so much :(

Unfortunately, I did get sick. Not really sure where or what from. I found out that my reaction to gluten has changed. It used to be that I got sick within an hour if I ate gluten. Now the reaction seems to be much more gradual. Without the loud noises from my stomach or the cramping. Still have the "d" though. Has anyone else encountered this? Plus I have horrible brain fog. Never used to get this in the past. Most of the chefs were wonderful and knowledgeable about celiac. Only ran into a few problems. The chef at the mexican resturant was wonderful! So very sweet.

Even though I got sick I would still reccomend going to Disneyland. I would also reccomend feeding children before the trip! My dd got car sick thru Denver and the entire rocky mountain region! We learned our lesson. Never travel on a empty stomach!

Hez

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lovegrov Collaborator
lovegrov
Posted

I think any Disney destination is a great place to go with celiac (or other dietary restrictions), but it's still eating out -- and eating out at a busy place. You always take a chance. But you also take a chance with processed foods.

richard

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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