Are these results good?

[Ros292]

Hello. I'm 29 and recently diagnosed with celiac disease.

I've been gluten free for 3 months and a half, and i had to do a blood test to screen for hashimoto's tyroiditis(runs in the family).

While i was there, i also screened for the celiac markers, and this was the result:

 

anti gliadin IGA 13,12 (down from 100+)

anti transglutaminase IGA 3,17 U/ml (down from 22,73)

anti transglutaminates IGA 2,26 U/ml (down from 8,97)

anti endomysium EMA absent (was present)

Are these results good, or should i improve my compliance with the gluten-free diet? They seem good to me, and i've been very careful with everything, but i don't really know.

 

Thank you

 

 

[Ros292]

1 minute ago, Ros292 said:

Hello. I'm 29 and recently diagnosed with celiac disease.

I've been gluten free for 3 months and a half, and i had to do a blood test to screen for hashimoto's tyroiditis(runs in the family).

While i was there, i also screened for the celiac markers, and this was the result:

 

anti gliadin IGA 13,12 (down from 100+)

anti transglutaminase IGA 3,17 U/ml (down from 22,73)

anti transglutaminates IGA 2,26 U/ml (down from 8,97)

anti endomysium EMA absent (was present)

Are these results good, or should i improve my compliance with the gluten-free diet? They seem good to me, and i've been very careful with everything, but i don't really know.

 

Thank you

 

 

sorry, i meant anti transglutaminates IGG 2,26 U/ml (down from 8,97)

[trents]

Ros292, you are obviously making good progress but it would have been helpful if you had included the reference standards used by the lab to determine what is a negative and what is positive for each of those tests.

As to your question, "should i improve my compliance with the gluten-free diet?" The question implies your are aware you are not being 100% compliant and that is never a good approach to finding complete healing.

[Ros292]

1 minute ago, trents said:

Ros292, you are obviously making good progress but it would have been helpful if you had included the reference standards used by the lab to determine what is a negative and what is positive for each of those tests.

As to your question, "should i improve my compliance with the gluten-free diet?" The question implies your are aware you are not being 100% compliant and that is never a good approach to finding complete healing.

You are right, sorry.

For anti-gliadin IGA, negative is under 9,6 u/ml.

For anti-transglutaminase IGA, negative is under 2,6 u/ml, dubious under 3,5, and positive over that.

For anti-transglutaminase IGG, negative is under 2,6 u/ml.

For anti-endomysium EMA, negative is absent.

 

As far as compliance, i am very careful and don't share any kitchen equipment, but i don't use gluten free shampoo/toothpaste (altough they don't contain any gluten ingredients), and sometimes i eat out/order gluten-free pizza (but only from restaurants that are certified by my country's celiac association, that routinely tests for <20 ppm compliance). I haven't figured out if i should also eliminate these sources.

I've been gluten free since 9/11/2021, and the follow up test was conducted on 14/02/2022.

[trents]

You have definitely made good progress and your follow-up test numbers are probably typical of someone having made a serious effort to eat gluten free for four months out. I mean that in the sense that it is common to still have some lower range positives in the antibody scores after four months for someone who has been compliant. It commonly takes around two years to experience complete healing of the villi for those who are compliant with the gluten-free diet. I guess my advice for you would be to get tested again in six months and see where you are before you start drilling down on your compliance level. I'm not sure where you might find any gluten to cut out unless it would be cross contamination traces in any processed mainline food products you might be using.

Have you had an endoscopy/biopsy? If that is available to you you might want to have that done at the two year mark to check for villi healing.

[Ros292]

3 minutes ago, trents said:

You have definitely made good progress and your follow-up test numbers are probably typical of someone having made a serious effort to eat gluten free for four months out. I mean that in the sense that it is common to still have some lower range positives in the antibody scores after four months for someone who has been compliant. It commonly takes around two years to experience complete healing of the villi for those who are compliant with the gluten-free diet. I guess my advice for you would be to get tested again in six months and see where you are before you start drilling down on your compliance level. I'm not sure where you might find any gluten to cut out unless it would be cross contamination traces in any processed mainline food products you might be using.

Have you had an endoscopy/biopsy? If that is available to you you might want to have that done at the two year mark to check for villi healing.

Yes, and i plan to do one again at the two year mark. Thank you for your clarifications.