Good chance of being gluten intolerant. ?

[Baker75]

For the last 10 years I've had major bowel troubles. IBS-D.    No G.I. specialist has been able to nail it down. 

I have a MAJOR question:  If I stop eating gluten, how long does it take before my body stops having explosive diarrhea ???????

I keep a food diary and I record every single morsel of food I consume and then I write down the bowel movement results.

However, it is incredibly difficult to find the culprit. 

Right now my G.I. Dr just started me on a med called Viberzi (in addition to Lomotil) For the 1st 4 days I was actually constipated. THAT has not happened in 10 years.  The constipation soon stopped and I vacilate between semi-normal BM's and diarrhea. However, one MAJOR help with the Viberzi has been the reduction in the number of BM's/day. I WAS rushing to the bathroom 10-15 times/day. Now I have only 2 or 3 BM's and most of them are NOT emergencies.

So, IF I am gluten intolerant, can my body still have diarrhea even though I don't eat any gluten for 2 days ?

Thank you. Any thoughts you may have would be greatly appreciated.

 

[trents]

If you truly have been gluten free for two days I should think gluten could not be the culprit, at least much longer. But most people have a very incomplete concept about how and where gluten finds its way into their food.

 Studies have shown that most people who claim to be eating gluten free are really eating low gluten. This is particularly true of those who are still eating out.

Having said that, what's keeping you from getting tested for celiac disease? The fist stage of testing is a simple blood draw and lab to check for antibodies that are associated with celiac disease. It is also possible that you have NCGS (Non Celiac Gluten Intolerance) for which there is currently no way to test. celiac disease must first be ruled because they share many of the same symptoms. About 1% of the population have celiac disease but 10x that many have NCGS.

[Baker75]

2 minutes ago, trents said:

If you truly have been gluten free for two days I should think gluten could not be the culprit, at least much longer. But most people have a very incomplete concept about how and where gluten finds its way into their food.

 Studies have shown that most people who claim to be eating gluten free are really eating low gluten. This is particularly true of those who are still eating out.

Having said that, what's keeping you from getting tested for celiac disease? The fist stage of testing is a simple blood draw and lab to check for antibodies that are associated with celiac disease. It is also possible that you have NCGS (Non Celiac Gluten Intolerance) for which there is currently no way to test. celiac disease must first be ruled because they share many of the same symptoms. About 1% of the population have celiac disease but 10x that many have NCGS.

Hello,

My new G.I. Dr has ordered a number of blood and stool tests. I will know more when I see him next month.

The lab sent me the results of the blood tests. IF I have read it correctly, I have a HIGH number for inflamation

Thanks for the reply.

[trents]

There are some blood antibody tests that are targeted for celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

Without more specific information about what tests have been run I cannot comment on the "HIGH number for inflammation" you speak of.

What I can tell you is that if you are going in for more bloodwork related to celiac disease you must still be eating regular amounts of gluten up until the testing is complete or you will likely invalidate the tests. The tests measure certain antibodies given off by the inflammation in the small bowel lining and if you arrest that inflammation ahead of time the tests may not be valid. The equivalent amount of gluten found in two slices of wheat bread daily for 6-8 weeks before antibody testing is the recommendation from the Mayo Clinic.