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Glutened: Strategies to find the Source


Jeffery D

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Jeffery D Newbie

My wife was diagnosed a month ago with Celiac Disease and we pretty quickly developed tools and knowledge to eliminate any identifiable gluten from her diet.  Her symptoms have rapidly abated but returned today in mild form with no apparent cause.  We have carefully reviewed her food diary and decided to toss out some pre-mixed garam masala (spice mix).  Do others have strategies for determining the cause of an apparent inadvertent 'glutening'?

 


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Scott Adams Grand Master

Besides carefully reading labels and trying to buy items with "gluten-free" or even better, certified gluten-free on them, I have two strategies to deal with such a situation. 1) I use a Nima Sensor and test the items I eat regularly (I think you're right about the spice mix--I tested some curcumin that I bought in an Indian store that did not say "gluten-free" on it, and it tested positive for gluten); and 2) Whenever I eat outside my home I take GliadinX which are AN-PEP enzymes that have been shown in many studies to break down small amounts of gluten in the stomach, before it reaches the intestines (they are also a sponsor of this site, but this is not why I'm sharing this).

Jays911 Contributor
10 hours ago, Jeffery D said:

My wife was diagnosed a month ago with Celiac Disease and we pretty quickly developed tools and knowledge to eliminate any identifiable gluten from her diet.  Her symptoms have rapidly abated but returned today in mild form with no apparent cause.  We have carefully reviewed her food diary and decided to toss out some pre-mixed garam masala (spice mix).  Do others have strategies for determining the cause of an apparent inadvertent 'glutening'?

 

 

1 hour ago, Scott Adams said:

Besides carefully reading labels and trying to buy items with "gluten-free" or even better, certified gluten-free on them, I have two strategies to deal with such a situation. 1) I use a Nima Sensor and test the items I eat regularly (I think you're right about the spice mix--I tested some curcumin that I bought in an Indian store that did not say "gluten-free" on it, and it tested positive for gluten); and 2) Whenever I eat outside my home I take GliadinX which are AN-PEP enzymes that have been shown in many studies to break down small amounts of gluten in the stomach, before it reaches the intestines (they are also a sponsor of this site, but this is not why I'm sharing this).

Echo this. Cross contamination is everywhere. And GliadinX does help. A lot. 

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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